Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Aches...........again?


holdthegluten

Recommended Posts

holdthegluten Rising Star

I keep on getting these body aches (flu like) off and aroung my hips and lower body. It feels very similar to the flu, but i have no fever and im not exhausted. I get them like evey other week it seems. What would cause these aches to keep coming back (bacteria, viral?)I cant understand it. It is usually accompanied by some stomach discomfort.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie

How are your Vit. D levels? When my D is really low I get the worst leg pains, cramping.... :( also, has your doc checked you for other causes of leg pain (blood flow issues, arthritis, autoimmune disease...)

MDRB Explorer

Hi!

I usually get aches and pains if I have accidentally ingested some gluten. Last time it happened I found out that a product I use regularly (that used to be gluten free) had changed to wheat derived glucose. Manufacturers can change the ingredients at any time. I had just assumed that it was still gluten free and didn't check.

I think your immunity could be low because of some hidden gluten. try checking your toothpaste, other personal care products and any processed foods you eat that might contain gluten. Check the ingredients lists regularly. Also try upping you vitamins with a good gluten free multivitamin.

Good Luck! :)

jitters Apprentice

I'm very interested in hearing everyone's ideas on this topic because the same thing is happening to me. It almost seems to go in a cycle and starts in my wrists, up my arms, shoulders, and down the trunk of my body. Major chills and painful aches and major fatigue. I've been to the doctor and she sent me to a rheumatologist who of course suggested it is depression and said I need antidepressents. Supposedly my vitamins levels are within normal limits. Whatever the problem is I'm pretty much left on my own to figure it out because I'm tired of the "here she comes again" looks. They must think I'm just nuts!

For now I'm thinking that maybe coffee has something to do with it? Do you drink coffee? I know when I give it up it seems to let up. I agree vitamins may help as well, but it takes some time I think for them to really start working.

tom Contributor

Having been a victim of intermittent symptoms for years AFTER being gluten-free, I have to wonder whether both of you also have other food intolerances, which may turn out to be temporary.

A straightforward way to find out is to keep a food/symptom diary.

Sure makes it easy when faced w/ a "dammit I felt crappy in this same way ~2 1/2 wks ago, too!" situation, and being able to look up what foods may be in common in the days prior. (Some ppl find they have 2 or 3 day delays, tho most reactions are 1 day)

An effective food/symptom diary is made easier w/ simpler foods, as opposed to processed foods w/ 20+ ingred.

But regardless of that, it can be invaluable in figuring out what not to eat.

This scenario of additional intolerances seems very common on this forum.

Best of luck to you both :)

Janeti Apprentice

I completely agree with Tom. For me it seems when my body reacts to a food that I have become intolerant to, it effects the weakest of my joints. These are the joints that have deteriorated from years of being calcium and vit D deficient. I finally went to see a ND, and he has been helping me find out what these foods are, and he has put me on vitamins and probiotics. It has made such a big difference.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748

    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.