Celiac.com Sponsor (A1):


Join eNewsletter


Celiac.com Sponsor (A1-m):



Join eNewsletter

Archived

This topic is now archived and is closed to further replies.

Krystens mummy

Symptoms Only When I Over Indulge?

Recommended Posts

Ok so heres the thing. I have celiac disease in the family and have started displaying symptoms.

I have noticed that I only get these symptoms when I over indulge in gluten foods eg eat 2 pieces of bread at breakfast, pasts for lunch and a couple of beers etc in one day. Can I still have celiac or just intollerance to too much. My daughter is very gluten sensitive at 17 months and cant tollerate any at all. I had neg blood tests when symptoms first started but I did them fro my daughters benefit than mine cos I didn't think that my probs were related then.

When I do get sick I get sick for 3 to 5 days and this is usually every couple of weeks. I get better cos I stop eating. I get all the normal gastro symptoms minus diarrhoea plus constipation but also back pain.


[b]Had very interesting symptoms as a child. Failure to thrive, lactose intollerance, vomiting, recurrent bladder infections, short stature (5ft tall)

Have family on my dads side dx celiac.

grandmother and brother symptomatic! No dx as this is recent discovery.

My symptoms returned Feb 08

Negative blood tests. 04/08

No iga deficiency test.

Gluten free 15/7/08

Daughter 17 months.

symptomatic since six months

Remarkable dietary response

Lactose intollerant

Negative blood test at nine months.Gluten free at the time for 4 weeks

Share this post


Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):


Well, from what I've read, about 30% of celiacs display no outward symptoms at all. Since there seems to be a "trigger" to Celiac, after which the damage and symptoms begin to manifest, I have little doubt that you will eventually test positive, but by then there'll be quite a bit more damage than there is now.


A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

Share this post


Link to post
Share on other sites

The caveat first: we are all different and celiac varies greatly from individual to individual.

I was diagnosed as part of an investigation of possible causes of varying liver function tests. In retrospect, there were times over the years where I'd have stomach problems. These seem to match up with lots of gluten, breakfast with pancakes, drinking two or more wheat-beers (I was in Germany at the time), etc.

The bad part was that I didn't have enough symptoms to make me stop eating wheat (or even suspect it) but I now have cirrhosis. Despite my citing beer above, I rarely drank any alcohol more frequently than once a month and most of the time it was oinly one beer (not two or more) so my liver damage is not likely alcohol related.

Share this post


Link to post
Share on other sites

Hopefully your GI appt. will go well and you can learn more. It sounds like the light bulbs are already going off.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

Share this post


Link to post
Share on other sites

The heading to your thread caught my eye. When you mentioned over-indulging, I thought you meant the practise of eating way too much, something which I can do with such ease. But you were only referring to only eating excess in the amount of gluten.

Well I didn't really have what I considered symptoms. Okay I had a bit of diarhoea, that didn't really impact in my life, as it only happened in the mornings and that was that for the day. But I did notice over the last few years before going gluten free, that everytime I overate, as in enjoyed morning tea at work, went out for a good hearty meal, or just eating more than I usually ate. I would be sick that night with chronic diahrroea. I'm pretty sure those days I ate more gluten, but I was just thinking I had overloaded my system with too much food and it couldn't cope. It was that symptom that made me stop and think, something is not right, and maybe the diarrhoea is not normal. So I went looking for answers. no one in my immediate family had coeliac, but I'd come to the conclusion I had an intolerance to gluten, or to some other food I'd been eating everyday.

When I went gluten free after being diagnosed with coeliac those horrible days of over over indulging dissappeared, and so did the diarrhoea. I can still over-indulge in food, but I don't get the stomach issues now.

Like the previous poster said, we are all different and have different symptons.

Cathy

Share this post


Link to post
Share on other sites
I have noticed that I only get these symptoms when I over indulge in gluten foods ...

I may be taking this wrong, but it hints to me at the thought that having only smaller amounts will be ok.

That is false, for a celiac.

I was under this impression for a few years - that there was some amount which I could have, remain asymptomatic and not create problems.

It ended up ruining 7-8 yrs of my life & I'm still recovering from the complications.

If you have celiac, be 100% gluten-free or HIGHLY regret it later.

Good luck. :)


>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03

Dairy-free since 10-04

Soy-free since 5-07

Share this post


Link to post
Share on other sites

I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.


4/2007 Positive IGA, TTG Enterolab results, with severe malabsorption: Two DQ2 celiac genes--highest possible risk.

gluten-free since 4/22/07; SF since 7/07; 3/08 & 7/08 high sugar levels in stool (i.e. cannot break down carbs) digestive enzymes for carbs didn't help; 7/18/08 started SCD as prescribed by my physician (MD).

10/2000 dx LYME disease; 2008 clinical dx CELIAC; Other: hypothyroid, allergies, dupuytrens, high mercury levels

Share this post


Link to post
Share on other sites
I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.

I would agree with that. My symptoms would always worsen at my grandma's house. She worked in a bakery and when we were there, we always "overindulged". At that point I was clueless to Celiac, and I was eating lasagne, cereal, sandwiches and all the desert bites in between and after every meal. (cause we were at grandma's!) By Saturday afternoon, and we always arrived Friday night, I was down with a throbbing headache and nausea. And I do mean throbbing. It was because I was eating WAAAAYYY more gluten than I was used to, and my body simply couldn't cope with all the extra, it was barely handling the little bits that I normally ate. But I only see that looking back... so, it's good that you see that now. Definitely get checked out before you really get sick.


Be yourself, everyone else is taken.

Oscar Wilde

Gluten free November 2007

IgA Deficient, Neg Bloodwork, Double DQ2 Positive

Dietary and Genetic Diagnosis June 2, 2008

Soy free Jan 09

Share this post


Link to post
Share on other sites

I don't think it matters whether you have celiac or "just" gluten intolerance.

Either way, your immune system is likely being triggered to attack your intestines, Even if you only have "small amounts of gluten," you risk further damage in the form of rheumatoid arthritis, fibromyalgia, lupus, MS, and even lymphoma.

If eating gluten is so near and dear to your heart that you think it's worth risking all that (not to mention seeing your daughter grow up), then I guess it's up to you.

Remember, it only takes 1/16th of a piece of bread to cause MEASURABLE damage to the villi, even in the absence of symptoms.

Share this post


Link to post
Share on other sites

Thanks for your advice! I am going to see the GI on wednesday hopefully he/she can help I have decided that I want to go gluten free anyway even if the tests are negative. We do it for my daughter anyway so Im used to it.


[b]Had very interesting symptoms as a child. Failure to thrive, lactose intollerance, vomiting, recurrent bladder infections, short stature (5ft tall)

Have family on my dads side dx celiac.

grandmother and brother symptomatic! No dx as this is recent discovery.

My symptoms returned Feb 08

Negative blood tests. 04/08

No iga deficiency test.

Gluten free 15/7/08

Daughter 17 months.

symptomatic since six months

Remarkable dietary response

Lactose intollerant

Negative blood test at nine months.Gluten free at the time for 4 weeks

Share this post


Link to post
Share on other sites