Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent


missnbagels

Recommended Posts

missnbagels Explorer

<_<

I just need to vent. I have yet to find the substitute for subways bread and i am really craving it. I hear all my friends say i had subway last night and it was so good and blah blah. meanwhile i listening and thinking you do not need to get sick over a sandwich. But its hard you know? I am the only one in my family who has Celiac and is on the diet. So i have to smell the reg. pizzas and brownies. i know they have to eat too, but i get so sick to my stomach just smelling them and then i see the pizzas and i want that.

sorry for venting

Any advice would be greatly appreciated because I don't know anyone with celiac


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gretchen Rookie
<_<

I just need to vent. I have yet to find the substitute for subways bread and i am really craving it. I hear all my friends say i had subway last night and it was so good and blah blah. meanwhile i listening and thinking you do not need to get sick over a sandwich. But its hard you know? I am the only one in my family who has Celiac and is on the diet. So i have to smell the reg. pizzas and brownies. i know they have to eat too, but i get so sick to my stomach just smelling them and then i see the pizzas and i want that.

sorry for venting

Any advice would be greatly appreciated because I don't know anyone with celiac

I am not sure I can offer much for advice but I would like to 'validate your frustration.' You have every right to vent. Maintaining a gluten free diet is not easy, especially when people around you are eating your favorite gluten filled foods.

I don't have celiac but my husband does. The subway sandwich is not worth it, when my husband gets sick its aweful.

We don't know anyone with Celiac Disease either. I am fairly new to this forum and I find the correspondence with others helps.

Take care,

Gretchen

Ridgewalker Contributor

I'm not a teen (sorry) but I can sooo relate! The office where I pay my phone bill every month is actually attached to a Subway, and the SMELL... Omg... it's torture.

I haven't found a bread recipe that is anywhere near as good as Subway... But pizza and brownies, I totally do! For brownies, I think the two best mixes are Gluten Free Pantry, and Pamela's-- in that order. For pizza, Gluten Free Pantry is ok, but I like my from-scratch better. Let me know if you want the recipe. Kinnikinick frozen pizza crusts are excellent, too-- and quick and easy!

I think the Gluten Free Pantry brownie mix is just as good as regular- and they have it at a lot of Wal-marts now.

I know, it is hard. Sometimes it's the silliest little things that get me... Like when my husband had a peanut butter and jelly sandwich on soft squishy regular bread the other day. I took the plate from him, and just SNIFFED his sandwich. :lol:

aaron&sam Rookie
<_<

I just need to vent. I have yet to find the substitute for subways bread and i am really craving it. I hear all my friends say i had subway last night and it was so good and blah blah. meanwhile i listening and thinking you do not need to get sick over a sandwich. But its hard you know? I am the only one in my family who has Celiac and is on the diet. So i have to smell the reg. pizzas and brownies. i know they have to eat too, but i get so sick to my stomach just smelling them and then i see the pizzas and i want that.

sorry for venting

Any advice would be greatly appreciated because I don't know anyone with celiac

I think the young adult people in the world who have a new diagnosis really have it tough! My teenagers have had to make big adjustments in their lives on top of being around peers that can eat normal food! I wish I could take it away from all of you! I know I spent hundreds of dollars searching for a bread that would make a good sandwich-did not find any and quickly gave up! I buy Kinninnick (not spelled right I am sure) and toast it for my children to have for breakfast!

My mother-in-law has helped a lot! She has worked to help me find food choices for my children! I will never forget the morning I gave them biscuits and gravy that were gluten free! I really cried that morning when sharing my story with the teachers I work with!

Hang it there! I know it can be tough in a world that revolves around living to eat instead of eating to live!

MDRB Explorer

Yep, most gluten free breads taste like a kitchen sponge.

I found that the gluten free breads that you get from the supermarkets are the worst. The best ones that I have found have been at little bakeries, so you could try calling a few of the bakeries in your area and seeing if they offer any.

