Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For A Support Group In Phila. Pa

ssight1

By ssight1
in Introduce Yourself / Share Stuff

Recommended Posts

ssight1 Newbie
ssight1
Posted

I am looking for a support group in Philadelphia, PA. I have recently found several wonderful places to shop for foods and would like to share and talk to other people with celiac disease.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jaimek Enthusiast
jaimek
Posted

There is a local support group that meets in Abington, PA a couple times a year. I joined but I do not remember the name of it. I will look into it tonight (if i remember) and get back to you. I went to one meeting when i was first diagnosed and it was very helpful.

  • 1 year later...
rutland Enthusiast
rutland
Posted

I live in Philly too and Im looking into support groups. There is one in Abington and Langhorne. I live in NE philly in the mayfair section. I found out about support groups by Googling "celiac support groups in Philadelphia" I found some listings. Ill have to look at where I left the contact numbers and get back to you.

Lauren M Explorer
Lauren M
Posted

Oooh oooh, what are the places you found to shop?? Do share!

I've always wanted to go to one of the Philly support meetings, but they always conflict with my schedule. Maybe one day!

- Lauren

rutland Enthusiast
rutland
Posted
Oooh oooh, what are the places you found to shop?? Do share!

I've always wanted to go to one of the Philly support meetings, but they always conflict with my schedule. Maybe one day!

- Lauren

There are so many places. Most are health food stores. But you can find lots at Wholefoods market in Jenkintown, theres harrys natural food store on Cottman Ave., Trader Joes in Jenkintown. Bunns health foods in Southhamton on Street Road, and theres a good health food store in Willowgrove on Moreland and 611 but I forget the name.

I havent been to a meeting yet. Im sure it will be helpful, I just dont know what to expect.

Lauren M Explorer
Lauren M
Posted
There are so many places. Most are health food stores. But you can find lots at Wholefoods market in Jenkintown, theres harrys natural food store on Cottman Ave., Trader Joes in Jenkintown. Bunns health foods in Southhamton on Street Road, and theres a good health food store in Willowgrove on Moreland and 611 but I forget the name.

I havent been to a meeting yet. Im sure it will be helpful, I just dont know what to expect.

I go to the TJs on 23rd and Market and the Whole Foods on 21st and Callowhill. Sometimes I'll trek down to the Dietary Shoppe on Ridge Ave, because they have Don Pancho wraps and Gillians rolls. Oh, and of course there is Mr. Ritts at 7th (I think?) and Passyunk. I've gotten my birthday cake from them for the past 2 years.

I guess that is a good selection to choose from, but I'm always looking for new places, and especially some better prices! I'm a poor grad student! As far as restaurants, I find the Philly area very disappointing.

- Lauren

rutland Enthusiast
rutland
Posted

Lauren,

I know what you mean about how pricey this stuff can be. I heard that the reading terminal has gluten free baked goods. Not sure about their prices though. Im trying to just eat fresh fruits and vegtables but I do love baked goods. I sometimes wonder how good they really are for you, I just get such cravings. Its comfort food I guess.

Steph

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Queen Serenity Newbie
Queen Serenity
Posted

Hi!

Maybe we should form our own support group! I'm from South Philly, and maybe we can meet in Center City somewhere. I can't get to Abington, I don't drive. I'm sure there are more of us in this area. I have been in this boat for 11 years. Maybe it's time to start something new. Whole Foods is defiantely one of the best places to shop! I go to the one at 10th and South. But, there is one awesome place I go in Springfield PA. It's called Martindale's. They have foods in their freezer that is to die for! :) It is baked cakes, cookies, pies, cinnamon buns, etc. Anyway, we should consider starting something. Even if we have our own chat room. Think about it. Let me know if it's a good idea.

Vicki

11 years and counting

mamaw Community Regular
mamaw
Posted

Hi All

I was in Philly (center city) in July for two weeks on business and I visited the reading treminal just about every other day for a walk. I did not fiind anything that was gluten-free.I asked at the bakeries and none claimed to have anything. I hope if you go you have better luck than I did.

If you check out Everybvody Eats they have alot of stores carrying their items. I already posted somewhere that Epicure in Spring Lake Heights , NJ carries alot of good gluten-free things. The owner Chris might deliver to Philly if you all could come up with a couple hundred dollars in sales for him... It's about an hour plus for him to get to Philly.I have no vested interest in any of this but I met Chris (nice guy) trying real hard to support a family with his business. He has many other good items and bakers doing gluten-free stuff.

I only ask that if you call him tell him Sande from Pa told you about him. I told him I would try to spread the news about his shoppe.........If any other ???? please pm me as I don't alway get back to the original post.

blessings

mamaw

rutland Enthusiast
rutland
Posted

Thats a good idea Vikki. I would be interested in starting our own support group. I do love center city, I always like to get out in the city when I can.

