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More Questions, Feeling Kinda Lost...


mcs1984

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mcs1984 Apprentice

Ok so this is what


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happygirl Collaborator

Can gluten cause constipation instead of loose stools?

Yes. Open Original Shared Link

"The vast majority of individuals with celiac disease have little in the way of gastrointestinal symptoms or have symptoms that may receive a diagnosis of irritable bowel syndrome. While the classical symptoms include diarrhea, weight loss and edema, other patients may present with constipation, anemia, bone pain or bone loss, chronic fatigue, skin problems, abnormal liver chemistries, dental enamel defects and neurological symptoms such as peripheral neuropathy, ataxia or seizures. Some patients with celiac disease are truly asymptomatic or have symptoms related to an associated autoimmune problem."

Also: Open Original Shared Link

Until we have the scoop do you know if I can just keep him low gluten?

(the reason for this question is because we noticed that if he is low gluten or no gluten his behavior is a lot better, but when he has lot of gluten in a day we are having meltdowns left and right and some nasty fits.)

He needs to be eating a normal gluten containing diet (not low gluten) for the tests to see the damage. Otherwise, damage may heal and a false negative may be given.

"It is important to continue eating a normal, gluten-containing diet before being tested for celiac."

Open Original Shared Link

What is the for sure items we need to look for on packages when we are buying food?

Safe and unsafe lists: https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Good companies/labels Open Original Shared Link

If he does come back negative and with us still going gluten free, should I still need to worry about cross contamination?

If you goal is to be 100% gluten free, then yes.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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