Good luck

dbmamaz Explorer

I'm also not a teen, I'm mom to a teen, but I'm the only one in my family going through this. The other day I ran to Panerra to pick up some bread bowls to serve soup to my family in (I just eat mine without the bread bowl, but they love them). Well, Panneras was one of my FAVORITE places to eat before all this - I looked around at all the fantastic sandwhiches and grilled sandwhiches, the breads and bagels and cakes and brownies, my favorite of their soups served in a bread bowl, and I almost cried . . . all those things which once gave me so much joy and I'll never, ever be able to have again.

All you can do is focus on wanting to be healthy and accepting and loving your body as it is. its not easy, we all know that, and esp at your age . . . just find as many OTHER foods that you love and eat them when you miss those foods.

Erica94 Rookie

wow.... i think i might be the first actual TEEN hint hint to post here :rolleyes:

but! let's see... oh shoot... i was gonna tell you the brands tomorrow but i dropped my jello spoon so i'll go find out now :lol: :lol:

for bread, it's not great, it's not subway, and it doesn't look too appealing unless you toast it, but i like the sandwich bread by Foods by George that they have at Whole Foods

and for pizzas... wait... noooo gahh forgot the name... ummm... tell you tomorrow ;)

and now for my "poor me" story, since everyone else has had one:

ok well ravioli, garlic bread, and meat sauce has always been my favorite meal EVER!! (by the way, anyone found a good garlic bread? or breadsticks or something?)

but anyways my whole family was eating that meal in its entirety, which is kind of a rare thing, and then i came downstairs when they were getting ready to eat it and i swear i almost cried

then, i go to hole up in my big chair in the family room (it's connected to the kitchen, no wall or anything) and watch tv to distract myself, and then my mom tells me, no, i have to let my sister choose the show!!! urrrgh i was mad :angry: :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kevsmom Contributor

I've made cheese steak subs with either Whole Foods or Glutino pizza crusts. I warm the pizza crust in the microwave and pan fry a thin sliced steak, add Provalone cheese, lettuce and tomatoes. It's a little bit messy - but worth it :)

missy'smom Collaborator
ok well ravioli, garlic bread, and meat sauce has always been my favorite meal EVER!! (by the way, anyone found a good garlic bread? or breadsticks or something?)

Try Carrifaith's breadsick recipe from this thread.

Open Original Shared Link

If you cut the end of the baggie too much and squeeze the dough out too fast and let it rise quite a bit you end up with little loaves that can be used for sandwiches. I found that out by accident.

Lollipop Newbie

Subway is probably one of the things I miss the most! Its not the like sub bread, but pamela's bread mix is REALLY good, we've even added cinnamon, and then its like cinnamon bread (imagine that, add cinnamon to bread and you get cinnamon bread!). Anyways, I think its really hard to make gluten free buns and sub bread, i have yet to find a good bun.

feel free to pm me if you want

becca

Lollipop Newbie
wow.... i think i might be the first actual TEEN hint hint to post here :rolleyes:

but! let's see... oh shoot... i was gonna tell you the brands tomorrow but i dropped my jello spoon so i'll go find out now :lol: :lol:

for bread, it's not great, it's not subway, and it doesn't look too appealing unless you toast it, but i like the sandwich bread by Foods by George that they have at Whole Foods

and for pizzas... wait... noooo gahh forgot the name... ummm... tell you tomorrow ;)

and now for my "poor me" story, since everyone else has had one:

ok well ravioli, garlic bread, and meat sauce has always been my favorite meal EVER!! (by the way, anyone found a good garlic bread? or breadsticks or something?)

but anyways my whole family was eating that meal in its entirety, which is kind of a rare thing, and then i came downstairs when they were getting ready to eat it and i swear i almost cried

then, i go to hole up in my big chair in the family room (it's connected to the kitchen, no wall or anything) and watch tv to distract myself, and then my mom tells me, no, i have to let my sister choose the show!!! urrrgh i was mad :angry: :angry:

Chebe mixes have really good pizzas and bread mixes, but we make the bread into breadsticks, and we use pamela's bread mix to make garlic bread. you just have to put the slices of bread on a cookie sheet (use parchment paper or something of the sort if you dont have a gluten free cookie sheet) spread some olive oil and shredded garlic (that sounds weird but i don't know how to describe it) on it, then put it in the oven until its kind of toasted and crisp around the edges.

