Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie


StevenLy

Recommended Posts

StevenLy Newbie

Hi Everyone,

I found out last week, through a blood test, that I have celiac. I'm 26 and my doctor just informed me via a phone call to stop eating gluten. I don't think he has much experience with celiacs and doesn't have much information. It seems like this disease usually affects those of European decent, so is it strange that I am an Asian male that has been diagnosed. I don't know how all of a sudden I can have this when I have eaten foods with gluten all my life. I live in Southern California, does anyone know of a doctor or place I can go to get more information? Is this something I can die from? I'm pretty scared at the moment. Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

First of all welcome!

Anyone can get Celiac regardless of their ancestry. There is just a stronger link to certain ethnicities. Did he do a biopsy? Not that you need it because a positive blood test is POSITIVE....PERIOD. But a biopsy will tell how your intestines are doing and how much damage you have. You may wish to consult with a gastroenterologist (sp?).

With that said, you will need to follow a strict gluten free diet regardless of whether you have a biopsy or results of a biopsy. Do you have symptoms? Once you go on the diet, you should see some clear up soon enough and hopefully all of them with time. This will also tell you what you need to know without a doubt.

Even if you DO NOT have symptoms, damage is being done. It can lead to a wide variety of autoimmune diseases like Diabetes type 1, MS, etc. And celiacs have a much higher rate of various cancers. You can have the same risk of those cancers as everyone else by following the gluten-free diet.

I have found this site a great resource.

The easiest way to go gluten-free is to eat simply. Think paleolithic type diet. Meats, veggies, fruit and nuts. However, most can eat the gluten-free grains like rice, quinoa, buckwheat, etc.

I hope this helps. I am new to it too. 6 weeks in. But I have learned A LOT on this site plus tons of surfing. Knowledge is key!

Shay

msmini14 Enthusiast
Hi Everyone,

I found out last week, through a blood test, that I have celiac. I'm 26 and my doctor just informed me via a phone call to stop eating gluten. I don't think he has much experience with celiacs and doesn't have much information. It seems like this disease usually affects those of European decent, so is it strange that I am an Asian male that has been diagnosed. I don't know how all of a sudden I can have this when I have eaten foods with gluten all my life. I live in Southern California, does anyone know of a doctor or place I can go to get more information? Is this something I can die from? I'm pretty scared at the moment. Thanks in advance.

My doctor didnt tell me anything either. To get some info google celiac disease and everyone on this site is very helpful too! You wont die, but you need to stay away from wheat/gluten which is in everything. I had been eating wheat my whole life up until Otcober of last year, I got sick from eating chicken and was never the same after that. There are multiple things that can trigger Celiac, but it is a genetic disease. Inform your immediate family because you picked it up some where.

I have been doing so much research and yes it can be over whelming. You will be ok. I am in So Cal too, is there a Henrys by you? That store is fantastic and I have a lot of good receipes if you are interested. Just say bye bye to fast food =)

AliB Enthusiast

I suspect a lot of the problem is in the wheat itself. It has been so meddled about with and now with the advent of GM who knows what they are doing to it!

It has been getting worse through the successive generations. Now apparently in the States 35% of the population have the genes for it. The genetic modification of the wheat and other gluten grains has probably resulted in genetically modifying us to be unable to cope with it!

pele Rookie

Hi Steven

Celaic disease and gluten intolerance are very common, but appartently no one's told the doctors yet!

Here is a link to an informative video on youtube from U of Cal. It's 90 minutes long and well worth the time.

Open Original Shared Link

You might also want to pick up a copy of Dr. Peter Green's book Celiac Disease: a Hidden Epidemic

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.