Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs - Or Are Doctors Missing Other Problems?


cmbajb

Recommended Posts

cmbajb Rookie

i'm wondering if anyone else has a gut (haha) feeling that doctors often diagnose someone with IBS in order to take the easy way out. in other words, rather than really working with the patient to see what is really wrong (i.e. celiac, food allergies, etc.), they use IBS as a catchall diagnosis. i was diagnosed with IBS many many years ago, and now gluten-free and working on food allergy diagnoses, my IBS symptoms are gone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast

I definitely agree with you. I think that something has to initially cause the irritation, and like you said, most don't want to have to figure it out. Just throw pills at you and send you on your way. My GI told me that I probably messed up my intestines doing the Atkins diet and prescribed me a pill that eased cramping, but constipated you, and then prescribed me a laxative. Seems as though if I took one, I had to take the other. So, I took neither and continued with my gluten-free diet and the problem was solved. WOW! His reasoning was that I had a touch of IBS. Couldn't be Celiac... you have to have the genes for that.

BTW... I haven't had a genetic test.

Nancym Enthusiast

Yeah, I think you'll find most of us are skeptics of the IBS label. Dr. Lewey does a lot of work on IBS patients and finds they're usually reacting to foods. His web site is at Open Original Shared Link

mushroom Proficient
Yeah, I think you'll find most of us are skeptics of the IBS label. Dr. Lewey does a lot of work on IBS patients and finds they're usually reacting to foods. His web site is at Open Original Shared Link

Not only are most of us skeptics, most of us have worn the label at some point in our sagas. You will probably find that most of us have also been diagnosed with fibromyalgia. Check for me on both. I did initially believe in fibromyalgia at one point (not any more) but never IBS. It is a very lazy diagnosis. It's almost as bad as saying, "You have a rash." Duh! :rolleyes:

nutralady2001 Newbie

Absolutely!! A diagnosis of "IBS" kept me sick for 47 years (yes you read right) until last September when I had to have an endoscopy/colonoscopy after a bowel screening showed blood in both upper and lower GI tracts ........

In all those years I was NEVER offered any testing of any kind just told I had "IBS", problems from the age of 12, "eczema" at age 16 which I am sure was dermatitis herpetiformis now I know more and have seen photos of DH

I doubt a condition even exists actually it's the doctor's lazy way out

Glutina Rookie

Hi!

Yup---IBS was thrown my way on a few occasions, and those were the doctors who barely asked any questions (and I now know not the right ones) and gave me anti-spasmatic drugs. Oh gee, thanks. No looking into the causes, or th link between my rash flare-ups, horrrrible stomach/abdominal pains that would make me feel like I was dying, washroom episodes...you know how the story goes. Thank goodness I was finally referred to a GI specialist when I was in the ER in december. The specialist took the time to really look at my symptoms and told me about celiac disease and gluten/wheat issues. I have been gluten free ever since with a HUGE improvement in my symptoms and overall quality of life. I know that IBS does really exist for some people, but it should be the LAST diagnosis a doc makes, in my opinion. They need to really rule out other possible conditions first.

We can send people to the moon, but we can't properly diagnose people with gluten issues...yeesh!

:)

Glutina

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to The Logician's topic in Related Issues & Disorders
      3

      Gluten Sensitivity

    2. - The Logician replied to The Logician's topic in Related Issues & Disorders
      3

      Gluten Sensitivity

    3. - trents replied to The Logician's topic in Related Issues & Disorders
      3

      Gluten Sensitivity

    4. - The Logician posted a topic in Related Issues & Disorders
      3

      Gluten Sensitivity


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,988
    • Most Online (within 30 mins)
      7,748

