Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Only When I Over Indulge?


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

Ok so heres the thing. I have celiac disease in the family and have started displaying symptoms.

I have noticed that I only get these symptoms when I over indulge in gluten foods eg eat 2 pieces of bread at breakfast, pasts for lunch and a couple of beers etc in one day. Can I still have celiac or just intollerance to too much. My daughter is very gluten sensitive at 17 months and cant tollerate any at all. I had neg blood tests when symptoms first started but I did them fro my daughters benefit than mine cos I didn't think that my probs were related then.

When I do get sick I get sick for 3 to 5 days and this is usually every couple of weeks. I get better cos I stop eating. I get all the normal gastro symptoms minus diarrhoea plus constipation but also back pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, from what I've read, about 30% of celiacs display no outward symptoms at all. Since there seems to be a "trigger" to Celiac, after which the damage and symptoms begin to manifest, I have little doubt that you will eventually test positive, but by then there'll be quite a bit more damage than there is now.

Tim-n-VA Contributor

The caveat first: we are all different and celiac varies greatly from individual to individual.

I was diagnosed as part of an investigation of possible causes of varying liver function tests. In retrospect, there were times over the years where I'd have stomach problems. These seem to match up with lots of gluten, breakfast with pancakes, drinking two or more wheat-beers (I was in Germany at the time), etc.

The bad part was that I didn't have enough symptoms to make me stop eating wheat (or even suspect it) but I now have cirrhosis. Despite my citing beer above, I rarely drank any alcohol more frequently than once a month and most of the time it was oinly one beer (not two or more) so my liver damage is not likely alcohol related.

ShayFL Enthusiast

Hopefully your GI appt. will go well and you can learn more. It sounds like the light bulbs are already going off.

Kaycee Collaborator

The heading to your thread caught my eye. When you mentioned over-indulging, I thought you meant the practise of eating way too much, something which I can do with such ease. But you were only referring to only eating excess in the amount of gluten.

Well I didn't really have what I considered symptoms. Okay I had a bit of diarhoea, that didn't really impact in my life, as it only happened in the mornings and that was that for the day. But I did notice over the last few years before going gluten free, that everytime I overate, as in enjoyed morning tea at work, went out for a good hearty meal, or just eating more than I usually ate. I would be sick that night with chronic diahrroea. I'm pretty sure those days I ate more gluten, but I was just thinking I had overloaded my system with too much food and it couldn't cope. It was that symptom that made me stop and think, something is not right, and maybe the diarrhoea is not normal. So I went looking for answers. no one in my immediate family had coeliac, but I'd come to the conclusion I had an intolerance to gluten, or to some other food I'd been eating everyday.

When I went gluten free after being diagnosed with coeliac those horrible days of over over indulging dissappeared, and so did the diarrhoea. I can still over-indulge in food, but I don't get the stomach issues now.

Like the previous poster said, we are all different and have different symptons.

Cathy

tom Contributor
I have noticed that I only get these symptoms when I over indulge in gluten foods ...

I may be taking this wrong, but it hints to me at the thought that having only smaller amounts will be ok.

That is false, for a celiac.

I was under this impression for a few years - that there was some amount which I could have, remain asymptomatic and not create problems.

It ended up ruining 7-8 yrs of my life & I'm still recovering from the complications.

If you have celiac, be 100% gluten-free or HIGHLY regret it later.

Good luck. :)

mftnchn Explorer

I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast
I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.

I would agree with that. My symptoms would always worsen at my grandma's house. She worked in a bakery and when we were there, we always "overindulged". At that point I was clueless to Celiac, and I was eating lasagne, cereal, sandwiches and all the desert bites in between and after every meal. (cause we were at grandma's!) By Saturday afternoon, and we always arrived Friday night, I was down with a throbbing headache and nausea. And I do mean throbbing. It was because I was eating WAAAAYYY more gluten than I was used to, and my body simply couldn't cope with all the extra, it was barely handling the little bits that I normally ate. But I only see that looking back... so, it's good that you see that now. Definitely get checked out before you really get sick.

Fiddle-Faddle Community Regular

I don't think it matters whether you have celiac or "just" gluten intolerance.

Either way, your immune system is likely being triggered to attack your intestines, Even if you only have "small amounts of gluten," you risk further damage in the form of rheumatoid arthritis, fibromyalgia, lupus, MS, and even lymphoma.

If eating gluten is so near and dear to your heart that you think it's worth risking all that (not to mention seeing your daughter grow up), then I guess it's up to you.

Remember, it only takes 1/16th of a piece of bread to cause MEASURABLE damage to the villi, even in the absence of symptoms.

Krystens mummy Enthusiast

Thanks for your advice! I am going to see the GI on wednesday hopefully he/she can help I have decided that I want to go gluten free anyway even if the tests are negative. We do it for my daughter anyway so Im used to it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,860
    • Most Online (within 30 mins)
      7,748

    MEK5
    Newest Member
    MEK5
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.