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Diagnosing Dh

buffettbride

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buffettbride Enthusiast
buffettbride
Posted

So, we inadvertently discovered Hubby's gluten intolerance when our whole house went gluten-free last May after our daughter's diagnosis.

We noticed his GI symptoms (which we didn't realize were symptoms at the time) plus the blistery rash on his fingers cleared up when he would go without gluten for weeks at a time (the non-Celiacs eat gluten when not at home).

We figured we'd go for the DH/Celiac diagnosis via the skin test to avoid endoscopy. Well, we've contacted an allergist/asthma center, a dermatologist, and a GI docotor in our area, and none of them do the skin test. How can this be?????

A medical diagnosis is pretty important to Hubby, but we'd like to do it without an endoscopy if possible. For having such an easy time getting my daughter diagnosed, it's been nothing short of hitting a brick wall with Hubby.

Any thoughts or suggestions?

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happygirl Collaborator
happygirl
Posted

My first thought would be to contact a local support group and ask for someone they can recommend ... either that their members see, or maybe is an advisory member to the group.

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Good luck!

Also: https://www.celiac.com/articles/277/1/Unite...tors/Page1.html

buffettbride Enthusiast
buffettbride
Posted
  • Author
My first thought would be to contact a local support group and ask for someone they can recommend ... either that their members see, or maybe is an advisory member to the group.

Open Original Shared Link

Good luck!

Also: https://www.celiac.com/articles/277/1/Unite...tors/Page1.html

The Denver chapter site is no longer running, but I do have a contact name so I'll try there. What a big pain!

happygirl Collaborator
happygirl
Posted

Try calling local GI and/or Derm units at the hospitals and ask them if they have members who can.

rpf1007 Rookie
rpf1007
Posted

I went to the dermatologist when I first got the rash and he did the biopsy in the office. It's weird that the one you talked to won't do it. Usually it is the dermatologists that do skin biopsies for all kinds of things...hopefully you will find one that will. Mine did two- one of a blister and one of the skin directly beside the blister. Good luck.

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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