Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What On Earth...

Lux

By Lux
in Coping with Celiac Disease

Recommended Posts

Lux Explorer
Lux
Posted

OK, so here's the thing: I have been gluten, dairy, soy and wheat free since Feb this year, and my symptoms have been improving remarkably. I was diagnosed, only a week ago, with IBS (as well as celiac disease). Just over the last week, I have started to develop this strange new symptom (which I have experienced only one other time on my life for an ongoing basis of a couple of weeks), which is just this constant experience of air trapped in my oesophegus - and the associated need to burp.

What do you suppose could be the cause of this? I am immigrating to the UK in just over a week, and have moved into my mother's house until my date of departure. The problem seems to have begun since I moved in with my Ma. Is this a sign of being glutened? Can I possibly attribute it to stress, or to the IBS? And is there anything I can do to treat this? It's nowhere near as awful as my previous symptoms were, but it just causes so much discomfort and I''m aware of this weird sensation all the time...

Any help would be wonderful!

Thanks!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Maybe it's acid reflux. Sometimes that presents as an esophageal spasm. Try taking an antacid to see if that makes it go away.

Ursa Major Collaborator
Ursa Major
Posted

It could well be caused by cc (and being glutened CAN cause reflux, which this could be).

You could also be intolerant to other foods, like nightshade vegetables.

But since you have had this problem only since you moved in with your mother, my guess is that you are being glutened in your mother's house.

And by the way, IBS is bunch of symptoms, not a disease in itself. Something is causing your bowel to be irritated, and it is likely another intolerance that you haven't figured out yet.

curlyfries Contributor
curlyfries
Posted

I had acid reflux before going gluten free and then it went away, once on the diet. But recently it came back. One of my symptoms with reflux is that my throat will gurgle. Sort of like a burp, but burps come from much further down. This starts from the upper part of my throat. I eliminated sugar and it is getting better. (I have already eliminated dairy) So I agree with jestgar and ursa major.

Lisa

okgrace Apprentice
okgrace
Posted

Last spring I was working at this awful school and I was so so stressed out. It felt like something was stuck in my throat for a couple of days and then my friend gave me prilosec or one of those and it went away. :) Never to return. Sound's like GERD to me.

kayavara Rookie
kayavara
Posted

I was just about to post a question regarding burping.I have been burping alot for the last 5 months...without really knowing why.I will burp all day long.I feel like there is always some air that I could burp at all times.I don't get the acid backup or reflux with the burping...just the air.I am following the diet to the letter with only fresh fruits veg. etc.to confirm celiac disease or wheat intolorance in August when I am to be retested.Still confused on that issued as both scope and blood tests were negative.Doc still thinks Celiac as of now.

Kay

Ursa Major Collaborator
Ursa Major
Posted
I was just about to post a question regarding burping.I have been burping alot for the last 5 months...without really knowing why.I will burp all day long.I feel like there is always some air that I could burp at all times.I don't get the acid backup or reflux with the burping...just the air.I am following the diet to the letter with only fresh fruits veg. etc.to confirm celiac disease or wheat intolorance in August when I am to be retested.Still confused on that issued as both scope and blood tests were negative.Doc still thinks Celiac as of now.

Kay

Have you eliminated dairy and soy? Those could be causing the acid reflux and burping.

Retesting you in August after being gluten-free will only result in more negative test results. It seems that your doctor is clueless about celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lux Explorer
Lux
Posted
  • Author

Thankyou so much all for your replies!

I certainly considered GERD, but don't have any of the other symptoms (heartburn, chest pains, etc) which point to it...it's just the fact that it has been going on for over a week now that I find it so strange. I will certainly try some antacids, though, and see if that works! (are they gluten free??)

curlyfries Contributor
curlyfries
Posted

Before I took out sugar I stopped eating the tangerines I was having every day. I think that was a big contributor. I would get a burning in my stomach and chest and I had a sore throat ( and that lump-in-the-throat feeling). I try to stay away from Prilosec now because I was on it for such a long time. And I have been able to control it with my diet.

Lisa

kayavara Rookie
kayavara
Posted
Have you eliminated dairy and soy? Those could be causing the acid reflux and burping.

Retesting you in August after being gluten-free will only result in more negative test results. It seems that your doctor is clueless about celiac disease.