  • 2 weeks later...
Guest laydirain
Guest laydirain
Posted

you guys can count me in too for a support group. Im new to the forum & to the disease. I have been spending so much money at whole foods, trader joes, and wegmans...I am starting school at drexel center city campus in 2 weeks. Not looking forward to being hungry all day... Let me know if you decide to start a meeting.

the one that meets at abington is having a Big meeting on Oct 1. Is anyone going?

  • 1 month later...
lucaswe Newbie
lucaswe
Posted
you guys can count me in too for a support group. Im new to the forum & to the disease. I have been spending so much money at whole foods, trader joes, and wegmans...I am starting school at drexel center city campus in 2 weeks. Not looking forward to being hungry all day... Let me know if you decide to start a meeting.

the one that meets at abington is having a Big meeting on Oct 1. Is anyone going?

The Greater Phila Celiac Support Group meets the third Friday in October.

For those with cars, the South Jersey Celiac Support Group meets the first Sunday of each month

(except July & August). Our November 5th meeting will be our Thanksgiving covered dish. For more information, you can contact me at celiac9@earthlink.net

Bill

jerseyangel Proficient
jerseyangel
Posted
The Greater Phila Celiac Support Group meets the third Friday in October.

For those with cars, the South Jersey Celiac Support Group meets the first Sunday of each month

(except July & August). Our November 5th meeting will be our Thanksgiving covered dish. For more information, you can contact me at celiac9@earthlink.net

Bill

Hi Bill,

Where does the South Jersey group meet?

lucaswe Newbie
lucaswe
Posted
Hi Bill,

Where does the South Jersey group meet?

We meet in the Barry D. Brown Health Education Center at Virtua / West Jersey Hospital, Evesham Rd & Carne Blve, Voorhees, NJ. Meetings start at 2:00 p.m.

Here is our web site:

Open Original Shared Link

Bill

jerseyangel Proficient
jerseyangel
Posted
We meet in the Barry D. Brown Health Education Center at Virtua / West Jersey Hospital, Evesham Rd & Carne Blve, Voorhees, NJ. Meetings start at 2:00 p.m.

Here is our web site:

Open Original Shared Link

Bill

Thanks! :)

  • 3 weeks later...
elaine33 Apprentice
elaine33
Posted

Hi, I'm new and I'm outside of Philly. I obviously missed the October meeting but would love info about the next one.

lucaswe Newbie
lucaswe
Posted
Hi, I'm new and I'm outside of Philly. I obviously missed the October meeting but would love info about the next one.

Hi Elaine,

Our November meeting will be our "Thanksgiving" cover dish. You don't need to worry about

bringing something as there is always plenty of food. Our members are supposed to bring

the recipe for items that they make so that individuals with multiple sensitivities know what

they can eat. It will be on Sunday, Nov. 5 at 2 pm.

We meet at the Barry D. Brown Health Education Center at Virtua / West Jersey Hospital,

Carne Blvd, Voorhees New Jersey.

Bill Lucas, Burlington, NJ U.S.A.

lucaswe@earthlink.net

Chairman of CSA Southern New Jersey Chapter # 9;

Open Original Shared Link

elaine33 Apprentice
elaine33
Posted
Hi Elaine,

Our November meeting will be our "Thanksgiving" cover dish. You don't need to worry about

bringing something as there is always plenty of food. Our members are supposed to bring

the recipe for items that they make so that individuals with multiple sensitivities know what

they can eat. It will be on Sunday, Nov. 5 at 2 pm.

We meet at the Barry D. Brown Health Education Center at Virtua / West Jersey Hospital,

Carne Blvd, Voorhees New Jersey.

Bill Lucas, Burlington, NJ U.S.A.

lucaswe@earthlink.net

Chairman of CSA Southern New Jersey Chapter # 9;

Open Original Shared Link

Thanks Bill, I don't think tomorrow I will be able to make it possibly the cookie exchange. How long do meetings go? I teach Sunday school and then have church after so Sundays are a bit rough for me for doing things.

lucaswe Newbie
lucaswe
Posted
Thanks Bill, I don't think tomorrow I will be able to make it possibly the cookie exchange. How long do meetings go? I teach Sunday school and then have church after so Sundays are a bit rough for me for doing things.

Our meetings run from 2 thru 4.

  • 1 year later...
skinnyasparagus Apprentice
skinnyasparagus
Posted

I realize this thread is kind of old but I was wondering if some celiacs in the Philadelphia area would like to have a get together, a gluten-free picnic, or something of the sort now that summer is approaching?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    2. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    3. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    4. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
    5. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Thanks for your input.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,069
    • Most Online (within 30 mins)
      7,748
    danichristine
    Newest Member
    danichristine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.