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Different Symtoms


jmcbride4291

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jmcbride4291 Contributor

I have read that many of us get crampy and vomit. I also have researched and found a variety of symtoms. My children never vomit. However had hair loss, weight prob's, attention,low energy, moody, social, learning and comprehension. Ones immune system is extremely out of wack, and tonsils affected with running a fever each week since 12/07. Also vision, dicorlered bowel, and emotional problems. Does this sound familiar. Is this common to have without vomitting or distension prob's. They even get skin prob's. Just looking for more validaion as if this is wxactly what to expect.


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gfgypsyqueen Enthusiast

Unfortunately this disease has many symptoms. My child and I had very different symptoms. Even our reactions are different. I thnk in the end, do a gluten challenge to test the diet is the only way to really "see" what it does for your child.

Ridgewalker Contributor

Yeah, we (my family) all have various symptoms.

My oldest son, my mom, and myself all get diarrhea and stomach pains, but my youngest doesn't. So far, he doesn't get GI symptoms much at all- his are neuro symptoms.

My mother and I vomit, but my kids don't.

I'm the only one that gets bad heartburn as a symptom... unless you count my brother, who refuses to try a gluten-free diet. <_<

Pretty much the only symptom that we all share is that we've all had horrible problems with our teeth. At my oldest son's first dentist appt, he had TWELVE cavities. And I am a tooth brushing Nazi.

It also affected my kids' immune systems, and my own as well. My oldest son was the first to go gluten-free. In the last month or so before we put him on the diet, he ran an unexplained low-grade fever every single morning. By mid-day, it would fade away.

For the past few years, for all three of us, it's been one infection or virus after another, from fall to spring. This winter has been really good for my oldest son, though-- again he's been gluten-free the longest.

2kids4me Contributor

The range of symptoms is vast - our pediatric GI doc said the symptoms of celiac in children can be much different than adults. We witnessed this first hand.

Both my children are diagnosed celiac - blood work and biopsy positive.

Daughter - migraines, neckache, backache, stomach aches, fatigue, NO diarrhea or vomiting, but had bloated belly, overweight ( Not skinny like the books say a celiac should be!). Gluten free diet : no migraines, WAY more energy, lost the bloated belly, lost weight, lost the dark circles under her eyes.

Son - stomach aches, leg pain, wetting the bed, unexplained blood glucose variations. Stabalized blood glucose readings after gluten free, stopped wetting the bed, no more stomach aches.

As you can see one child had mostly neurologic symptoms and the other had vague symptoms. Interesting finding was that our son had tremendous intestinal damage as compared to his sister - even though his symptoms were "less severe". Also , that his bed wetting stopped after being gluten free about 6 weeks.

The fatigue in our daughter was significant - it affected her behavior (when you are tired = cranky), lots of tears, slamming doors..... she smiles most of the time now! ( I say most of the time cause she IS a teen!!)

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    • Scott Adams
      If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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