I haven't eliminated dairy and soy...but I should consider that as well.I suppose I put it wrong about being retested to confirm celiac disease in August.The doc says improvement with the diet will be his confirmation and of course if your gluten/wheat free...your tests should come back negative.I hope he's truly not clueless....I think I am at this point,though.I have had such highs and lows the past few days.I think I'm on to something at times and other times I stay confused.

Kay

JNBunnie1 Community Regular
JNBunnie1
Posted
I haven't eliminated dairy and soy...but I should consider that as well.I suppose I put it wrong about being retested to confirm celiac disease in August.The doc says improvement with the diet will be his confirmation and of course if your gluten/wheat free...your tests should come back negative.I hope he's truly not clueless....I think I am at this point,though.I have had such highs and lows the past few days.I think I'm on to something at times and other times I stay confused.

Kay

Your doctor is right, if you show improvement, that's pretty good confirmation. Otherwise, you've gotten some really good advice already!

Ursa Major Collaborator
Ursa Major
Posted

Okay, I take that back. Too many doctors haven't got a clue what they are doing, and I assumed he was going to test you for celiac disease again, and then tell you that you don't have it if everything is negative.

Yellow Rose Explorer
Yellow Rose
Posted

When I first started elminating gluten from my life after a couple of months I was getting a little quesy, some stomach pains, and then I would start burping. It was driving me nuts. I found that I was actually hungry and would go eat a little bit of something and the burping and nausa would go away. I started eating smaller amounts of food more often like 1/2 an apple, or a hand full of nuts or raisins every couple of hours and it all went away. You are probably healing up and your body is realizing it can now get nutrients out of the food and wants more fuel. Give it a try.

Yellow Rose

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,853
    • Most Online (within 30 mins)
      7,748
    Whitebird
    Newest Member
    Whitebird
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • HilaryM
      New onset constant gas

      By HilaryM · Posted

      Thank you Scott - I can’t think of much that’s changed diet wise but I’ll definitely try to see if any of this works and probiotics are a great idea thank you!
    • cristiana
      4 Years and very little progress

      By cristiana · Posted

      Hello there @maylynn  I'm a slow healer from the UK.  I sympathise.  Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy.   For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none).  But I would say even very little iron from an approved source made my stomach sore, I think it can be quite irritating. Perhaps that is an issue for you? Oats (the gluten-free pure ones) were an issue for many years (now fine).   Even though my endoscopy findings did not reflect any problems with healing, or any other issues, I self-diagnosed myself with gastritis as it seemed the feeling of nausea and in my case burning in the stomach pointed to it.  I went onto a gastritis/reflux diet and that really helped.   Have a google - there are tonnes online.  That meant avoiding spicy, greasy food, onions, tomatoes, coffee and alcohol.  (Actually, I don't drink, but I did toast someone during that time at a baptism and it set my stomach on fire.)   Instead of drinking strong coffee, I drank water, camomile tea, warm ginger water... so soothing.  I would not go to bed with a full stomach when things were bad, I would let my stomach rest from say 8pm to 8am, which really helped.   My husband and I then decided to buy a new oven and to buy a new dishwasher - we did need new ones anyway.  The new oven had two compartments, gluten goes in one, gluten free in the other.  The new dishwasher was a Miele which does a full rinse with clean water before washing the dishes.  But before I could afford a new dishwasher I would hand wash the dishes and make sure they were really rinsed well, no residue  (unlike our old dishwasher that was really not rinsing well at all). I stopped eating out for quite a few years - I think this is a biggy - although I would have coffee and soft drinks out. Eventually, my levels normalised.  What of the above was the 'silver bullet'?  I am not sure, but finally I did feel a lot better.  Occasionally I will take an over the counter PPI (omeprazole) or a small dose of Gaviscon, but most of the time I don't need them now. I'm not expecting anyone to go to all these lengths, but it could be that one or two of the tips I give you might work.  Don't give up hope! Cristiana
    • RMJ
      High IGA antigliadin, everything else normal, what does this mean?

      By RMJ · Posted

      Yes, it would make sense to go mostly gluten free, since it gives your troubles.
    • SMK7
      High IGA antigliadin, everything else normal, what does this mean?

      By SMK7 · Posted

      Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free?  
    • RMJ
      High IGA antigliadin, everything else normal, what does this mean?

      By RMJ · Posted

      Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
×
×
  • Create New...