Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Hair Question/adrenal Fatigue


Nan2N

Recommended Posts

Nan2N Explorer

Hi All

Everyone on here is so informative, I thought I'd ask another question. My doctors tell me I don't have malabsorption because of my bloodwork. And I don't have any other autoimmune stuff going on. So I was just wondering if anyone knows of any other reason for the hair loss with celiac. A lot has been going on with me being sick so I was wondering if the only thing left is stress. Or maybe there's some other part of my body that may be causing this. I'm pretty sure I'm suffering from adrenal fatigue now too but don't know what to do about that either. My endo says my cortisol is fine. I just feel awful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

How would your doctors know if you don't have malabsorption? With some of those numbers (like calcium) your body will just get it wherever it can, like taking it out of the bones, so it looks fine in the blood, but really isn't. And also, their 'normal' ranges are crap for the most part.

They claimed that having a ferritin count of 20 was fine, when I was really anemic (it had gone up from 4 at that time, which was an improvement). But in reality, anything under 40 is too low, and 100 to 120 is optimal.

I saw their definitions on ferritin. It says, under 20 definitely anemic, 20 to 40 probably anemic, 40 to 100 possibly anemic, and over 100 definitely not anemic.

Hair loss seems fairly common with celiac disease. As is adrenal fatigue. Do you know what your cortisol number is? I was told that mine was fine, too, because it was still in the 'normal' range. If you test in the lower part of the normal range, they still tell you that you are just fine.

But the so-called normal range is just a pretty arbitrary number for low and high normal. What doctors should really look for is the 'optimal' range. These days doctors only look at numbers, and couldn't care less if you feel dreadful. They don't listen to you, they don't want to know your symptoms. If a number says you are fine, then it must just be in your head. It is terribly frustrating.

And of course, since no two people are exactly alike, what is truly normal for one person who is feeling great, can be a problem for somebody else. To expect everybody to have the same numbers is nonsense and creates only suffering for the people who don't fit their norm.

I advise you to get a copy of ALL your bloodwork, and post the numbers here. Then we can tell you if you have problems. And give you more specific advice.

Nan2N Explorer

Thanks for the info. I will be getting a copy of the results in the mail. He did say my cortisol was 11 in a 5-25 range. I had the blood draw in the morning so he said that was good. I want to do the spit test but can't afford it right now. What could I do in the meantime to boost the levels? I want to go back and see my integrative medicine doctor but it's out of pocket and I'm too short on cash for now. Is there anything I can do on my own? 3 doctors so far have told me I don't have malabsorption. I think he said my B12 was around 600 but I can't remember exactly. I don't know what the range for that is though. I will post them as soon as I get them.

Thanks

Lizz7711 Apprentice

Hypothyroid and also low iron/ferritin, can cause hair loss. To check thyroid, ask for TSH, free T4, and freeT3 to be tested, and then have it interpreted by a holistic MD preferably. Anything over 2.0 TSH WITH hypothyroid symptoms can be hypothyroid and can be treated, prefereably with Armour which is dessicated pig thyroid and will give balanced T3 and T4, while synthetic thyroid meds only give T4.

Liz

Thanks for the info. I will be getting a copy of the results in the mail. He did say my cortisol was 11 in a 5-25 range. I had the blood draw in the morning so he said that was good. I want to do the spit test but can't afford it right now. What could I do in the meantime to boost the levels? I want to go back and see my integrative medicine doctor but it's out of pocket and I'm too short on cash for now. Is there anything I can do on my own? 3 doctors so far have told me I don't have malabsorption. I think he said my B12 was around 600 but I can't remember exactly. I don't know what the range for that is though. I will post them as soon as I get them.

Thanks

mommida Enthusiast

I have been using Biotin vitamin supplement (part of the vitamin B complex) and it has been helping with hair and finger nail growth.

Since auto-immune thyroid diseases go hand in hand with Celiac, you may need additional tests for you thyroid. Thyroid function/uptake and an ultrasound of the thyroid along with the blood tests mentioned above. The test results need to be considered together to determine the diagnoses.

TardyTurtle Newbie

Anything over 2.0 TSH WITH hypothyroid symptoms can be hypothyroid and can be treated, prefereably with Armour which is dessicated pig thyroid and will give balanced T3 and T4, while synthetic thyroid meds only give T4.

Liz

Nan2N Explorer

Thanks everyone!

I've had my thyroid tested for auto immune, etc. and everything came back normal. I'm still waiting on vitamin results. So far everything has come within normal range. Hope I can trust the results.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,964
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.