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Celiac Disease Or Gluten Allergy?

KathleenBP

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KathleenBP Newbie
KathleenBP
Posted

I recently had an endoscopy done and the biopsy was postive for celiac sprues; however, the blood tests were all negative. therefore, doctor says I have a gluten allergy but reading the books and info online, regardless of bloodwork, a positive biopsy would indicate celiac disease.

Anyone have any information on this or had similar results?

thanks

kathleen

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ksymonds84 Enthusiast
ksymonds84
Posted
I recently had an endoscopy done and the biopsy was postive for celiac sprues; however, the blood tests were all negative. therefore, doctor says I have a gluten allergy but reading the books and info online, regardless of bloodwork, a positive biopsy would indicate celiac disease.

Anyone have any information on this or had similar results?

thanks

kathleen

Crazy doctors! A positive biopsy is considered the gold standard for diagnosing celiac whereas the blood test has alot of false negatives (30%). Welcome to the forum Kathleen!

Ursa Major Collaborator
Ursa Major
Posted

Hi Kathleen, and welcome to this board. I agree with the previous poster, your doctor doesn't know what he is talking about. A gluten allergy would NOT cause villi damage!

You need to be 100% gluten free.

KathleenBP Newbie
KathleenBP
Posted
  • Author

Thanks for the responses. I satrted being gluten free one week ago. Its been hard but I will keep doing it. My gut told me that it might be time to find another doctor. Thanks again. Kathleen

KristaleeJane Contributor
KristaleeJane
Posted

Yes You should either get a new doctor so that you are able to have an official diagnosis of celiac disease, now that you are going gluten free, any tests that you have done after this will be altered by your gluten free diet. Trust me after going gluten free for a period of time you do not want to have to eat gluten to get a positive test, weather it be biopsy or bloodwork.

So switch doctors and tell them you want an offical diagnosis. Remember this is something that you will deal with for the rest of your life so It is important to get a proper diagnosis.

Thanks

Krista

AndrewNYC Explorer
AndrewNYC
Posted

You need to find a new doctor. This guy does not fully understand what is going on. If you have a complicated problem later on he will not recognize it and you'll just kick around for awhile until you figure it out for yourself.

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  • Posts

    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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