Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Pain In Left Side When Lying Down


alisaT

Recommended Posts

alisaT Newbie

I wake up at night feeling like I can't breathe if I lay on my left side. This is what sent me to the ER in the first place prior to my celiac dignosis. I've been assured my heart is FINE. I've been gluten-free, seriously, since the fall. My Doc checked my pancreas, but blood tests came back neg. The pain is diabilatating. Has someone else had this? What has helped? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skvanover Newbie
  alisaT said:
I wake up at night feeling like I can't breathe if I lay on my left side. This is what sent me to the ER in the first place prior to my celiac dignosis. I've been assured my heart is FINE. I've been gluten-free, seriously, since the fall. My Doc checked my pancreas, but blood tests came back neg. The pain is diabilatating. Has someone else had this? What has helped? :(

Pain in my back and in my front lower left abdominon would wake me up at night it was so bad. I went through that for about a year on and off. 1 Cat Scan, 2 ultrasounds and a whole host of bloodwork eventually led me to Celiacs. Once I quit eating Gluten the pain disappeared. That day actually. That was 12 days ago and with the exception of eating some hidden gluten and experiencing some pain from that I am doing great.

SunnyDyRain Enthusiast
  alisaT said:
I wake up at night feeling like I can't breathe if I lay on my left side. This is what sent me to the ER in the first place prior to my celiac dignosis. I've been assured my heart is FINE. I've been gluten-free, seriously, since the fall. My Doc checked my pancreas, but blood tests came back neg. The pain is diabilatating. Has someone else had this? What has helped? :(

I'd ask them about your gall bladder, they might have looked at that allready, or not. That caused problems with my father's lungs from the infection of the dead gall bladder inside him.

  • 4 weeks later...
RoseTapper Newbie

It was the pain in my left side and constant anemia that drove me to see a doctor in the first place. Of course, the doctor had no idea what was wrong and didn't order the right tests. After two years, I self-diagnosed for celiac and became well again. The pain in the side took quite a while to go away, and it comes back if I get inadvertently glutened. I do remember how I was unable to sleep on my left side because of how intense the pain was.

If you are being extremely careful about avoiding gluten, this pain should go away soon. If not, I would examine whether or not you are getting a small amount of gluten in your diet.

missy'smom Collaborator

Are you on any medications? I don't have this exact problem but I was prescribed a beta-blocker for a fainting problem a month ago and since I started it I haven't been comfortable sleeping on my left and that's my usual side, plus I had tenderness in the area around or under my left shoulder blade. It's hard to describe how I felt but it was very uncomfortable and my breathing was also affected by the meds. That plus an allergic reaction to the halter monitor sticky pads ended me up with pain to the right side of my left breast which ended me up in the ER. They said that some kind of lung disease? infection? something could be relieved by putting pressure on the same spot in the back, which is what I had been doing to get relief. Lung x-ray and all heart tests turned up fine. Nobody's even acknowledged or tried to explain why I had the tenderness and difficulty sleeping on that side. Now that I have stopped the meds, it's gone.

  • 4 weeks later...
princessmandy Newbie

I had a similar problem, my whole left side from my head down would ache so bad i couldn't stand it. At night it seemed to get worse, since I've been gluten free it has seemed to go away. It came back once or twice but i think that was from hidden gluten. :( wish i could offer some more help, but i would just check for hidden gluten

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,740
    • Most Online (within 30 mins)
      7,748

    PamF
    Newest Member
    PamF
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • badastronaut
      I took my first 100 mg this morning. Let's see what happens. Still a bit nervous of messing up my other B vitamins since I don't have a B complex at the moment. Thanks for your replies Knitty Kitty!
    • knitty kitty
      No, there's no need to keep checking blood antibody levels.  The tests are meant to be used as diagnostic tools.  It can take several years for antibodies to completely disappear, if ever.   Do get checked for anemia and thyroid problems if you fail to bounce back.   I understand what it's like not to have family support.  You've got a large tribe here that believe.   Take care of yourself.  Sending hugs!  Keep us posted on your progress!
    • knitty kitty
      Do get checked for all kinds anemia, iron deficiency anemia, B12 deficiency anemia, pernicious anemia, B6 deficiency anemia.  Anemia is very common in Hashimoto's!   Anemia, Diabetes and thiamine deficiency are known causes of seronegative Celiac Disease.   You only need one gene for Celiac.  Welcome to the tribe! Keep us posted on your progress.  
    • knitty kitty
      Cyclic Vomiting Syndrome may be related to Thiamine Vitamin B1  deficiency.     Hyperemesis is a symptom of thiamine deficiency.  Thiamine deficiency symptoms can wax and wane mysteriously depending on how much thiamine is absorbed from the diet.  A twenty percent increase in dietary thiamine results in an eighty percent increase in brain function and decrease of symptoms.  Eating a diet high in carbohydrates can result in thiamine deficiency.   Many children on the Autism spectrum benefit from supplementing Thiamine.  See the research done by Dr. Derrick Lonsdale and Dr. Chandler Marrs' at the website hormonesmatter.com, or published on NIH pubmed.
    • knitty kitty
      Some Celiacs react to the dairy protein Casein the same as they would to gluten. This could explain your ongoing inflammation.   Allergies can raise your histamine levels as can processed gluten free products.  To clear histamine, certain vitamins can help, B12, Pyridoxine B6, Vitamin C, and Thiamine B1.   Optimal Vitamin D levels are between 80 and 100.  Vitamin D helps regulate the immune system.   Seems like addressing nutritional deficiencies would be beneficial to you.  Blood tests aren't accurate measurements of the stores of vitamins inside cells in the tissues and organs where they are utilized.  Blood levels of vitamins can reflect what you've eaten in the past day or two.   ...
×
×
  • Create New...