Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Get Headaches After Going Gluten Free?

kimis

By kimis
in Related Issues & Disorders

Recommended Posts

kimis Collaborator
kimis
Posted

I went gluten free April 1,2008 (due to celiac). Two weeks ago I got a headache...I still have this headache that asprin won't relive. I got an MRI of my brain and it showed everything normal, and now am on antibiotics and steriods (doc thinks I could have a sinus infection) and the headache remains. I am scared and depressed without a clue of whats happening. The only changes have been the diet, and I have stuck with foods I have been eating all my life. The pain is mostly on the right side...mainly affecting my temple, eye,part of my face and forhead. Please let me know your opinions!!!!!!!!!

Thanks......kim

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

What were your symptoms before going gluten-free? Neurological?

Basic advice is to drink LOTS of water. I mean 8 - 10 glasses a day to "flush" the toxins out. Gluten/Gliadin are toxins to Celiacs. I find that Magnesium can help relax the muscles and ease the pain. I also use ice packs. And B2 200 mg a day has helped me too. But I never had one last more than 2 days.

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

I'm glad I came across this because I've been experienceing this same thing. I never used to get headaces (accepts migranes when I was younger after eating), but now I've been getting persistant headaces that not even perscription IB profin will take away- and they'll stick around for days. I'm finding it may be that I am more sensitive to differant foods now- corn and peanuts being two of the major ones. ANd if I have gluten I get a really bad migrane on my left side through my eye- its one of the first signs of glutening for me.... but generally, even gluten-free, the headaces are in the forhead and tenple, I'll wake up in the morning with it, and it starts throbbing when I get up and walk, then dizziness sets in and I get the little black dots before my eyes :blink:

I'm trying to stick to a bland simple diet to see if it helps... avoiding caffine/sugar and chocolate will help also.

sickchick Community Regular
sickchick
Posted

I did... and I also had some icky emotional withdrawls I was ready to punch someone for like 5 days! :ph34r::lol:

be patient with yourself!

elonwy Enthusiast
elonwy
Posted

My headaches have completely gone away being gluten-free. That being said, a co-worker was having a constant headache that would not go away. Had the headache for almost a year, has MRI's, every test they could think of, etc. Turned out to be his thyroid. Might be worth checking out.

DingoGirl Enthusiast
DingoGirl
Posted

I am the reverse - my terrible headaches went away after gluten removal.......but what may be happening is withdrawal.....just a thought?

Here's an interesting article:

Open Original Shared Link

nikki-uk Enthusiast
nikki-uk
Posted
I went gluten free April 1,2008 (due to celiac). Two weeks ago I got a headache...I still have this headache that asprin won't relive. I got an MRI of my brain and it showed everything normal, and now am on antibiotics and steriods (doc thinks I could have a sinus infection) and the headache remains. I am scared and depressed without a clue of whats happening. The only changes have been the diet, and I have stuck with foods I have been eating all my life. The pain is mostly on the right side...mainly affecting my temple, eye,part of my face and forhead. Please let me know your opinions!!!!!!!!!

Thanks......kim

What springs to mind is dairy.

After a couple of months of being gluten-free my hubby started to get crushing awful headaches........turned out he had 'temporary' lactose intolerance (very common in coeliacs)

As soon as he cut out the milk products the headaches went away.

Hope you get to the bottom of it :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kimis Collaborator
kimis
Posted
  • Author

wow! There are so many possibilities I didn't even consider...that opiate withdrawl is artical is wild! I will also look into the magnesium and b2. I really appreciate all of your responses...it helps so much knowing we can all come together to figure out these weird side effects and what to do about them.

MELINE Enthusiast
MELINE
Posted
wow! There are so many possibilities I didn't even consider...that opiate withdrawl is artical is wild! I will also look into the magnesium and b2. I really appreciate all of your responses...it helps so much knowing we can all come together to figure out these weird side effects and what to do about them.

Hello

I had terrible terrible I mean reall terrible headaches when I started a detox protocol. i agree with the member who suggested WATER. it is very possible that you are just detoxifying. Just a thought....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    2. MichaelDG
      - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.