Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Celiacs Have A Weaker Immune System?


ptkds

Recommended Posts

ptkds Community Regular

I was wondering if Celiacs have a weakened immune system.

The reason I ask is because myself and my dd's seem to constantly get sick. And now my dd possible has chicken pox, even though she has had the vaccine. She constantly has a runny nose, either from allergies or a cold of some sort. I always seem to get the stuff going around, and it always seems to be worse than what my dh gets or my other dd's.

Just something I have been wondering about lately!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast
I was wondering if Celiacs have a weakened immune system.

The reason I ask is because myself and my dd's seem to constantly get sick. And now my dd possible has chicken pox, even though she has had the vaccine. She constantly has a runny nose, either from allergies or a cold of some sort. I always seem to get the stuff going around, and it always seems to be worse than what my dh gets or my other dd's.

Just something I have been wondering about lately!

hello

check this:

"It is important to remember that the immune system of a person with celiac disease is weak. The auto-immune system functions at a lower-than-normal level. Infections may not be handled as well as in other people. Stamina and resilience may not be at the level they once were. Most vitamins, food supplements and over-the-counter medications are based on and measured for persons at full-functioning, full-absorbing levels. A person with celiac disease may need less or perhaps more of a particular vitamin, mineral or medication. Again, working with a monitoring physician will help determine what and how much is the appropriate allowance of a particular medical or supplemental product."

i found it here: Open Original Shared Link

Krystens mummy Enthusiast
I was wondering if Celiacs have a weakened immune system.

The reason I ask is because myself and my dd's seem to constantly get sick. And now my dd possible has chicken pox, even though she has had the vaccine. She constantly has a runny nose, either from allergies or a cold of some sort. I always seem to get the stuff going around, and it always seems to be worse than what my dh gets or my other dd's.

Just something I have been wondering about lately!

something to think about. My dd also looked like she had chicken pox at nine months. Took her to the doc cos she wasnt sleeping. Doc thought it was chicken pox. Turns out she went gluten free and it vanished. yours may have chicken pox but it's something to keep in mind.

YoloGx Rookie

I agree we usually have a weakened immune systems, mainly because of the ravages of having this for so long in an inhospitable environment plus all those courses of antibiotics etc. etc.!!

However its my understanding that once one has really healed for long enough one's immune system gets stronger than the average person. I know for myself that at least in the past I was always more resistant to parasites and bacterial infections, which they say is common for our type and that my grandmother eventually never got ill despite being a sicky for most of her younger life.

Also, by avoiding all glutens we tend then to avoid cancer and various other degenerative diseases. We also tend to live longer and have more flexible bodies.

While we are suffering being still CC'd etc. and still have unhealed villi however, we are sitting canaries. Its important thus to take plenty of enzymes like pancreatin and pro-biotics to help counteract that. Plus fibronylitic enzymes (bromelain/papain and nattokinase or serrapeptidase or serrapeptase) to heal the villi plus marshmallow root in case the intestines get inflamed.

I also take dandelion root to help out my overtaxed liver from all the continued leaky gut syndrome "allergic" symptoms and skullcap plus co-enzyme B vitamins to help support and rebuild my weakened nervous system and cod liver oil for the A and D plus Omega 3'sto help with mineral absorption etc. plus kelp to help counteract a slight tendency to low thyroid (kelp is not good if you get DH however).

By the way, taking the co-enzyme B's have gone a long way towards making me less likely to get colds and congestion in general. I think in the old days people ate more fresh fermented foods, which would do pretty much the same thing. Unfortunately for me however I am allergic now to most fermented anything except plain nonfat yogurt. I hope in time this will change as I heal more and more.

Bea

ravenwoodglass Mentor
However its my understanding that once one has really healed for long enough one's immune system gets stronger than the average person. I know for myself that at least in the past I was always more resistant to parasites and bacterial infections, which they say is common for our type and that my grandmother eventually never got ill despite being a sicky for most of her younger life.

Bea

This has been the case for my family. I can't remember the last time I got even a cold and the same applies for other family members. Before diagnosis we would seem to always have a cold or bronchitits or some sort of virus of some kind.

The reason for the autoimmune diseases is because our immune systems are in hyperdrive before diagnosis. I don't think it is weak it just has so much work to fight the gluten that it can't do much else. This was my doctors explination for all the allergies and poor virus resistance I had prediagnosis. I tend to agree with him.

AliB Enthusiast

As a child I missed a lot of school as I always had colds (and was always given the dreaded AB's!) - I hadn't thought about that until now but this has made me realise that was probably a Celiac indicator even back then. It is something that has plagued me for years - I would catch everything going - I had been thinking that it started when I was 15 as that is when the fatigue kicked in but the colds clue is a much earlier indicator.

Two weeks after going gluten-free I caught a rotten virus which knocked me right back down, but I have to say that since then (3 months) I haven't gone down with anything which is fantastic. I will be chuffed to bits if it keeps on like this.........

darlindeb25 Collaborator
"It is important to remember that the immune system of a person with celiac disease is weak. The auto-immune system functions at a lower-than-normal level. Infections may not be handled as well as in other people. Stamina and resilience may not be at the level they once were. Most vitamins, food supplements and over-the-counter medications are based on and measured for persons at full-functioning, full-absorbing levels. A person with celiac disease may need less or perhaps more of a particular vitamin, mineral or medication. Again, working with a monitoring physician will help determine what and how much is the appropriate allowance of a particular medical or supplemental product."

