Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis And Gluten - Need Help Finding Gluten


CeliacMom2008

Recommended Posts

CeliacMom2008 Enthusiast

My son was diagnosed in Dec. Since then we've had 3-4 suspected glutenings. Can anyone tell me if they've had any trouble with any of the following? I thought they were all OK, but now I'm wondering...

Aunt Jemima syrup - I just found out Pinnacle won't commit to gluten free, but they said there is no gluten in the ingredients, but there may be CC.

Kraft Shredded Mozarella, grated Parmesan & Romano cheese blend - He eats cheese regularly, but these are the occassional varieties. I made pizza tonight with all of them.

Ragu pizza sauce

Doritos Cool Ranch

Cheetos

Skittles

Thanks for the help! I sure would love a "gluten meter". Something I could stick to his forehead and have it come up with a "Yep, been glutened. Throw out the ________." B)

As a side note, my DH went gluten-free 1.5 weeks ago and we all had homemade pizza tonight and they both ended up in the bathroom. But on previous occassions I've suspected my son takes a few days to ramp into the D, preceded by fatigue and gas for a day or two. But we're so new to this that I could be all wet. And DH's blood tests came back neg. (twice - didn't trust just one :huh: ), but he has shown classic symptoms for about 10 years (IBS diagnosis, extreme fatique, moodiness, easily injures joints and long time to heal those injuries). He decided to try gluten-free just to see what would happen despite blood test.

Help!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Cross contamination with Frito Lay products is quite common. We buy Cheetos from Walmart or Trader Joe's. Walmart's gluten-free products say gluten free on the label. I would suspect Frito-Lay as the culprit. They have a bad reputation around here. As far as syrup goes, it seems like the information changed too frequently, so we switched to pure maple syrup. We had never used it before, but we are used to it now. (It can take some getting used to, especially for kids.)

Ridgewalker Contributor

I agree with everything Jenny said. We used to do Frito-Lay products, but I finally had to nix them. There is simply too much CC at their factories. I almost never buy their stuff anymore, because it's just a big fat risk. And the pure maple syrup is guaranteed safe- it's virtually impossible to get straight answers on other types.

Having said that...

Are you using a pizza stone that has been used for gluteny pizza in the past? Or an old brush to brush on olive oil? Those are two possible culprits in homemade pizza contamination.

We've never had problems with the Kraft cheese blend, Ragu pizza sauce, or Skittles. Well, ACTUALLY, Skittles give me diarrhea and always have. But they are gluten-free and don't bother my kids. I don't know why they do that to me.

CeliacMom2008 Enthusiast

Thanks! We'll omit Frito Lay. :( He's not much of a chip eater anyway. Has always preferred Quaker rice cakes...which look to be a possible source of cross contamination too, so I've already stopped buying those. I guess we'll use gluten-free pretzels for those rare occassions. It's healthier anyway, right. <_< And we already got rid of the Aunt Jemima and switched to Log Cabin Country Kitchen. We also bought the real stuff and we'll try to cross over. I'll do anything at this point to eliminate these accidental glutenings. He has been amazing on the diet and so willing to try anything and accept whatever new curveball we throw at him. He deserves to have that result in NO MORE D!!

How about Smart Choice White Cheddar Popcorn? He loves that, but I think it's Frito Lay or some other mainstream company as wel...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ElenaM posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      I think I am gluten intolerant

    2. - JulieRe replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    3. - Ceekay replied to slkrav's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Gluten free beer ?

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      6

      Oral thrush question

    5. - Scott Adams replied to oscarbolduc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Advice while waiting for testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748

    RyanDunn
    Newest Member
    RyanDunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.