Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does This Happen To Anyone Else?

jvalentine89

Recommended Posts

jvalentine89 Rookie
jvalentine89
Posted

I made non-gluten free brownies yesterday for a friend and ended up eating a few(yes, i know i will be paying for this). After this, i literally felt like i was in a coma. I've been so tired since then. Today i took a three-hour nap and felt completely unrefreshed afterwards. I couldn't even get myself to go to the gym because i feel so exhausted. Does anyone else feel robbed of all energy after they've been glutened?

p.s. when I am strictly following the gluten-free diet i really don't have much sleep problems/feelings of exhaustion.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

Definetly an effect from glutening yourself!!!

I felt like that ALL the time when I was eating gluten!

Ursa Major Collaborator
Ursa Major
Posted

Yep, definitely one of the most common celiac disease symptoms! I hope you will remember what you feel like when purposely glutening yourself, and won't do it again.

wowzer Community Regular
wowzer
Posted

I would suggest just baking gluten free brownies next time. Breathing in the gluten from the flour or brownie mix flying is like eating it. I did make my husband a pecan pie, but used a ready made crust and wore gloves to put it in the pan. That is as far as I will go with gluten baking. I will say that my husband is slowly coming around and does try some of the things that I bake now. He will eat my gluten free cheese biscuits, gravy, blueberry muffins, peach cobbler, apple crisp, rice chex krispie treats, crustless cheesecake. I do hope that you feel better soon. I did put myself into misery making a boxed no bake cheesecake, so don't beat yourself up too bad. Chalk it up to experience.

MDRB Explorer
MDRB
Posted

Yes Yes Yes

Definitely, fatigue is apparently one of the most common symptoms of celiac disease.

I had to go back onto gluten for a month to get the endoscopy and I barely got out of bed for those four weeks.

One of my biggest incentives to not eat gluten is that feeling I had and wanting to avoid it at all costs.

I hope you feel better soon :)

gfp Enthusiast
gfp
Posted
I would suggest just baking gluten free brownies next time. Breathing in the gluten from the flour or brownie mix flying is like eating it.

It is eating it! Everything we breath in over a certain size is filtered out before it gets to the lungs and directed to the stomach.

BIG. The big particles are between 2.5 and 10 micrometers (from about 25 to 100 times thinner than a human hair). These particles are called PM10 (we say "P M ten", which stands for Particulate Matter up to 10 micrometers in size). These particles cause less severe health effects.

SMALL. The small particles are smaller than 2.5 micrometers (100 times thinner than a human hair). These particles are called PM2.5 (we say "P M two point five", as in Particulate Matter up to 2.5 micrometers in size).

Open Original Shared Link

Well, not for us. PM10 means its redirected to the stomach ... (There is a name for the process i can dig up if you like)... essentially we have tiny hairlike things inour respitory tract and anything larger than very very tiny is moved by these into the back of the nasal passage ... we then get a need to swallow and its put into the stomach.

  • 2 weeks later...
Ashley Enthusiast
Ashley
Posted

Wish I could eat three non-gluten brownies. If I did, I'd be in the ER :blink:

Anyway, that is a major sign for me when I get glutened. I cannot sleep at all.

Take care---and make sure you don't gluten yourself anymore :( I know its hard but you're harming yourself for an emotional need. I always try to find something super good at the store and hide it for when I get a strong craving for gluten.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ThatlldoGyp Rookie
ThatlldoGyp
Posted

Yes, that symptom is what had them checking my thyroid for years. ( I have a rant that goes with that comment,but I'll stick to the subject for now, lol).

Seriously, you should not be tempting yourself like that, and now you have glutened your pans as well! What were you thinking?

Next time you want to make something for a friend, think fresh fruit salad with Grand Marnier, gluten-free chocolate fondue with gluten-free things to dunk in it (strawberries, bananas, etc) or something like that instead! You can still enjoy things, just don't sacrifice your health for it... it is really,really not worth it.

48lowesracer Newbie
48lowesracer
Posted

Any time I have gluten, I immediately feel sleepy as if I just ate a large Thanksgiving dinner! The more gluten I eat, the worse the feeling is. I used to wonder why I would catch myself falling asleep ALL the time, and since self-diagnosis, I know why.

purple Community Regular
purple
Posted

Go to kill.the.gluten for the best g f brownie recipe ever! They of course are not good for you but you deserve a treat. Follow the recipe exactly and ENJOY!! YUMMY!!!

Di-gfree Apprentice
Di-gfree
Posted

I just have to say I'm stunned that anyone with celiac would purposely eat gluten. It's not meant as a criticism because it's completely your business, but I can't help but be surprised. But I know it's tough - I can't seem to give up gluten-free cookies, eventhough I probably should.

  • 1 month later...
nikiann Newbie
nikiann
Posted
I made non-gluten free brownies yesterday for a friend and ended up eating a few(yes, i know i will be paying for this). After this, i literally felt like i was in a coma. I've been so tired since then. Today i took a three-hour nap and felt completely unrefreshed afterwards. I couldn't even get myself to go to the gym because i feel so exhausted. Does anyone else feel robbed of all energy after they've been glutened?

p.s. when I am strictly following the gluten-free diet i really don't have much sleep problems/feelings of exhaustion.

I am new to this and trying to find anwswers myself, but I currently still have gluten in my diet and lterally am exhausted all of the time. I will take a 2 hour nap and still be miserable afterwards.. I also have a hard time falling asleep at night, normally about an hour. But during the day i can pass out at anytime.. sometimes I have to struggle to keep my eyes open.

ShayFL Enthusiast
ShayFL
Posted

Ah...the post meal "coma". I hated those.

  • 4 weeks later...
geokozmo Rookie
geokozmo
Posted

Me too I get sleepy and depressed aftere ating gluten so I try to avoid it. But for decades I was medicated against manic depressive disorder. It is so good that this diet exists, otherwise I wd have to accept that I am very sick. This diet is not a sickness it is a way to recovery. Big difference. :rolleyes:

spunky Contributor
spunky
Posted

Next time try Trader Joe's gluten free brownie mix...

Easy to make and they are the best brownies we ever had, ever! Your guests won't even have to know they're gluten free... unless you tell 'em... then, whether they can eat gluten or not, I betcha they'll run out to Trader Joe's and buy a package for themselves.

ericajones80 Newbie
ericajones80
Posted
Next time try Trader Joe's gluten free brownie mix...

Easy to make and they are the best brownies we ever had, ever! Your guests won't even have to know they're gluten free... unless you tell 'em... then, whether they can eat gluten or not, I betcha they'll run out to Trader Joe's and buy a package for themselves.

I agree, they're delicious!

  • 2 weeks later...
celiacsista Newbie
celiacsista
Posted

Oh my! Eating gluten on purpose is crazy! I mean that nicely. It is very hard to give up the things you used to love. I just hate the way I feel after an accidental glutening. A very good gluten-free brownie mix is "Pamela's" I have served it to gluten friends and they didn't notice. That is always the true test.

Hope you feel better soon. Remember how awful you feel, that is how I got over wanting gluten treats.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.