Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doc Said I Should Find Gluten Free Sugar....?

MELINE

Recommended Posts

MELINE Enthusiast
MELINE
Posted

So my doc said I should find gluten-free sugar cause sugar has gluten.....???Is that true????????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Phyllis28 Apprentice
Phyllis28
Posted

My box of C&H Pure Cane sugar (granulated white) only has one ingredient - Sugar. Sugar is gluten free. Always read the ingredients though just in case something else has been added.

tom Contributor
tom
Posted

That's up there w/ the craziest things I'VE ever heard a Dr say!!

At least it's not harmful or dangerous, unlike some other statements Dr.s have made.

Certainly a new one tho. Never heard anyone talking about gluten-free sugar! :blink:

MaryJones2 Enthusiast
MaryJones2
Posted

Perhaps he is confusing gluten and corn and was saying to avoid powdered sugar since it is often mixed with cornstarch? That's my best guess for a silly doctor.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Sometimes people think glucose is gluten containing because they sound the same.

MELINE Enthusiast
MELINE
Posted
  • Author

actually I hope he is not such an idiot......from what you are saying I guess that if he actually said so he must be one...I'll ask him again cause that is what I heard but I was half sleeping after the biopsy and he was talking to my mom ....thank you all for the information

HAK1031 Enthusiast
HAK1031
Posted

Maybe it's different in Greece?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tabdegner Apprentice
tabdegner
Posted

I have seen Walmart powdered sugar with wheat starch instead of corn starch. That was about a year ago then I quit buying it because of that, so they may have changed it by now...

MELINE Enthusiast
MELINE
Posted
  • Author

ok there may be some sugar with gluten but no....regularly sugar is just sugar here.......it is very strange what he said and I am actually starting to think maybe I should not trust him.....he also said that after 4 months of gluten-free diet, 2 days were enough for positive biopsy. Maybe I'll start looking for some new doc...

Annaem Enthusiast
Annaem
Posted
ok there may be some sugar with gluten but no....regularly sugar is just sugar here.......it is very strange what he said and I am actually starting to think maybe I should not trust him.....he also said that after 4 months of gluten-free diet, 2 days were enough for positive biopsy. Maybe I'll start looking for some new doc...

He may be referring to powdered white sugar which has starch in it. Some brown sugars are also sweetened with gluten ingredients. But i hope he wasn't referring to glucose as gluten. That would be pretty dumb...

curlyfries Contributor
curlyfries
Posted

Thanks for the info on powdered sugar. I had no idea. I've only been gluten free for a couple months , and last week I cleaned out my pantry. [Threw out the flour, among other things]

Well, I found 3 partial bags of powdered sugar way in the back [Must have kept buying a new bag every time I needed it for a recipe, thinking I didn't have any.] So when I read this thread I went back and checked them. One had corn starch and two had wheat starch!

Problem solved!!! Now even more room in my pantry :D

Nancym Enthusiast
Nancym
Posted
So my doc said I should find gluten-free sugar cause sugar has gluten.....???Is that true????????

LOL! Oh my... you'd probably have to search far and wide to find gluten sugar. AFAIK the only "sugar" containing gluten would be derived from Wheat, barley, rye, etc. And they'd be very hard to find in the supermarket. Sugar in the US primarily comes from sugar beets or sugar cane. However, you do have to read labels carefully and avoid stuff with malt derived from wheat or barley, but they should state where the malt comes from, if it doesn't, don't buy it.

Doctors in general are usually pretty dumb when it comes to food. There's exceptions but most are as clueless as 3 year olds as to what food is and where it comes from and how it is made or processed.

MELINE Enthusiast
MELINE
Posted
  • Author

I'll check powdered sugar. I guess it is the sugar we put on top of some sweets?

MELINE Enthusiast
MELINE
Posted
  • Author
LOL! Oh my... you'd probably have to search far and wide to find gluten sugar. AFAIK the only "sugar" containing gluten would be derived from Wheat, barley, rye, etc. And they'd be very hard to find in the supermarket. Sugar in the US primarily comes from sugar beets or sugar cane. However, you do have to read labels carefully and avoid stuff with malt derived from wheat or barley, but they should state where the malt comes from, if it doesn't, don't buy it.

Doctors in general are usually pretty dumb when it comes to food. There's exceptions but most are as clueless as 3 year olds as to what food is and where it comes from and how it is made or processed.

hehe...funny post but unfortunately....so true.....(could somebody explain me what is the meaning of the word LOL????)

psawyer Proficient
psawyer
Posted
hehe...funny post but unfortunately....so true.....(could somebody explain me what is the meaning of the word LOL????)

"LOL" is short for "Laughing Out Loud."

MELINE Enthusiast
MELINE
Posted
  • Author
"LOL" is short for "Laughing Out Loud."

ok.....thanks................ :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold. Our bodies have difficulty absorbing and utilizing it. Only 30% is absorbed and less can be utilized. There's some question as to how well multivitamins...
    2. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      I am taking a multivitamin which is pretty bolstered with B’s. Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol. Started Creapure creatine monohydrate in June for athletic recovery and brain fog. I have been working with a Nutritionist along side my Dr. since February. My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t ...
    3. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies. It's worth talking to a dietician or nutritionist about. Did you get a Marsh score at your diagnosis? Was your tTg IgA level very high? These can indicate more intestinal damage and poorer absorption of nutrients. Are you eating...
    4. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Vitamin and mineral deficiencies can make TMJ worse. Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain. Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease. It's important to eat healthy nutrient dense diets like the Autoimmune...
    5. Celiac.com Sponsored Post
      0

      Recently launched Daura Non-Alcoholic Named One of the Best in the World by Forbes

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,314
    • Most Online (within 30 mins)
      7,748
    Lisa Gassick
    Newest Member
    Lisa Gassick
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Iam · Posted

      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.