Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New, Need Help Getting Protein In Me


Nancy Lake

Recommended Posts

Nancy Lake Rookie

In addition to all the symptoms, I have a known wheat allegy since childhood, I have a skin rash called Tiena Versicolora, which is a patchy itchy skin fungus. I always have a high white blood cell count and I am diagnosed with Fibromyalgia, I am too depressed to work.

Don't have medical insurance so I am self diagnosing with 100% confidence. I just started to elimenate milk and some grains from my diet.

Milk causes me to have alien baby syndrome. I have labor type stomache ache for several hours after ingesting diary products. Also I feel sick after I eat cereal with milk.

I get headaches and feel weak and shakey. Recently diagnosed with type 2 diabetes.

I am loosing bone mass and have stenosis of the spine. See a Chiropractor.

I really need help with how to eat. I need protein and more energy.

Starting taking plant derived minerals from Youngevity and they do help a great deal. I also take their Osteo FX formula of Calcium Magnesium and MSM plus vitamin D. It helped me get up a move again without pain.

I became a distributor about a year ago. I only make a few dollars a month. I am not a sells person...lacking the needed energy, but honestly, it has saved me from lots of pain.

Have an MSN group web site called Nancy's Healing Niche. Please visit there to speak to me...I would love it.

I also have gall bladder pain and spasms.

Any eating tips are helpful to me

Thanks

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

Atkins Diet ( low carbs ) extremely helpful for type 2 diabetes. Read the book "Atkins Diabetes Revolution"

frec Contributor

You could try soy protein, but a lot of people who can't have wheat or dairy don't do well with soy either. I have a rice protein shake every morning in rice or almond milk. I add a bit of peanut butter and some fruit, usually a banana. It is easy to digest and high protein. Trader Joe's has the best prices in my area for non-dairy milks.

Plain foods are much easier for me to digest, and it is clearer what I am reacting to if I get sick. Keep a food journal (a pain, I know) of what you eat and what reactions you have. Avoid a suspect food for a few weeks and then try it again with no other suspects and write down what happens. Try really safe stuff for a while--chicken breast, rice, rice pasta, etc. Avoid gassy foods like beans and broccoli until you feel better. Cooked foods are easier than raw (especially vegetables), and liquids are easier for me than solids. Eating small meals more often is better too.

I sure hope you feel better. I've gotten lots of good information from the people on this forum! You can search specific topics by doing the Google search just within this forum. Take care of yourself!

mftnchn Explorer

When you say self diagnosing are you referring to celiac disease?

If you are celiac and new to the gluten-free diet you could be not absorbing protein well. That is true for me and I am already a year gluten-free. I am taking a lot of digestive enzymes to help plus amino acid supplementation. Will be retesting in a month or so and hope to see some improvement.

Hope you get better.

Respira Apprentice

Atkins Diet is great!! Lots of protein is in your diet when doing Atkins. It is very compatable with celiac disease too

RiceGuy Collaborator

If you are not intolerant to all grains, some which have decent protein content are teff, amaranth, buckwheat (not related to wheat, and not even a grain), millet, and quinoa. Chia seeds have a good amount of protein too. If you like green peas, they are loaded with protein. An easy way to eat a lot of peas is to put them in the blender with some water, and make pea soup.

As for depression and pain, I'd highly recommend a Open Original Shared Link supplement, and increase your magnesium supplementation. Take 3 or more mg of B12 per day, and as much magnesium as is comfortable for you (it will loosen stool in high doses). These two nutrients completely resolved ALL my pain, dramatically increased my energy, improved my sleep patterns, and lots more.

If you don't already take a high quality B-complex, I'd recommend that as well.

Also, you might try some Open Original Shared Link. This is known to help boost energy, help with skin, hair, and nails, and numerous other things. Besides, it tastes great!

Nancy Lake Rookie
If you are not intolerant to all grains, some which have decent protein content are teff, amaranth, buckwheat (not related to wheat, and not even a grain), millet, and quinoa. Chia seeds have a good amount of protein too. If you like green peas, they are loaded with protein. An easy way to eat a lot of peas is to put them in the blender with some water, and make pea soup.

As for depression and pain, I'd highly recommend a Open Original Shared Link supplement, and increase your magnesium supplementation. Take 3 or more mg of B12 per day, and as much magnesium as is comfortable for you (it will loosen stool in high doses). These two nutrients completely resolved ALL my pain, dramatically increased my energy, improved my sleep patterns, and lots more.

If you don't already take a high quality B-complex, I'd recommend that as well.

