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Furthing Testing

beach

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beach Newbie
beach
Posted

My sister has celiac and my question is this. For the past month I have had nausa and lose stools and a very rumbling stomach, especially first thing in the morning. I also have a lot of acid reflux, nervousness and dizziness (although the dizziness may be from the fluid my doctor said is in my left ear). I also have occassional night sweats and I can't sleep at night. I've also lost my appetite and have lost 7 pounds in the last month. (my doctor said it's just from not eating) He did blood work, although I have not heard back with the results, he said he would run the test for celiac as well. However, because I haven't been eating much I'm afraid the test will come back negative. If it does, should I pursue further testing? My doctor seems to think all my symptoms are related to anxiety. I know my chances of having celiac are only 10% but I'm curious. THANKS!

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lovegrov Collaborator
lovegrov
Posted

Top celiac rexperts and the NIH say ALL first-degree relatives should be tested. My whole family did this and my dad, with no symptoms, was positive on everything.

richard

SherriRoy Newbie
SherriRoy
Posted

Anxiety might be the cause, but it doesn't hurt to check out celiac. I got celiac disease from my mothers half brother...so even though he's distant it is totally possible. Since it is your sister...the blood test is a good idea. I turned out half positive and half negative to the test...so they weren't initially sure if I had celiac, but with the biopsy it did show damage.

You do have a lot of symptoms that I have with celiac disease..and I even have IBS. So all aspects are worth checking out. Once you start feeling better, that might help with the sleeping problems.

Hope this helps,

Sherri

plantime Contributor
plantime
Posted

Since your sister has it, you should definitely get tested. My sister is taking my biopsy results to her doc and asking for the tests, since celiac is genetic. Your symptoms could be anxiety, which seems to be the diagnosis of choice these days, but they could also be celiac. I went to my doc about a severe headache that originated in my right ear, she said it was anxiety. Two doctors and three rounds of progressively stronger antibiotics later, the deep ear infection finally cleared up and the headache went away. Anxiety is not the cause of everything that ails us!

Carriefaith Enthusiast
Carriefaith
Posted

You should ask your doctor to get tested for celiac, since your sister has it and because you have a lot of the symptoms. It may be just anxiety but it's better to know for sure.

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    • Rejoicephd
      Basic metabolic panel results - more flags

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      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
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    • knitty kitty
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      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
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