Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Will Food Taste Good Again?


cdford

Recommended Posts

cdford Contributor

When will food smell and taste good again? I accidentally got into some gluten in August and still have no desire to eat. I can handle homemade hot chocolate or chocolate milk, but nothing else seems good. My system is back working again, but I just don't want any food. What happened to those good old days when I craved broccoli or greens???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

It takes awhile...I didn't like food for the first few months. First, I hadn't found many good gluten-free foods to begin with. Second, I had a sort of aversion to food (not anorexia or anything--just that i wasn't hungry) because I knew that when I ate and my stomach didn't digest, I'd eventually get stomach pains, vomiting, etc.

I'd been this way for a long time. I still feel rather I-don't-care-ish about what food I eat. Maybe it's due to symptoms that come when I eat a lot...I think a lot of it is that with all the temporary restrictions I'm enforcing: no acid (tomato sauce, ketchup, oranges, grapefruit, etc.), not a lot of fat (since the doc. said it's hard to diget), which is tough since I want to eat fat and i should gain weight anyway....etc.

My situation probably isn't the same as yours because I want certain things. I have constant and nearly uncontrollable cravings for sweets, in particular chocolate and also, but less intensely, for softdrinks. I think it's easy to get dejected, though, when there's so much you want to eat, but can't (even if only temporarily). I think after awhile it's to the point where you don't care really what you eat at all. I went many months eating kinda on autopilot....I also noticed that I wasn't very hungry ever--appetite increasing lately. Don't know if this is any help--I just saw something in common between your story and me a couple months ago.

cdford Contributor

I have always eaten pretty healthy, so craving chocolate milk and fried potatoes is a new one for me. Those two things are the only things that look good or smell right. At least I am not gaining back any weight!

Guest PastorDave

I am really curious where this notion that gluten free tastes bad? I can understand when you feel sick and don't want to eat, but I have heard people say that gluten-free is a bland diet. I am careful what spices I use, I have the advantage of being near an Amish bulk food store where they grow the spices so I know they are gluten-free, but I use the spices to make a normally "bland" meal (such as rice and pork chops) terrific! Experiment with what you liked before as well. I loved donughts, and my wife has made some gluten-free ones for me. What a treat to have them, even though it won't be every day (way too much work) I enjoy the treat. It makes me appreciate it more.

I don't know if this helps, but I do know that living gluten-free is 90% attitude. If you don't let it get you down, even when you have a really bad reaction, then you can get back on your feet faster. :P

MySuicidalTurtle Enthusiast

I started to find the gluten-free food good after about a month or 2. . .when I did swimming we used to form good swimming habits by doing them everyday and after like 21 days of doing it it would be natural. . .I applied the same thing to the food. . .eating the new stuff (honeymustard, bread, sauce, and such) that I knew I'd be eating most of regularly and soon enough I started to like it and crave it rather than the old gluten food.

I didn't want food at first either but you just have to do it and eat it. . .then it all comes together. . .

kactuskandee Apprentice

cdford,

I'm going to take a wild guess here that your body may be craving certain nutrients you're not getting...like more calcium and Vit D (in the milk) and the magnesium in the chocolate, or even the gut-tolerable form of Vit C in potatoes. Then too the added amino acids in the milk you may need especially if you're under any stress. Unfortunately chocolate can create migraines in Fibro folks..Maybe you can try beefing up your vitamin/mineral intakes and see what happens. You may just find yourself wanting the greens and broccoli again.

Just my 2 cents worth....Oh and BTW, if you check any thyroid boards you're not suppose to eat the broccoli anyway....infact not any cruciferous veggies unless over cooked.

Kandee

celiac3270 Collaborator

That's definitely true. I got a chart from Jessica's Yahoo Support Group that says which nutrients you're lacking if you have certain cravings...really helpful...I think I posted it up here awhile ago, but I don't remember where--


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

I had not thought about the vitamin issue with the odd cravings. That may be why the orange juice jug keeps getting empty as well. I'll start back onto my injections of b vitamins and magnesium. Man, those mag sulfate shots are no fun.

It is not that I find the gluten-free foods untasty. I have been an excellent cook for much of my life and have transitioned to the gluten-free diet by adjusting spice usage, etc. My family enjoys the foods I cook (I am not one to cook multiple meals...it is tough enough to finish one from a wheelchair or walker). I just don't want anything. Even when I think I am hungry I look at the pantry or in the fridge and nothing strikes my interest. Most of us have experienced that but it is usually when we really don't need to eat anyway.

I must admit that I miss those days of begging my best friend next door for that last bag of broccoli when I had gone through all of mine. It used to be the family joke when I would be steaming veggies at 2 a.m. At least I was a good role model for dietary habits!

Anybody have any suggestions for a reasonably priced vitamin regimen? I used Shaklee for years but they are not gluten-free and most contain soy. My budget is really tight on a disability income.

jknnej Collaborator

I don't know if this is the type of vitamins you're looking for, but TwinLab is sold at Safeway and they have a B complex and a multi daily vitamin. They're about $15 for 60 day supply.

cdford Contributor

Thanks for the info. I am on B complex, B-12, folic acid, and magnesium sulfate in injection form. While I hate having to give myself shots, they really work. I understand from someone in my church that caltrate 600 is gluten-free, but I have not tried them. I will check on the brand you suggested for a multi-vitamin. I think Perrigo labs' vitamins are gluten-free also but I have not verified with them. I know they have a gluten-free lab for their otc meds (sold in Kroger, Target, and Walmart). We look for the little rounded rectangle with a comma thing hanging off the right side that is their logo since we know there cannot be gluten in them.

tom Contributor

I was gluten-free 10 mos b4 going casein-free also. It was only then that i began to enjoy eating again. Previously, no matter how good the food was - even a fav food - eating was just a chore and 2 bites in i was ready to be done.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,909
    • Most Online (within 30 mins)
      7,748

    Hmart
    Newest Member
    Hmart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.