Also, you might try some Open Original Shared Link. This is known to help boost energy, help with skin, hair, and nails, and numerous other things. Besides, it tastes great!

Thanks. I love peas. And a friend suggested Teff and quinoa...she loves them. I did go buy some gluten free products. I was so confussed as to how to eat.

I am a vegetarian, so peanut butter sounds good, almonds...and any grain protein. I have lots of protein powder mixes...but now I am wondering about those.

I am eating lots of salads...and I love beans. Pinto Beans are a staple in the SouthWest...

I have started taking enzymes and some other products.

I think I am doing better...less depressed...but I am so sleepy all the time. I have been taking naps. I get some shortness of breath and my laundry is now piling up...because I am getting very lazy.

I was going to the gym every day. I think I started posting in here the first day of being gluten free. I was very sad that day.

Another thing I have noticed is peeing all the time. I was retaining water...now I am peeing buckets and I think that is also odd.

Don't know if that is diabetes or being gluten free.

I don't have a doctor. I probably will need one. I am not sure about too much except staying away from breads...and cereals. That I am doing.

Before I started this I was eating lots of bread...I craved bread. And of-course bread makes you fat. And I am chubby at this time.

Thanks for all the wonderful advice. Day to Day I am learning.

Oh, yes, the B vitamins really help. I have been buying B complex and others. I am not sure if I have the best brand but I can tell they help a great deal.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancy Lake Rookie
When you say self diagnosing are you referring to celiac disease?

If you are celiac and new to the gluten-free diet you could be not absorbing protein well. That is true for me and I am already a year gluten-free. I am taking a lot of digestive enzymes to help plus amino acid supplementation. Will be retesting in a month or so and hope to see some improvement.

Hope you get better.

Well thank you. Yes, this has been going on a very long time. I do not have a doctor right now. It would be nice to get some health insurance.

I was diagnosed with wheat allergies when I was a child. Have weird rashes. And no matter what...think I should be gluten free.

I see by the test results you have printed that it is a good idea to get some diagnostics done.

I have a question: Why is it that Celaics cannot absorb protein? Is it the damage to the intestines?

So how long does it take to see the intestines improve? Are you feeling better? Did you have any withdrawl symptoms going gluten free.

I am having bit withdrawl. I am extemely tired.

Nancy

Nancy Lake Rookie
Atkins Diet is great!! Lots of protein is in your diet when doing Atkins. It is very compatable with celiac disease too

Thanks Respira, If there is a vegetarian Atkins, then I am in. I have some theories about the Atkins diet...but maybe I am wrong.

Well, thanks.

Nancy

Nancy Lake Rookie
You could try soy protein, but a lot of people who can't have wheat or dairy don't do well with soy either. I have a rice protein shake every morning in rice or almond milk. I add a bit of peanut butter and some fruit, usually a banana. It is easy to digest and high protein. Trader Joe's has the best prices in my area for non-dairy milks.

Plain foods are much easier for me to digest, and it is clearer what I am reacting to if I get sick. Keep a food journal (a pain, I know) of what you eat and what reactions you have. Avoid a suspect food for a few weeks and then try it again with no other suspects and write down what happens. Try really safe stuff for a while--chicken breast, rice, rice pasta, etc. Avoid gassy foods like beans and broccoli until you feel better. Cooked foods are easier than raw (especially vegetables), and liquids are easier for me than solids. Eating small meals more often is better too.

I sure hope you feel better. I've gotten lots of good information from the people on this forum! You can search specific topics by doing the Google search just within this forum. Take care of yourself!

I had some rice tonight and I feel ok. My stomach is starting to feel softer, it was very hard for a while. I was going to the gym everyday but watched as my stomach got larger. (prior to going gluten free a week ago.) I have been eating salads..love avacado, peanut butter, trail mix. I think I might be eating more sugar now..at least in the trail mix and that can't be good either.

Today, I am not depressed...about a week into gluten free. My mind is not foggy today...but I am so sleepy and just want to lay around. I feel embarassed about how my home looks. It is usually clean....welll not this week.

Got the gluten free blues or lazyness or something.

Nancy

  • 3 weeks later...
purple Community Regular
In addition to all the symptoms, I have a known wheat allegy since childhood, I have a skin rash called Tiena Versicolora, which is a patchy itchy skin fungus. I always have a high white blood cell count and I am diagnosed with Fibromyalgia, I am too depressed to work.

Don't have medical insurance so I am self diagnosing with 100% confidence. I just started to elimenate milk and some grains from my diet.

Milk causes me to have alien baby syndrome. I have labor type stomache ache for several hours after ingesting diary products. Also I feel sick after I eat cereal with milk.