Also, I hate it when my family has my favorite dinner when I can't have it. Ugh!

becca

cazdaz Newbie

for the 1st post:

i know exactly how you feel! i miss pizza, pasta, cakes, cookies, all of it!

both my dad and i have celiac and he really misses the beer!

im at boarding school and my friends here and like more moms, they check snacks for me and what im eating! it's not as annoying as it sounds! the kitchen does a FAB job with special foods for me tho it is hard. does anyone know of some decent bread? cause the stuff that i've had is very dry to say the least!

also any good cakes, cookies etc that you guys know of?

any help would be great! thanks :P

sweetstronggoddessgirl1325 Newbie
I'm not a teen (sorry) but I can sooo relate! The office where I pay my phone bill every month is actually attached to a Subway, and the SMELL... Omg... it's torture.

I haven't found a bread recipe that is anywhere near as good as Subway... But pizza and brownies, I totally do! For brownies, I think the two best mixes are Gluten Free Pantry, and Pamela's-- in that order. For pizza, Gluten Free Pantry is ok, but I like my from-scratch better. Let me know if you want the recipe. Kinnikinick frozen pizza crusts are excellent, too-- and quick and easy!

I think the Gluten Free Pantry brownie mix is just as good as regular- and they have it at a lot of Wal-marts now.

I know, it is hard. Sometimes it's the silliest little things that get me... Like when my husband had a peanut butter and jelly sandwich on soft squishy regular bread the other day. I took the plate from him, and just SNIFFED his sandwich. :lol:

Well I can identify with the girl needing to vent...I have mood swings about how I feel about this disease. it's sooooooooooo hard sometimes....but then I realize I dont want to get sick like I used to. This disease brought me my neice, the most amazing, beautiful, strong little girl I have ever seen in my life. Without celiac disease, I wouldn't have her....so therefore I am grateful.Being her aunt is my favorite job in the whole wide world. it is hard....but i know that somwhow I am supposed to bring this disease into the public eye even more

I am a fighter, a survivor

I will always win with this disese

PEACE OUT

Kateeeerrrrrzzzzz

Lollipop Newbie

Amy's makes good bread, and bob's red mill makes really good cakes, i'm not sure about cookies.

The other day I had this HUGE craving for pizza rolls, so I'm surrounding myself with good food i can have instead. still, its so hard!

becca

  • 2 weeks later...
kera87 Newbie

I love Foods By George Gluten Free Pizzas, and Grainless Baker pizzas are probably the most realistic (just google it). As for bread, I found a GREAT bagel, the Glutino brand...you just have to toast it haha. My mom and I have been on the biggest search to find good food and its coming along. I love Amy's products too, great enchilladas and mac & cheese. This disease definitely sucks and we have every right to vent.

  • 4 weeks later...
Celiacgirl4GOD Newbie

I know it seems hard, but you can't cheat! Every miniscule amount of gluten in your body can do big damage...it's not worth it to cheat. Unlike diets to loose weight, Celiac does real damage. I know how tempting it is to see or hear others talking about their gluten and stuff, but just say no!

  • 1 month later...
Softballer7 Newbie

Ok anytime you wanna talk/vent email me at allisonnn04@aim.com...I am a teen (14) and I also have times when that exact thing happens and I would reallllyyy love to talk to you.soo email me pleassssssssseeeeee!I have no celiac friends and i am the only one in my family

amg2389 Newbie
for the 1st post:

i know exactly how you feel! i miss pizza, pasta, cakes, cookies, all of it!

both my dad and i have celiac and he really misses the beer!

im at boarding school and my friends here and like more moms, they check snacks for me and what im eating! it's not as annoying as it sounds! the kitchen does a FAB job with special foods for me tho it is hard. does anyone know of some decent bread? cause the stuff that i've had is very dry to say the least!

also any good cakes, cookies etc that you guys know of?

any help would be great! thanks :P

The best bread I've tried is made by Udi's. It tastes like a plain white bread, and it is nice because it's sold in the freezer section of my normal grocery store. Udi's also makes really good gluten-free pizza crusts and cookies :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,924
    • Most Online (within 30 mins)
      7,748

    Jimlock
    Newest Member
    Jimlock
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.