Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Questions


GhostLady

Recommended Posts

GhostLady Newbie

I also posted these questions under my thread "Desperately seeking opinions and advice" in the pre diagnosis section but I thought I would also post it here for those that don't want to read my long and boring post over there.

I have not yet been diagnosed with celiac. I am still going through testing, therefore I am still eating gluten. For the last few days I have been keeping a food/symptom log to take to my Dr. on Tuesday. Most of my symptoms do seem to be related to gluten but now I am thinking that milk might also be a problem.

Every time I ingest even a little bit of milk, I get really nauseous. So far it seems to only happen with milk. I can eat butter/margarine and cheese without any problems. I haven't eaten any other dairy since I started the log so I'm not sure about anything else yet.

Is it possible that I only have a problem with milk and not all dairy???

Is it also possible that it could only be something in whole milk and not all milk?

I used to only drink 2% milk and didn't notice any problems with that. (of course I wasn't keeping a log then either) I haven't tried to switch back to 2 % or skim yet so I can't say for sure but I was just wondering if there is something in just whole milk that might be causing me problems.

I'm so new to all of this so I'm still learning about what ingredients are in what. Any help would be greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HAK1031 Enthusiast

It's possible that your sensitivity just hasn't escalated to the point where you can't tolerate processed dairy. I haven't had a glass of milk in 6 months, but if I have one yogurt it's usually not the end of the world. I don't do cheese though- never liked it much, and now it makes me sick. And I can usually have dairy in baked goods, or cheddar popcorn, things like that.

Almost all celiacs are lactose intolerant to a degree at first. It may go away overtime, but I would lay off all dairy for a few months to heal after dx.

irish daveyboy Community Regular
Every time I ingest even a little bit of milk, I get really nauseous. So far it seems to only happen with milk. I can eat butter/margarine and cheese without any problems. I haven't eaten any other dairy since I started the log so I'm not sure about anything else yet.

Is it possible that I only have a problem with milk and not all dairy???

Is it also possible that it could only be something in whole milk and not all milk?

I used to only drink 2% milk and didn't notice any problems with that. (of course I wasn't keeping a log then either) I haven't tried to switch back to 2 % or skim yet so I can't say for sure but I was just wondering if there is something in just whole milk that might be causing me problems.

I'm so new to all of this so I'm still learning about what ingredients are in what. Any help would be greatly appreciated.

.

Hi 'GhostLady',

If you are 'Lactose' intolerant, as a general rule the

HIGHER a fat content the LOWER the Lactose.

.

2% milk would have more lactose than Full Milk.

Butter, cheese etc would be higher in fat and have less lactose than Milk.

.

So using a LOW Fat or NO Fat milk or milk product (while it is generally healthier)

It is HIGHER in Lactose (up to 52% in some cases of Skim milk powder)

.

Open Original Shared Link

.

Hope this helps.

.

Best Regards,

David

GhostLady Newbie

Thank you both for your replies.

HAK1031,

You are probably right. I had already planned to give up dairy for a while until I heal and then try to reintroduce it later. I am starting the gluten-free, df, diet next Saturday as soon as my testing is complete.

David,

Thank you for the info. That makes sense. The weird thing is that I seem to do better with the milk that is lower in fat. I feel worse after consuming whole milk. I would think it should be the other way around. I haven't been keeping the food log very long though so it's hard to say at this point. It might not even be the milk causing my symptoms. It could just be a left over symptom from some gluten I'd had earlier. Either way, I am going to give up gluten and dairy soon. Hopefully I will be able to go back to dairy in a few months without any problems.

Thank you both again...

ThatlldoGyp Rookie

Hi, no disrespect, but Irish is confused. Cheese has very LITTLE lactose in it. Go here: Most lactose intolerant people (including myself) can tolerate it just fine!

Open Original Shared Link

"Most of the lactose is removed from the cheese with the whey during the manufacturing process. As a result, most ripened cheeses contain about 95 percent less lactose (.4 to 1 gram per serving) than whole milk (9-12 grams per serving), and less even than Lactaid milk (3 grams per serving), a brand of fluid milk that has most of the lactose specially removed."

try taking a lactase pill. If you have celiac it is probable that you do not have the tips of your villi where lactase is produced by your own body. This is a great forum, it is my fav and I read every day for about an hour... but you do need to check up on things if you find they are not jiving with your own experience! You are able to drink lower fat milk and not whole, so I am wondering if it is milkfat without the cultures of cheese and yogurt helping your gut out? How do you do with cream or ice cream? Usually if you can do skim ok, but whole or cream makes you ill, then you want to think possible IBS because of the fat bothering you.

Cultured Butter also has minimal lactose, but I have read conflicting info about regular N. American butter and lactose content... so to avoid the whole issues, I always buy cultured butter (made from buttermilk) go here:

Open Original Shared Link

but he is right that the less rich the milk, the higher the lactose the milk! go here this is a great link, it also discusses IBS and milk issues. :

Open Original Shared Link

I am sorry to keep editing, but here is a link that I thought would be the most helpful to you:

Open Original Shared Link

Open Original Shared Link

and here:

Open Original Shared Link

  • 2 weeks later...
libbymcm Newbie

I been diagnosed with Coeliac Disease (in late 2005) after years of discomfort, and only then as a result of an emergency which required me to be treated by a specialist other than my usual one ... who had not found the problem. However, I am beginning to wonder if I have a lactose problem too - it seems to be most evident after eating cream which seems to run counter to the opinions in this list which mention that the higher the fat content, the less lactose. The symptoms are noticeable and as a devotee of creme brulee, I have been trying to ignore the possible connection. I have been having panna cotta lately too - and have noticed a trend to feeling very uncomfortable after that too - so it is beginning to be a picture. However, yoghurt does not seem to be a problem, neither does aged cheese. I have noted that brie and other soft cheeses often leave me feeling less than well. I have totally eliminated gluten from my diet ( although there some possible breaches when others are cooking - although I try to be 100% free at all times). Does anyone have any ideas on this? I have been avoiding dealing with this - but there does now seem to be a patter, Regards Libby

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748

    Michelle C.
    Newest Member
    Michelle C.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.