I get headaches and feel weak and shakey. Recently diagnosed with type 2 diabetes.

I am loosing bone mass and have stenosis of the spine. See a Chiropractor.

I really need help with how to eat. I need protein and more energy.

Starting taking plant derived minerals from Youngevity and they do help a great deal. I also take their Osteo FX formula of Calcium Magnesium and MSM plus vitamin D. It helped me get up a move again without pain.

I became a distributor about a year ago. I only make a few dollars a month. I am not a sells person...lacking the needed energy, but honestly, it has saved me from lots of pain.

Have an MSN group web site called Nancy's Healing Niche. Please visit there to speak to me...I would love it.

I also have gall bladder pain and spasms.

Any eating tips are helpful to me

Thanks

Nancy

I talked on the phone to www.swansonvitamins.com only 2 days ago. The lady said she takes chlorella(Kyoto brand) and it does lots of things including gives her energy. You can search it out. Most people are allergic to casein...what about whey? It's full of protein. If you can take it ...I bought Biochem Sports, it's supposed to be good. Swanson's has soy protein powder. Anyway, Swanson's is a great place to get cheaper supplements. Ask for a catalog. 1-800-437-4148 Their Bone Essentials is only $4.79. You can ask about each item you are curious about, they are helpful.

Nuts and seeds and beans are packed with protein.

Juliebove Rising Star

I presume you are testing your blood sugar? If not, you should be. High blood sugar will make you tired and make you pee a lot.

A lot of the gluten-free foods such as breads and grains may have too many carbs for a diabetic. I am also type 2. If I eat beans, that is my main source of carbs at the meal. I might also add some nuts or seeds. I will eat refried beans and use raw vegetables to dip in them. Hummus is good too.

I love chia seeds and often eat them for breakfast. They are a good source of protein. Sprouts are also a source of protein.

One thing I eat is Mesa Sunrise patties. There are different kinds. I like the black bean ones. They are higher in carbs than some of the others. I don't always eat them on a bun. I like to microwave them till crispy and just pick them up and eat them.

Eggs are a good source of protein if you can eat them. I used to make hard boiled ones before I knew of my egg allergy.

AliB Enthusiast

I also am Diabetic with Celiac/GI.

My body cannot, and never has been able to cope with carbohydrate. On top of that I need a lot of protein. I seem to be a Fast Oxidiser extreme Metabolic Protein Type. I have always known I need plenty of protein - if I don't get enough I get a headache, so I could never be vegetarian even if I wanted to. My body would not be able to draw enough protein, especially purines from vegetable-based foods.

I have never been able to cope with too much in the way of fruits and veg either and didn't know why until I read the Metabolic Typing diet book and realised the reason. My Ancestral background is Anglo-Saxon originating from Northern Scandinavia where a high animal and fish protein and fat diet was the regular fare.

Those whose metabolism sits at the other (carb) end of the scale can generally cope with carbs fine (although I daresay the high sugar-laden carbs that we ingest in the 'Western' diet is not good for anyone), but if you sit towards or at the protein end, even if you prefer to be vegetarian for ethical reasons, health-wise it is not a good option.

We have had a similar topic discussed like this before and a few have realised that they have had to add animal protein back into their diet, and felt much better for it.

With my diabetes I find that any carbs, however small, will push my blood sugar up unacceptably, whereas protein tends to balance it, so I am better on low-carb. The two times in my life I ever felt well was when I was low-carbing. You'd think I'd have figured it out then wouldn't you! I could kick myself now for not sticking to it when I was younger and before I became diabetic - perhaps I might not have become diabetic!

There is some thought that dairy - cows milk - may be contributing to the diabetes epidemic. I have always been lactose intolerant but didn't drop the stuff until my digestion collapsed and I was forced to.

AliB Enthusiast

By the way, Tinea is a yeast associated with Candida. Cutting sugar and most carbs out of your diet will get it under control. Yeasts feed on sugars. Carbohydrates turn to glucose.

Most people have Tinea it in some form or other - even athlete's foot is a form of it, Tinea Pedicularis, and dandruff can be caused by it, Tinea Capitis. Since adopting the low-carb diet mine hasn't yet gone, but it is better. I am not as disciplined with the carbs and sugar as I would like and I know that makes a lot of difference, as, when I do severely limit them it all clears up.

Janessa Rookie

go to vegiac.com for vegetarian support

sweet potatoes are good and fill you up, also buckwheat and quinoa are wonderful. If you can have dairy try goat milk/ cheese it is much easier on your system than cow's.

ShayFL Enthusiast

I like Hemp protein powder and chia.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.