Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are The Chances My Baby Could Have Celiac

kali-mist

Recommended Posts

kali-mist Apprentice
kali-mist
Posted

I'm really curious to know what the chances are the my baby will have or develop Celiac. Does anyone know? I would also like to know how long do I have to wait before I can get my baby tested. I would like to keep him/her away from gluten for awhile just in case but then I would have to give them a steady diet of gluten to get them tested right?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Julie,

I think the risk of inherited Celiac is around 20%.

Accurate testing in children is highly unreliable. There are many threads here about breastfeeding and when to introduce gluten. Try a search.

And, congratulations.

JulesH Rookie
JulesH
Posted
Accurate testing in children is highly unreliable.

Can you tell me more about this, or where I can find information about this? I suspect my nephew has celiac, but the blood test was negative so my sister-in-law says he doesn't. (This is despite the fact that my brother, her husband, had a negative blood test but CLEARLY has celiac, and is gluten-free.)

MDRB Explorer
MDRB
Posted

I can understand your desire to keep your child gluten free.

Unfortunately, celiac disease can't be detected if there is no damage to the villi. You can keep them off gluten and never really be sure if they actuallly are celiac, or you can give them gluten and wait to see if they get sick. It sounds horrible I know.

The other option you have is to get genetic tests done. They would not show if your child definetly has celiac disease as approximately a third of the population has the correct genes but never actually develop celiac disease, but if your child doesn't have the specific genes (I think there are three that imply that a person could get celiac disease, if you only have one or two then celiac disease is out of the question), it would rule out celiac disease 100%.

Its a really tough decision. I guess if it was me, I would keep them gluten free until they were old enough to make an informed decision.

Good luck

  • 2 weeks later...
B'sgirl Explorer
B'sgirl
Posted

In the forum for parents of kids with Celiac they were talking about this. There is lots of research about when to introduce gluten. Most says no earlier than 4 months and no later than 7, unless you wait until they are a year old. Also, if you breastfeed for the first year their chances of developing the disease are much less. My plan is to wait until my baby is at least a year old. If the immune and digestive systems are not fully developed it can cause more sensitivity. I can have her tested after I put her on it, there is no rush, and since my son is already on a gluten-free diet it won't be difficult for me to keep her on one. I had too much trouble with him as a baby to want to do the same thing to my new one, so I am waiting to introduce it.

par18 Apprentice
par18
Posted
I can understand your desire to keep your child gluten free.

Unfortunately, celiac disease can't be detected if there is no damage to the villi. You can keep them off gluten and never really be sure if they actuallly are celiac, or you can give them gluten and wait to see if they get sick. It sounds horrible I know.

The other option you have is to get genetic tests done. They would not show if your child definetly has celiac disease as approximately a third of the population has the correct genes but never actually develop celiac disease, but if your child doesn't have the specific genes (I think there are three that imply that a person could get celiac disease, if you only have one or two then celiac disease is out of the question), it would rule out celiac disease 100%.

Its a really tough decision. I guess if it was me, I would keep them gluten free until they were old enough to make an informed decision.

Good luck

Not quite sure what you mean when you say "if you only have one or two of them". Basically there are two genes (DQ2 or DQ8) in which the majority of those with Celiac possess either one or perhaps both. I have only one (DQ2) and I was diagnosed via biopsy. According to the statement on my blood test "greater than 95% of all persons with Celiac have either or both of these genes. By not being 100% I assume this means one may develop this condition with neither. Someone please correct me if this is wrong.

Tom

  • 2 weeks later...
jhow32000 Rookie
jhow32000
Posted

I think PPs info is right---except Michelle RB. The tests for diagnosis are so unreliable at times and the symptoms of celiac disease can be so painful that I would never put my child through gluten trials when he could easily stay gluten-free. I can easily see when my child gets contaminated foods as he gets very gassy, diarrhea, and a belly ache with rash. I personally suspect celiac disease from both sides in my family and on both sides for my son. I have kept him gluten-free right along with me and he has never been sick in the 19 months of his life. It is much simpler than messing with gluten. However, I have more incentive to keep him grain free since I am of the group that believes unsprouted grains have anti-nutrient properties and should not be consumed regularly by anyone.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.