Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling All Casein Free


Green12

Recommended Posts

Green12 Enthusiast

I was just curious how strict everyone is when it comes to products that state "may contain traces of dairy"??

I am making a cake for someone who is both gluten-free and casein free and I usually use Pamela's Chocolate Cake Mix, but it does have this statement on the package so I am a little hesitant to use it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

If it is for myself I wouldn't worry about it, but I feel it isn't fair to make the decision to disregard that warning on behalf of others. It might be best if you get a different brand of cake mix.

MaryJones2 Enthusiast

I personally wouldn't use something with that label. Traces of casein affect me just as much as traces of gluten so I am just as careful with dairy contamination.

MySuicidalTurtle Enthusiast

I never eat things that may contain traces of casein. I think your friend would appreciate you using another brand until you talk about how they feel. That way the trust they have in you isn't broken.

Redsd Newbie
I never eat things that may contain traces of casein. I think your friend would appreciate you using another brand until you talk about how they feel. That way the trust they have in you isn't broken.

Think about it this way, how might a "trace" of LSD affect someone? My doctor says minute doses are still doses.

confusedks Enthusiast

I have never bothered to worry about the traces of dairy or soy. I feel that dairy isn't like gluten--it doesn't contaminate a whole factory like something like flour would.

That is just me though. It is ultimately up to the person's level of comfort. (I also never had severe reactions to dairy, not at all like gluten.)

jerseyangel Proficient

Hi Julie,

I avoid "may contain traces of dairy", but will use "made in same facility". But that's just me--everyone reacts differently and avoids things for different reasons.

In this case, I would call my friend and ask--if it were the other way around, I would appreciate being asked :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I would not because even a trace can make me sick.

MaryJones2 Enthusiast
I have never bothered to worry about the traces of dairy or soy. I feel that dairy isn't like gluten--it doesn't contaminate a whole factory like something like flour would.

That is just me though. It is ultimately up to the person's level of comfort. (I also never had severe reactions to dairy, not at all like gluten.)

Dairy and soy contamination are just as bad and painful as a gluten reaction for me so it is really a personal choice. Dairy and soy can contaminate equipment much in the same way as gluten and can affect those who are highly sensative. There are several gluten-free products that I can not tolerate because they are made on the same lines as dairy or soy products. I am truly envious of those who aren't affected by CC. It would make my life much easier.

Joni63 Collaborator

Hi Julie,

I think I would either call the person and ask them, or just use a brand that is definately casein free depending on the situation.

I think being as careful as you possibly can is your best bet.

Green12 Enthusiast

Thanks everyone for your feedback :)

I wasn't sure what to do before I posted my question and then it became so clear after you all shared your perspectives and now it seems so obvious. I love when that happens :lol:

Even though it's suppose to be a suprise it's too much of a risk to gamble with someone else's health. I will be using another mix that I know if cf.

MaryJones2 Enthusiast

Namaste and Cause You're Special (made with cf margarine) are good CF brands.

Green12 Enthusiast
Namaste and Cause You're Special (made with cf margarine) are good CF brands.

Namaste is what I had in mind to use, thanks :)

tarnalberry Community Regular

definitely the sort of thing to ask on. I care to different degrees on casein than gluten, for instance, and would be more annoyed at someone making a insufficiently conservative decision for me. (when in doubt, though, and you can't ask, go with the lowest common denominator - or the most conservative option.)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,144
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.