Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Re-curring Symptoms Why?

Glutenfreekatie

Recommended Posts

Glutenfreekatie Newbie
Glutenfreekatie
Posted

Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Celiac or a gluten sensitivity has a very loud voice. When you deal with that and that voice gets quiet, sometimes you can hear other voices.

After I went gluten free, I found that I had some issues with dairy. I stopped and it went away. I was able to add it back in a few months.

Try a food journal.

Now, I find that chocolate can give me reflux, but I chance it from time to time. ;)

newceliac Enthusiast
newceliac
Posted

I feel your pain....I have been so frustrated lately. I have been gluten free since 9/07. Felt better, for the most part, after going gluten free. But it wasn't long until some of the symptoms started recurring. I was tested for dairy and found that I have casein intolerance. I have now been cfgf. I have periods where I feel really good and then all of a sudden I take a downward turn. I have been very careful about being gluten free and don't cheat and read labels, etc. With the casein intolerance, I am not always quite as diligent, but I do not intentionally eat casein products. Lately, I have been very gassy, crampy, constipated and nauseous and I am really not sure why. I am really at my wits end with all of this. It is aggravating to work so hard to avoid the foods I can't tolerate....only to continue to feel bad and constantly wrack my brain trying to figure what it is.

I am sure that I really need to keep a food diary but that just seems so difficult and time consuming. It would seem that after 10 months, I would not be developing another food intolerance.

MELINE Enthusiast
MELINE
Posted

hello

I have IBS and that gives me the symptoms you are describing, especially the heart burn feeling. Doc said I should cook all my vegetables and fruits, and that was the solution to my problem. I even cook bananas (they are already soft I mean, but even they trigger my Ibs if I eat them raw)

Meline

ravenwoodglass Mentor
ravenwoodglass
Posted

What kind of dressing are you using on your salads? While many of us are fine with gluten grain distilled vinagers many of us are not. You may want to experiment with salads with a for sure, you made it dressing using wine vinegar instead of the distilled vinagers that are in many prepared dressings. Also many if not most use soy oil now in the premade dressings. The soy oil can also be a problem for some folks.

Glutenfreekatie Newbie
Glutenfreekatie
Posted
  • Author

The dressing I used was Newman's Own Ceaser. It does contain distilled vinegar. So I will definitely eliminate that. Would you suggest eliminating the raw vegetables too or just one thing at a time?

Thanks everyone for your replies. It is nice to have somewhere to talk with people who have the same experiences. I am very frustrated with how I feel and just want to get back to feeling good again.

MyMississippi Enthusiast
MyMississippi
Posted

Do not assume that every gut issue you have is because of Celiac or gluten. The bowels are important, living, organs that can be aggravated by a host of things---- not just gluten----

How much sugar are you consuming??? How many refined carbs ?? Junk food ??? sodas ???? Are your food portions too large--- do you eat too often???? Are you eating enough natural fiber????etc. etc. etc.

Are your intestines stressed from Celiac and taking awhile to "get healthy" again ?????

There are so many variables--------- :) Your body is telling you something---- but it may take awhile to figure out just what it's saying. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

That's right. My D went away with gluten-free, but learned that xylitol gives me D. So not gluten related at all as the xylitol is a gluten free product. I checked. Ditto for the gluten free gum with xylitol. Even small amounts give me D.

eastsidegal Newbie
eastsidegal
Posted
Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Hi, you might stop drinking coffee and soda. See if it helps, ??

eastsidegal Newbie
eastsidegal
Posted
Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Hi, you might stop drinking coffee and soda. See if it helps, ??

Glutenfreekatie Newbie
Glutenfreekatie
Posted
  • Author

I have really cut down on coffee and don't usually drink soda anyway. The only junk food I really eat is corn chips sometimes. Plain ones. It is feeling a little bit better today, but it is early. Usually escalates during the day. Only eating hommade stuff that I can be sure has no gluten. I did have one cup of coffee this morning. Otherwise I get a terrible headache. Plus I have an hour drive to work!

TestyTommy Rookie
TestyTommy
Posted

Hi Katie,

What kind of corn chips are you eating? A few months ago, I realized I was reacting to Lays plain potato chips and plain corn chips -- something I never would have expected. There are threads in the food sections about chips -- there seem to be CC issues with many brands of chips, incl. Lays.

SEAliac Rookie
SEAliac
Posted
The dressing I used was Newman's Own Ceaser. It does contain distilled vinegar. So I will definitely eliminate that. Would you suggest eliminating the raw vegetables too or just one thing at a time?

Thanks everyone for your replies. It is nice to have somewhere to talk with people who have the same experiences. I am very frustrated with how I feel and just want to get back to feeling good again.

Hi! I'm new to this forum, but your question about eliminating raw vegetables resonates with me. I'm gluten-free only for about 4 1/2 months now, but maybe my experience in the last few months will help you. I cannot tolerate raw vegetables except for tomatoes that have had the skins peeled and seeds removed. Salad leaves me in agony. Canned and frozen veggies I can handle in very small quantities (an ounce or two in a day). Strained cooked sweet potatoes and butternut squash make very good soups that I can tolerate. Fresh fruits don't seem to be causing me much trouble. At this early stage in my healing, I do best with a very low fat, low fiber, dairy-free diet. I'm worried about my nutrient intake by not eating many veggies, but I prefer a more normally functioning GI tract right now. Over time I'll find more veggies that I can eat.

Good luck to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,141
    • Most Online (within 30 mins)
      7,748
    smkatin
    Newest Member
    smkatin
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.