Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Feller On Board

joopie

Recommended Posts

joopie Newbie
joopie
Posted

hello,

first let me say i have visited this site before and it seems like a warm croud- so, thanks in advance for sharing your thoughts!

i have had many unexplained health issues for many years- recently switched to a integrated medicine w/ a naturopathic doc- just had some blood work done- doc says celiac disease... i am hoping this might be the answer to my problems - i have adjusted my diet to be gluten free-below are results:

Endomysial Anibody, IgA in a reference range from 40 - 350 result = 330 - negative?

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Gliadin IgG w/ negative range <20 result = 2 negative

GliadinIgA w/ negative range <20 result = 4 negative

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Hi and welcome. Those are positive results as far as I can see. You have come to a good place for info and support and do feel free to ask any questions you need to. Do feel free to just vent also, we have all been through it and do understand the anger and frustration. There is a lot to be learned at first but you will get the hang of it. I hope you are feeling better soon.

ksymonds84 Enthusiast
ksymonds84
Posted

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Hello and Welcome to the board! You've found a great place to learn all you can about celiac. The tissue transglutaminase test is a big one for diagnosing and your being positive sounds like the gluten free diet will make a difference.

joopie Newbie
joopie
Posted
  • Author

thank you ravenwoodglass and ksymonds84 fro the response!

i am doing as much research on the gluten subject as i can.

i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

this change will prove challenging- but, i am fortunate to have a very supportive wife who has already making some incredible gluten free meals- and a beautiful 5 year old son to keep my spirits up.

thanks again- i look forward to feeling better, learning more and helping others if i can,

B) , joopie.

lizard00 Enthusiast
lizard00
Posted

Welcome to the gluten-free life!!! It's really not so bad! In fact, if you feel better, it's GREAT!

Having a supportive spouse (or other family members) is really essential, I think, to being successful with adapting to your new lifestyle. My husband has been great since the beginning, and I don't have an official diagnosis. I hear other people who's families are downplaying the importance of being gluten-free, and it makes a huge difference. My husband took the time to find a gluten-free cookie recipe to surprise me with. It's not so much the cookies (they were yummy!) but the fact that he made the effort to find the recipe and make them that really make me grateful for his support.

Feel free to ask any question, be angry, whatever. This forum is absolutely wonderful and full of people with a wealth of knowledge.

RiceGuy Collaborator
RiceGuy
Posted
i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

Don't be surprised if you find your weight going up a bit. Malabsorption has a tendency to keep a celiac thin (though not for all of us). Also, I wonder if leaky gut issues could be responsible for blood sugar problems, as it seems to me sugars would more easily and quickly get into the bloodstream. Some have reported that their diabetic symptoms vanish once gluten-free for awhile.

joopie Newbie
joopie
Posted
  • Author

lizard-

you are so right about a supportive spouse - very important! she has already put together some things from gluten free recipes- i will have to post some pics of the goodies she is already making.

hey riceguy-

i do hope you are right about the removal of gluten and its possible effects.

-thinking positive and sticking to the plan!

B) , Joopie.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


joopie Newbie
joopie
Posted
  • Author

celebrating first week gluten free - accomplished!

chocholate/chocolate chip muffins for everyone- compliments of my wonderful wife!

(gluten free of course)

B) , joopie

my pic won't post? :(

004.webp

psawyer Proficient
psawyer
Posted
my pic won't post? :(

004.webp

The %7Boption%7D tag is not enabled on this board. You can create a link on which people can click using [ url ].

As in click here.

Click the BB Code Help button at the bottom right of the window when composing a post for specifics.

Congratulations on your first week! The muffins look lovely.

joopie Newbie
joopie
Posted
  • Author

thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

Karli Rookie
Karli
Posted
thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

I am a newbie, too. Good to hear the positive response/feed back you are getting from other members... I am getting positive support of my husband, too. He does a lot of the cooking... and now that he understands the cross contamination issue... he has revamped the kitchen cupboards. He still has his store bought bread and crackers ... but for baking we are convertint to glutin free. My sister got her 'test' after I showed positive for Celiac... small bowel involvement and blood work too... So I have given my cake mixes etc. to her... Fortunately, I had discovered on my own that baked goods tended to bother me... Frankly, I have very few symptoms.... so this all came a shock to me....

As I mentioned, my sister got her test right away.... other family members are dragging their feet... any hints on how to urge them to the doctors office.... (brother, sons) my double cousin is having her blood work done this week.... It seems the women are taking this more seriously...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    4. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    5. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748
    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.