Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anything On Long Island

minibabe

Recommended Posts

minibabe Contributor
minibabe
Posted

I was just wondering if there are any conferences or anything of that sort on Long Island. I would love to attend things of this sort. If anyone has any information just let me know. thanks a bunch :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

hi minibabe--where are you at--i found a support group here in suffolk county--they meet on higbie st on the 1st tuesday of every month--between montauk hwy and sunrise hwy--they are a very nice group of people--very friendly--if you would like more info--just email me at my aol addy--otay----i just moved to the island 3 weeks ago tomorrow--i love it here---deb

  • 9 months later...
feefur Newbie
feefur
Posted
I was just wondering if there are any conferences or anything of that sort on Long Island.  I would love to attend things of this sort.  If anyone has any information just let me know.  thanks a bunch  :D

<{POST_SNAPBACK}>

DId you ever get an answer i live in nassau county and i am looking for the same thing.

thanks

feefur

(cathy)

emk Newbie
emk
Posted

Hey, I don't know about support groups there, but I do know that there is a gluten free restuarant in Greenwich Village. called Risotteria owned bya Joe Pace. So that might be helpful.

IrishGirl71 Rookie
IrishGirl71
Posted
Hey, I don't know about support groups there, but I do know that there is a gluten free restuarant in Greenwich Village. called Risotteria owned bya Joe Pace.  So that might  be helpful.

<{POST_SNAPBACK}>

I ate at Risotteria for the first time a few weeks ago. Fantastic food.

ALSO FOR LONG ISLANDERS:

gluten-free Italian Restaurant in Bellmore:

Cafe Baldo

located on Jerusalem Ave (Route 105)

About a mile, maybe mile and a half west of Wantagh Ave.

gluten-free Pizza

gluten-free Calzones!!!

gluten-free Pasta

Garlic Knots!!!

HUGE assortment of gluten-free desserts too!!

I went there for the first time the other day, got a gluten-free Calzone

I could cry from how good it was to eat Calzone again

and it was great too....

ALSO - NEARBY

On Wantagh Ave

Just north of 105 and south of the Southern State

tucked into a corner next to a diner (across from a big shopping center)

is a health food store

with the biggest selection of gluten-free ready-made stuff I have ever seen

Bagels, bread, pastas, frozen entrees, yummy desserts

Yeah...I might cry.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748
    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Russ H · Posted

      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.