Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Only When I Over Indulge?


Krystens mummy

Recommended Posts

Krystens mummy Enthusiast

Ok so heres the thing. I have celiac disease in the family and have started displaying symptoms.

I have noticed that I only get these symptoms when I over indulge in gluten foods eg eat 2 pieces of bread at breakfast, pasts for lunch and a couple of beers etc in one day. Can I still have celiac or just intollerance to too much. My daughter is very gluten sensitive at 17 months and cant tollerate any at all. I had neg blood tests when symptoms first started but I did them fro my daughters benefit than mine cos I didn't think that my probs were related then.

When I do get sick I get sick for 3 to 5 days and this is usually every couple of weeks. I get better cos I stop eating. I get all the normal gastro symptoms minus diarrhoea plus constipation but also back pain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, from what I've read, about 30% of celiacs display no outward symptoms at all. Since there seems to be a "trigger" to Celiac, after which the damage and symptoms begin to manifest, I have little doubt that you will eventually test positive, but by then there'll be quite a bit more damage than there is now.

Tim-n-VA Contributor

The caveat first: we are all different and celiac varies greatly from individual to individual.

I was diagnosed as part of an investigation of possible causes of varying liver function tests. In retrospect, there were times over the years where I'd have stomach problems. These seem to match up with lots of gluten, breakfast with pancakes, drinking two or more wheat-beers (I was in Germany at the time), etc.

The bad part was that I didn't have enough symptoms to make me stop eating wheat (or even suspect it) but I now have cirrhosis. Despite my citing beer above, I rarely drank any alcohol more frequently than once a month and most of the time it was oinly one beer (not two or more) so my liver damage is not likely alcohol related.

ShayFL Enthusiast

Hopefully your GI appt. will go well and you can learn more. It sounds like the light bulbs are already going off.

Kaycee Collaborator

The heading to your thread caught my eye. When you mentioned over-indulging, I thought you meant the practise of eating way too much, something which I can do with such ease. But you were only referring to only eating excess in the amount of gluten.

Well I didn't really have what I considered symptoms. Okay I had a bit of diarhoea, that didn't really impact in my life, as it only happened in the mornings and that was that for the day. But I did notice over the last few years before going gluten free, that everytime I overate, as in enjoyed morning tea at work, went out for a good hearty meal, or just eating more than I usually ate. I would be sick that night with chronic diahrroea. I'm pretty sure those days I ate more gluten, but I was just thinking I had overloaded my system with too much food and it couldn't cope. It was that symptom that made me stop and think, something is not right, and maybe the diarrhoea is not normal. So I went looking for answers. no one in my immediate family had coeliac, but I'd come to the conclusion I had an intolerance to gluten, or to some other food I'd been eating everyday.

When I went gluten free after being diagnosed with coeliac those horrible days of over over indulging dissappeared, and so did the diarrhoea. I can still over-indulge in food, but I don't get the stomach issues now.

Like the previous poster said, we are all different and have different symptons.

Cathy

tom Contributor
I have noticed that I only get these symptoms when I over indulge in gluten foods ...

I may be taking this wrong, but it hints to me at the thought that having only smaller amounts will be ok.

That is false, for a celiac.

I was under this impression for a few years - that there was some amount which I could have, remain asymptomatic and not create problems.

It ended up ruining 7-8 yrs of my life & I'm still recovering from the complications.

If you have celiac, be 100% gluten-free or HIGHLY regret it later.

Good luck. :)

mftnchn Explorer

I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lizard00 Enthusiast
I agree, since you have strong family history. Otherwise you could check whether you have a wheat allergy instead of celiac. You are reporting ten days of symptoms a month, seems time to address it.

I would agree with that. My symptoms would always worsen at my grandma's house. She worked in a bakery and when we were there, we always "overindulged". At that point I was clueless to Celiac, and I was eating lasagne, cereal, sandwiches and all the desert bites in between and after every meal. (cause we were at grandma's!) By Saturday afternoon, and we always arrived Friday night, I was down with a throbbing headache and nausea. And I do mean throbbing. It was because I was eating WAAAAYYY more gluten than I was used to, and my body simply couldn't cope with all the extra, it was barely handling the little bits that I normally ate. But I only see that looking back... so, it's good that you see that now. Definitely get checked out before you really get sick.

Fiddle-Faddle Community Regular

I don't think it matters whether you have celiac or "just" gluten intolerance.

Either way, your immune system is likely being triggered to attack your intestines, Even if you only have "small amounts of gluten," you risk further damage in the form of rheumatoid arthritis, fibromyalgia, lupus, MS, and even lymphoma.

If eating gluten is so near and dear to your heart that you think it's worth risking all that (not to mention seeing your daughter grow up), then I guess it's up to you.

Remember, it only takes 1/16th of a piece of bread to cause MEASURABLE damage to the villi, even in the absence of symptoms.

Krystens mummy Enthusiast

Thanks for your advice! I am going to see the GI on wednesday hopefully he/she can help I have decided that I want to go gluten free anyway even if the tests are negative. We do it for my daughter anyway so Im used to it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.