Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

8 Month Old Tested...gi Thinks Possible Cd

stephanie23

Recommended Posts

stephanie23 Newbie
stephanie23
Posted

I posted a while back about my son (who has down syndrome and now 8 months) and his reactions to gluten. He went to the GI last monday. They are thinking it could be possible celiac. Though they said he didn't look like a typical celiac child, but wouldn't considering i've had him gluten free (which he had to be because of gluten landing him hospitalized). We could not do endospy due to that, so we went with the gene test. My question is...once we get the gene test back where to we go from there (assuming he has at least one of the genes)? Am i correct that even with one of the genes, it still isn't 100% that he has celiac disease? Any advise would be greatly appreciated! We still won't know for another 2 weeks...ugh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krgg106 Newbie
krgg106
Posted

I sure would be interested to see what others have to say about this too. I would like to have both my kids DNA tested for celiac, but I am under the impression that the DNA results will only tell you if he has the gene for celiac. It does not necessarily mean that the celiac is "active". Therefore the person would still have to be tested with blood tests throughout their life, if they show symptoms for celiac. ?????

Kris

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,881
    • Most Online (within 30 mins)
      7,748
    Lizzy12
    Newest Member
    Lizzy12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • LovintheGFlife
      Traveling gluten-free in Ireland

      By LovintheGFlife · Posted

      Of all the countries I have visited in Europe, Asia, and the Americas, I have found eating out in Ireland to be the safest for celiacs. Most restaurants have all allergens (up to 14 different ones) identified on their menus, including wheat and gluten. I have found staff at restaurants to be very knowledgeable regarding gluten and cross-contamination compared to most other countries. Restaurant staff (including management) in Ireland even tried dissuading me from eating some items labeled 'gluten-free' on the menu, fearing that there could be risk of minuscule cross-contamination. Many of the hotels have fresh baked gluten-free breads, pastries, and cakes at their breakfast buffet, something unheard of in most U.S hotels. These are clearly labeled and well separated from gluten-containing items. There are also quite a few gluten-free desserts to satisfy one's sweet tooth.  With everything said and done, the meats and dairy products are simply delicious and worth trying. Overall, I would give dining out in Ireland five stars for celiac safety and quality.
    • trents
      Burning Sensation in the small intestine

      By trents · Posted

      No, I meant two years ago when you had your most recent upper GI scope.
    • pilber309
      Burning Sensation in the small intestine

      By pilber309 · Posted

      yes it was very notable during the pre diagnosis of coeliacs in fact it was all the time.
    • trents
      Burning Sensation in the small intestine

      By trents · Posted

      And you were experiencing this burning sensation back then?
    • Avi Salmon
      Introduction

      By Avi Salmon · Posted

      Hello everyone, I am a young adult living with both Celiac disease and achalasia. I am looking for some inspiration to start raising awareness for people with Celiac disease on instagram. Please reach out to me if you have any tips and ideas on what is important to share to the world. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.