Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg! What Could It Be?!


Bravie

Recommended Posts

Bravie Apprentice

I've cut out dairy, soy, gluten, everything processed, I have my own pots, pans, knives, cooking utensiles, cutting board, sponges, rags, dish soap, can opener, I changed shampoos, I have my own storage area for dried foods, pots and pans, And I have my own little compartment in the fridge. I still feel bad! I eat nothing but meat and veggies, and I still get gas and a slight rash on my back. It isn't quite as bad as it used to be but...WHY AM I STILL HAVING SYMPTOMS AFTER ALL OF THIS HARD WORK?!

It's like i'm still being glutened by something...What is it? Water?! Could I be getting glutened by the family brita water filter? Gah! Idk...Maybe i'm going crazy... <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie
I've cut out dairy, soy, gluten, everything processed, I have my own pots, pans, knives, cooking utensiles, cutting board, sponges, rags, dish soap, can opener, I changed shampoos, I have my own storage area for dried foods, pots and pans, And I have my own little compartment in the fridge. I still feel bad! I eat nothing but meat and veggies, and I still get gas and a slight rash on my back. It isn't quite as bad as it used to be but...WHY AM I STILL HAVING SYMPTOMS AFTER ALL OF THIS HARD WORK?!

It's like i'm still being glutened by something...What is it? Water?! Could I be getting glutened by the family brita water filter? Gah! Idk...Maybe i'm going crazy... <_<

It really could be you are allergic/sensitive to something(s) else. I had to go on a elimination diet and discovered I had quite a few things I shouldn't eat or shouldn't eat that frequently. For instance I am allergic/sensitive to all nuts plus sesame seeds, alcohol, carrots, tuna, lamb, carob plus probably a few extra things I can't think of right now. Sometimes the reason for this is leaky gut and sometimes its just pure allergies. Look to your family and/or ancestors, is that likely or what?

Another thing it could be is mercury poisoning or some other environmentally toxic exposure. But mostly you should try to pinpoint what it is or isn't.

Other than that maybe it is just taking its bloody time working out of your system. Again taking detox herbs could really help like dandelion or milk thistle etc. etc. plus saunas etc.

Do you get enough exercise, by the way? It too might help...

Bravie Apprentice

I take a 2 mile walk every couple of days. I have to, since I don't have a car atm. I'm gonna go to the doctors at the beginning of april to see what else is up. I know that too much salt can screw up my skin, so i eat little to none. I'm really skinny, always have been, but i've gained weight in the past couple of months, like 5 lbs or so.

My boyfriend thinks it's cuz i'm living in this house xD hehehehe That could be part of the problem :P

ravenwoodglass Mentor

What detergent and fabric softener do you use? The rash may be linked to that. I have problems with rashes on my head and body when I use a lot of different products. I have learned the hard way to stick with Arm and Hammer dye free scent free detergent and fabric softner. Don't know if this is for sure the issue with you but thought it was worth mentioning.

YoloGx Rookie

What detergent and fabric softener do you use? The rash may be linked to that. I have problems with rashes on my head and body when I use a lot of different products. I have learned the hard way to stick with Arm and Hammer dye free scent free detergent and fabric softner. Don't know if this is for sure the issue with you but thought it was worth mentioning.

[/quote

That's a good tack. I too have problems with most detergents and even die in some clothing. Kind of forgot about it however. One has one's habits and after a while you don't even think about it. I use alternative less toxic scent free detergent from Trader Joe's in the green and white box... Several people in my family myself included can get rashes from strong detergents or soaps.

Bravie Apprentice

Yea, I think this rash has something to do with the detergent. The family uses ALL brand...My mom refuses to change it...So i'm gonna have to wait till I get out of here in less than 2 months. My boyfriend is extremely familiar and even follows a gluten/casein/soy free diet, just to maintain his diabetes and general health. I told him about the soap, detergent etc. I just can't wait to get out. I'm sick and tired of hearing my mom tell me that Celiac disease is some kind of curse when in reality it actually isn't hehe :rolleyes:

(My mom is an extreme religious fanatic who thinks that I was cursed by the devil with Celiac disease and that its my fault! hahahaha :lol: )

ravenwoodglass Mentor
Yea, I think this rash has something to do with the detergent. The family uses ALL brand...My mom refuses to change it...So i'm gonna have to wait till I get out of here in less than 2 months. My boyfriend is extremely familiar and even follows a gluten/casein/soy free diet, just to maintain his diabetes and general health. I told him about the soap, detergent etc. I just can't wait to get out. I'm sick and tired of hearing my mom tell me that Celiac disease is some kind of curse when in reality it actually isn't hehe :rolleyes:

(My mom is an extreme religious fanatic who thinks that I was cursed by the devil with Celiac disease and that its my fault! hahahaha :lol: )

Just do your laundry yourself with your own detergent till you get your own place. Mom will be glad to have one less chore to do. You may soon be hearing from her how at least one good thing came out of it, you learned to do laundry. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Bravie,

Keep a food log- it could help you pinpoint other problems. It seems like a big pain in the u-know-what but it's really second nature once you get used to it and it can really help figure things out. I've kept one for going on three years now and it has been indispensible.

I hope you feel better very soon! You will.

lisa

melmak5 Contributor

I second the food log.

Its how I found out I couldn't tolerate any grains or raw fruits.

(I have been lucky and have been able to add some of them back in smaller quantities.)

mommida Enthusiast

Checking the laundry soap is a good line of thinking.

Check the fabric labels too!

I happen to be allergic to alpaca. Anything that had been washed with it was causing a reaction. (sneezing, watery eyes, itching, etc.) I even had a reaction to an alpaca sweater that had just been shipped to my house, still double wrapped in sealed plastic bags.

Keeping a food journal will help find other sensitivities.

I don't know how long you've been gluten free, but your gut needs to heal.

dksart Apprentice

After reading your other post, do you think your mom could be sabotaging you? She seems quite mentally unstable and maybe she's testing you (for whatever reason, maybe god told her to)by contaminating your food. I hate to say it, but she seems pretty loony.

susieg-1 Apprentice

i also have problems with DH rash. remember that stamps and envelope glue are no nos. I also have new dishwasher safe potholders if yours are cloth from your pre-celiac era they could be the culprit. I also have a gluten eating family and disinfect remote controls and telephone handsets regularly. the rash if it is DH could take 6 mos to a yr to dissapear it gets better so hang in there

ravenwoodglass Mentor
After reading your other post, do you think your mom could be sabotaging you? She seems quite mentally unstable and maybe she's testing you (for whatever reason, maybe god told her to)by contaminating your food. I hate to say it, but she seems pretty loony.

I also agree that this is a strong possibility. Hopefully the time left in the situation will be brief.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.