I too, find this to only be true of the celiac who has not healed yet. Once you have been gluten free for some time, your immune system gets better than average. It seems like a celiac's immune system spends more time fighting itself, then it does worrying about outside influences. I rarely ever pick up viruses, rarely ever catch colds, yet my body will fight battles with itself--such as all of it's intolerance's! If I do get a bug, it does seem to take longer for me to get better, yet it is very rare for me to catch anything. Last summer, I had major surgery, about 2 months later, I did pick up a bug, and ran a fever of 102, which put me in bed for a day--very unusual for me, I drug myself to the doctor and was put on an antibiotic. I do think the surgery lowered my defenses though. Otherwise, I think we develop a strong immuse system for outside influences, once we are gluten free for good.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
I too, find this to only be true of the celiac who has not healed yet. Once you have been gluten free for some time, your immune system gets better than average. It seems like a celiac's immune system spends more time fighting itself, then it does worrying about outside influences. I rarely ever pick up viruses, rarely ever catch colds, yet my body will fight battles with itself--such as all of it's intolerance's! If I do get a bug, it does seem to take longer for me to get better, yet it is very rare for me to catch anything. Last summer, I had major surgery, about 2 months later, I did pick up a bug, and ran a fever of 102, which put me in bed for a day--very unusual for me, I drug myself to the doctor and was put on an antibiotic. I do think the surgery lowered my defenses though. Otherwise, I think we develop a strong immuse system for outside influences, once we are gluten free for good.

I've found that I do still get sick, but it's nothing like it used to be. Now, a bad cold means a headache and a stuffy nose. I take Advil, I blow my nose, I go to work. Before? Home for three days in agony and weak and sick and..... You get the idea. I'm the only one that doesn't call out of work when the flu goes around.

ptkds Community Regular

My dd's and I have been gluten-free for 1.5 yrs, with the occasional accidental glutening. But a few months ago, I got the flu for the first time in my life. I'm serious, I have NEVER had the flu. But I got it and it took ALOT out of me. My dh got it, but it barely touched him. Same with my dd's. It seems like I get sick alot more now than before going gluten-free. And my dd#3 (the one that got chicken pox) is having more problems than any one else, too. And she is the one that gets glutened the least amount.

I'm just trying to figure this all out, and tonight probably isn't the best night! I have a bad headache.

YoloGx Rookie

My thinking is that this too will pass. Maybe you have been getting CC'd without knowing it?

Like I said too, you might need stronger, better B vitamins like the co-enzyme ones, or fermented foods and maybe more vitamin D and liquid trace minerals etc.

wowzer Community Regular

I know for me that my immune system has improved immensely since going gluten free. I do have a problem with many medications. The last time that I was into the doctor for a sinus infection, he did give me a lower dose of antibiotics. I still ended up having a reaction. He does agree that the reactions that I have had have been because it was too much for my system. Before I went gluten free, I had chronic sinus infections that no antibiotic seemed to touch. I am sure that I wasn't absorbing them then. I try to avoid taking anything that I don't have to. I do take Singulair and Synthroid.

Guest AutumnE

It took me over two years but Im finally near back to where I should be. My hair is growing in finally and this winter none of my family was sick. We were exposed to sick people a few times but nothing came of it. Its the first time in years for me not to get sick during cold and flu season.

We are on elderberry also but I think gluten free had an effect on it too.

monkeypuss Rookie

this is so interesting and is yet another thing thats convincing me my gastroenterologists feelings are right, that i have celiacs. i have always had a really bad immune system, all my friends and family comment on it. I get every cold going around and always seem to get them really bad, as does my mum and my nan did (my nan on that side being a celiac too). Also since i've been eating gluten in readiness for my biopsy i've noticed my bones have started cracking really loudly again :P that went away when i was off gluten weirdly :P

par18 Apprentice

I think something like this varies with the individual. I for one have not had so much as a cold in the past three years since going gluten free. A couple of times I thought I was beginning to feel the effects of a "bug" but nothing has lasted more than about 24 hours. I feel as though my immune system is stronger than the average person since it is no longer reacting to "gluten exposure".

Tom

mushroom Proficient

I have always had a worthless immune system from when I was a small child. Caught everything going, and a cold always turned into a secondary infection, mainly lungs. Now I have an auto-immune disease that being gluten-free is not have any effect on (psoriatic arthritis) so I have to continue the immuno-suppressant drugs. I asked my rheumatologist if I was fighting myself by taking them and and also taking immune system boosters like massive Vitamin C doses, Wellness Formula, etc., and he had no answer.

One month after going gluten-free I caught the worst case of flu I have ever had, followed by three weeks of acute bronchitis, after exposure at my bridge club, so have had to resign from that this year to try to stay healthy. I will have to ask my new rheumatologist if there is any point in trying to boost the immune system while on immuno-suppressant medication. That said, a couple of weeks ago I thought I was coming down with a cold and was able to fight it off with Vitamin C, and a NZ equivalent of Wellness Formula. So maybe there is hope yet.

KNS Newbie

My 5yr old has celiac - he has been on a strictly gluten-free diet for 2 years. He rarely ever gets sick - and if he does, he heals very quickly. (His non-celiac sister catches plenty more viral infections than he does...) In my opinion, his immune system is much more effective at fighting the viruses and bacteria now that it is not attacking gliadin all of the time. I would imagine, however, that even a very small amount of gluten in a celiac's diet would compromise the immune system's ability to fight off other invaders... (because the body's resources are being used to fight the gliadin from the gluten and not as available to ward off other infections/illnesses...) so, I would assume that even an occasional, accidental gluten consumption could inhibit your body's ability to fight off viruses and/or bacteria...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.