Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cracks In The Corners Of My Mouth Brought Me Here


The-P-Lady

Recommended Posts

The-P-Lady Newbie

I have felt weird all winter long, cold, shaky, fatigued, achy, gassy, bloated. In early May my symptoms kicked into overdrive. I started missing work and headed to the doctor to be informed that I have a cyst on my gallbladder. After CBC's, Liver Panels, Ana Scans, Rheumatoid Factor, hormone workups, and inflammation panels, nothing significant showed up. A surgeon was too eager to remove my gallbladder but I insisted that I know what was behind these odd symptoms. Then about six weeks ago, the corners of my mouth started cracking. I was horrified. I have never had so much as a cold sore in my whole life! I started investigating. Long story short I ended up at this wonderful site. My family doc was at a loss, so I suggested seeing an gastro. She couldn't argue. I have my appointment in two days. I have so many of the symptoms you talk about , I couldn't ignore the information.

Ironically enough, I work in a laboratory that sends several Celiac Panels to Mayo Clinic each day, but I really didn't know much about the disease, I just knew the lab work.

Being able to read the postings over the past few weeks has been such a comfort to me. Thanks for keeping this fantastic site going. I have a feeling that I will be using this site much more in the future. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

Hello

Me too I had the corners of my mouth cracking. Awful feeling. I hope you soon find the answer to your symptoms. Don't' go gluten free before your tests, cause they may be false.

Meline

ShayFL Enthusiast

Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

HouseKat Apprentice
Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

Shay's correct, a Riboflavin deficiency will cause the cracks at the corners of your mouth (and make your eyes sensitive to light). I had them for years and wasn't able to get rid of them until I started taking a B vitamin complex supplement.

I always know when I've forgotten to take my daily multi-vitamin for a while, when I start to get a mouth crack...

Kate

Generic Apprentice

I too had problems with cracks at the corners of my mouth when I was growing up. My mom would give me vitamin B 12 or 6 or which ever one it was and it would go away. It always came back if I quit taking it. Of course since going gluten free 20 years ago I haven't had an issue.

The-P-Lady Newbie

I was very confused at first. I couldn't figure out how I could be deficient in any vitamins. I really don't eat that badly, plus I am very diligent about taking a quality high potency multi-vitamin. That is when I started to dig for more answers. I thought, "How could I possibly be deficient in any vitamins unless my body is not absorbing nutrients?".

I went to see the Gas Doc last week for my first visit. I was completely lost in a brain fog during the visit. I didn't say everything I wanted to say because I was so zoned out. I was surprised to find my blood pressure was a bit high (128/83..I am usually around 110/60) and my pulse was racing. I was too zoned out to be nervous!

The doctor really didn't say anything too specific. Although, I haven't had any blood work confirming any vitamin deficiency, I was sitting there with what I call my "clown mouth", all red and cracked, and he did say that we will start with an endoscope to see "why your body is not absorbing nutrients". That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

April in KC Apprentice
That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

I would definitely ask for the panel. Damage can be patchy, so biopsies can miss it - you need all the puzzle pieces to help put it together.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    2. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    3. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.