Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Hypothermia A Symptom?

Aleshia

By Aleshia
in Related Issues & Disorders

Recommended Posts

Aleshia Contributor
Aleshia
Posted

when I was about 16 my temp was always really low... around 96.6 I used to be really tired and get sick a lot. I was at a boarding school and the school nurse just told me that I was depressed, didn't want to be around anyone, and needed to go see the counselor. anyway, I ended up dropping out of school for the rest of the year and my grandma took me to her naturopath who said I had epstein bar (sp?) and hypo thyroidism. I took my thyroid pills for about 3 months or so and then decided I didn't feel much better and quit taking them (I was a teen... what would you expect? :rolleyes: ) anyway I go to the same naturopath now and my thyroid levels tested normal (she said they were excellent) my temp is pretty much normal or just below normal (around 97.8 or above usually) anyway I was just wondering can epstein bar cause hypothermia? I thought you got a fever with it... and also can hypothermia be a symptom of celiac disease?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


veggienft Rookie
veggienft
Posted

Apparently chronic low body temperature is called Wilson's Syndrome, and it's consistent with celiac disease:

Open Original Shared Link

I researched Mononucleosis recently. Apparently most people who get it don't get sick. The problems come when Epstein Barr goes systemic. It crosses the blood/brain barrier. It attacks nerves all over the body, including organs. It attacks immune system components, including the spleen. The combination of Epstein Barr and wheat gliadin protein is capable of setting up autoimmune reactions in celiac sufferers, especially in organs dependent on SOD1 aggregate nerve repair. Those would include thyroid, pituitary, eye retinas, brain, spinal chord and virtually every organ transduction boundary.

..

HouseKat Apprentice
HouseKat
Posted
when I was about 16 my temp was always really low... around 96.6 I used to be really tired and get sick a lot. I was at a boarding school and the school nurse just told me that I was depressed, didn't want to be around anyone, and needed to go see the counselor. anyway, I ended up dropping out of school for the rest of the year and my grandma took me to her naturopath who said I had epstein bar (sp?) and hypo thyroidism. I took my thyroid pills for about 3 months or so and then decided I didn't feel much better and quit taking them (I was a teen... what would you expect? :rolleyes: ) anyway I go to the same naturopath now and my thyroid levels tested normal (she said they were excellent) my temp is pretty much normal or just below normal (around 97.8 or above usually) anyway I was just wondering can epstein bar cause hypothermia? I thought you got a fever with it... and also can hypothermia be a symptom of celiac disease?

For years I've had a lower than normal temperature. As a result, when I have a fever, my temp is usually only around 99 degrees. The doctor's and nurses dismiss it as not enough above normal to be a real fever, despite the fact that it is 3-4 degrees above what is "normal" for me.

It would be interesting to go back through my charts and see if the temperature thing correlates with my celiac symptoms.

Kate

dollamasgetceliac? Explorer
dollamasgetceliac?
Posted

:lol::D Finally I found 2 people like me! Me too my temp is chronically low and when I get a severe infection ( Like I am halucinating and well I'll save you the details) my temp goes up to 99 max.

One Doctor said I hate to mess with you it seems dangerouse, at least he was honest.

I never heard of this before in other people, the Most Dr's look at me though I am nuts :P

I had Severe Bronchitis once and the nurse said you are not sick your temperature is normal, I was a student at the time , luckily my friend kept checking on me when I told her that I was too weak to eat the great fruit she bought me and that I have been sitting up in bed because it hurts my lungs to turn around , she dragged me to the Doctor, he was FURIOUSE at the nurse and said that the temperature is not a full Diagnosis YOU LOOK AT THE PATIENT.

I wonder what this is and do others have this?

ShayFL Enthusiast
ShayFL
Posted

Anything below 98.6 give or take a smidge is not normal during the day. It drops some at night, but should be 97.8 or higher when you wake up and IMO should never be below 97.8 at anytime of the day.

It indicates thyroid issues. The thyroid is your internal thermostat. TSH should be less than 2 with most people feeling good with it being 1 or less. Mine has to be completely suppressed for me to feel good.

Get your thyroid checked if your temp is low:

TSH

Free T-3

Free T-4

And all of the antibodies

Lisa Mentor
Lisa
Posted
Anything below 98.6 give or take a smidge is not normal during the day. It drops some at night, but should be 97.8 or higher when you wake up and IMO should never be below 97.8 at anytime of the day.

It indicates thyroid issues. The thyroid is your internal thermostat. TSH should be less than 2 with most people feeling good with it being 1 or less. Mine has to be completely suppressed for me to feel good.

Get your thyroid checked if your temp is low:

TSH

Free T-3

Free T-4

And all of the antibodies

I would agree. Please get your thyroid checked.

Aleshia Contributor
Aleshia
Posted
  • Author
Apparently chronic low body temperature is called Wilson's Syndrome, and it's consistent with celiac disease:

Open Original Shared Link

I researched Mononucleosis recently. Apparently most people who get it don't get sick. The problems come when Epstein Barr goes systemic. It crosses the blood/brain barrier. It attacks nerves all over the body, including organs. It attacks immune system components, including the spleen. The combination of Epstein Barr and wheat gliadin protein is capable of setting up autoimmune reactions in celiac sufferers, especially in organs dependent on SOD1 aggregate nerve repair. Those would include thyroid, pituitary, eye retinas, brain, spinal chord and virtually every organ transduction boundary.

..

you mentioned eye retinas... this is about the same age that my eyes started going bad although I didn't get glasses until I was 19... I couldn't make out people's faces across a room and failed my driving test because I was "too cautious"... would that be from this same thing also? I just went to the eye doc (hadn't had an eye exam in about 8 years!!) and she said that my prescription is the same strength now but just different. (not sure how that works... but its cool that my eyes haven't gotten "worse")

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Aleshia Contributor
Aleshia
Posted
  • Author

thanks for all the replies... my temp lately has been almost normal and when I get a fever it is a real fever... sometimes I just won't "feel good" and take my temp and it is around 99 I will have to look into the wilsons syndrome thing and also about hte T3 and T4... anyone know if your body can "repair itself" from pregnancy? after my second child I no longer get the severe cramping that led to the doctor searching for endometriosis and my temp isn't low like it used to be... some things got worse after kids... but I am thankful for the things that did get better!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.