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Thyroid, Meds, & celiac disease/gi


radgirl

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radgirl Enthusiast

After finding out you were celiac disease/GI and moved to a gluten-free diet, were you able to come off your thyroid meds? I ask because I've been on thyroid meds for a year and half (truly convinced that I was hypoT). I'd like to see myself come off these meds if I truly don't need them because I was hypoT due do celiac disease/GI.


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LoriG Contributor
After finding out you were celiac disease/GI and moved to a gluten-free diet, were you able to come off your thyroid meds? I ask because I've been on thyroid meds for a year and half (truly convinced that I was hypoT). I'd like to see myself come off these meds if I truly don't need them because I was hypoT due do celiac disease/GI.

I haven't gotten off my meds because I don't think I will ever be able to, but I have noticed my numbers getting better since gluten-free. Hope that helps.

mftnchn Explorer

I don't expect to be able to come off, but am still tracking the numbers to see if I'll need an adjustment. Right now the doctor thinks my dose is still exactly right.

mommida Enthusiast

I was dx with hashimoto's at least ten years befroe going on the gluten free diet. The endo has decreased my dose of synthroid since I started on the gluten free diet.

tuxedocat Apprentice

This is interesting because I have Graves Disease. We don't know yet if my GI symptoms were aspects of Graves. I was negative on my Celiac blood tests. But I DID get a rash taht doc thought was DH (which is how celiac was brought up) and I start having recurrence of symptoms when I eat gluten. I just dont have severe GI symptoms now that Graves is under control.

wowzer Community Regular

So far my thyroid levels have stayed pretty much the same. I can't remember how many months between the blood test and going gluten free. So we will see if they change with the next blood test.

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      Thanks for the reply. 
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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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