    John drage
    Newest Member
    John drage
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      People get genetic modification confused with hybridization. Wheat, as has most of our food crops, has been altered through hybridization to make it more disease resistant, more drought resistant and even to increase the gluten content. Hybridization uses selective breeding/cross pollination to enhance certain characteristics. Genetic modification, on the other hand, uses a "gene gun" to knock out certain genes and replace them with unnatural ones. In some cases, plant genes are replaced with animal genes to achieve certain properties. This is what GMO is about. Have you actually been formerly tested for celiac disease, either by blood antibody testing, biopsy or both, to rule out celiac disease?
    • The Logician
      Thank you for your response. I have had several different antibiotics over the years and none affected my sensitivity to wheat products which I assumed was due to the gluten in them. However I do believe this time it was an antibiotic I’ve never had before so if your explanation is correct it would seem this antibiotic (cefuroxime 500 MG tablet Commonly known as: CEFTIN, 1 tablet by mouth 2 (Two) Times a Day for 10 days.)  could be a cure for my sort of sensitivity. I assume the hospital IV was the same antibiotic. The IV was ordered because my blood culture showed bacteria in my blood. I remember hearing years ago the gmo wheat was found in some products but I guess that was a misnomer. Believe me after over 20 years of putting up with this sensitivity, despite the fact that growing up eating subs, pizza and spaghetti regularly never affected me, I am so relieved to no longer have to avoid wheat.. I hope!
    • trents
      Welcome to the forum, @The Logician! Many antibiotics have anti-inflammatory properties. By the way, GMO wheat is not used in food products: https://www.chefsresource.com/faq/is-wheat-genetically-modified-in-the-united-states/ There is a common misconception that it is.
    • The Logician
      I do not have celiac disease however for 20 years-plus I have been sensitive to gluten. A slice of bread will give me diarrhea in less than an hour. This started with me around the time I believe GMO wheat was beginning to appear in products on the market. Last week i went into the hospital to get antibiotic IV for three days. While there I was constipated so I figured eating gluten would fix that. I had gluten at every meal and it had no affect on me. I was still constipated until I got home and hen started having normal bowel movements even though I continued eating gluten products and I have never felt better! Not even a hint of diarrhea. I’ve eaten some gluten in bread, cream of wheat, pizza every day now for 7 days and still no reaction. I have read that antibiotics may cause gluten sensitivity but not the opposite.  I’m wondering if my gluten sensitivity was not to gluten but a sensitivity to how gluten reacted to a bacteria (good or bad) in my gut. A bacteria which has been removed by the antibiotics I am taking. I stopped antibiotics today. My doctor had no clue why this occurred and wasn’t interested in finding out so I’d like to know if this information could be helpful to anyone studying gluten sensitivity.
    • Scott Adams
      It sounds like your gastroenterologist is becoming increasingly confident that celiac disease is the likely diagnosis based on both your older and newer lab results. Her suggestion to call each Monday for possible cancellations is actually a great strategy—especially given how long the wait is until your August 29th appointment. It’s also a good sign that she’s advocating for you to be seen sooner, which shows she’s taking your case seriously. The fact that some labs might not have been drawn yet due to overlap with your functional health doctor’s upcoming testing adds a layer of confusion, but that’s unfortunately common when multiple providers are involved. Hopefully, the GI’s remaining labs will still get processed, or she can reorder them if needed. As for the colonoscopy prep, it’s totally understandable that you're dreading it—many people rank it among the least pleasant medical experiences. You’re definitely not alone in preferring the pill prep option over the liquid kind, especially if you don’t drink Gatorade and had a rough experience with Miralax in the past. Hopefully, your doctor will approve the pill form, especially since you’ve tolerated other options poorly before. Fortunately, the upper endoscopy doesn’t require any bowel prep—just fasting, usually starting the night before—so that part should be easier to handle. It’s great that you’re already trying to boost your gluten intake, but yes, tracking gluten content can be surprisingly tricky. You’re right that the general rule for wheat-based products is to multiply the protein content by about 0.75 to estimate the gluten content. That means foods like oyster crackers, while convenient, may not pack enough gluten to help reach the recommended daily goal of around 10 grams before biopsy. It’s helpful that you caught that early, and switching to more gluten-dense foods like regular wheat bread, pasta, or wheat cereals might make it easier to hit your target. It’s not easy eating more gluten when you’re trying to manage symptoms or just not used to it, but doing so can make a big difference in ensuring your biopsies are accurate. You’re on the right track—hopefully with a little luck, you’ll get a cancellation and be seen sooner.
×
×
  • Create New...