Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cracks In The Corners Of My Mouth Brought Me Here

The-P-Lady

Recommended Posts

The-P-Lady Newbie
The-P-Lady
Posted

I have felt weird all winter long, cold, shaky, fatigued, achy, gassy, bloated. In early May my symptoms kicked into overdrive. I started missing work and headed to the doctor to be informed that I have a cyst on my gallbladder. After CBC's, Liver Panels, Ana Scans, Rheumatoid Factor, hormone workups, and inflammation panels, nothing significant showed up. A surgeon was too eager to remove my gallbladder but I insisted that I know what was behind these odd symptoms. Then about six weeks ago, the corners of my mouth started cracking. I was horrified. I have never had so much as a cold sore in my whole life! I started investigating. Long story short I ended up at this wonderful site. My family doc was at a loss, so I suggested seeing an gastro. She couldn't argue. I have my appointment in two days. I have so many of the symptoms you talk about , I couldn't ignore the information.

Ironically enough, I work in a laboratory that sends several Celiac Panels to Mayo Clinic each day, but I really didn't know much about the disease, I just knew the lab work.

Being able to read the postings over the past few weeks has been such a comfort to me. Thanks for keeping this fantastic site going. I have a feeling that I will be using this site much more in the future. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MELINE Enthusiast
MELINE
Posted

Hello

Me too I had the corners of my mouth cracking. Awful feeling. I hope you soon find the answer to your symptoms. Don't' go gluten free before your tests, cause they may be false.

Meline

ShayFL Enthusiast
ShayFL
Posted

Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

HouseKat Apprentice
HouseKat
Posted
Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

Shay's correct, a Riboflavin deficiency will cause the cracks at the corners of your mouth (and make your eyes sensitive to light). I had them for years and wasn't able to get rid of them until I started taking a B vitamin complex supplement.

I always know when I've forgotten to take my daily multi-vitamin for a while, when I start to get a mouth crack...

Kate

Generic Apprentice
Generic
Posted

I too had problems with cracks at the corners of my mouth when I was growing up. My mom would give me vitamin B 12 or 6 or which ever one it was and it would go away. It always came back if I quit taking it. Of course since going gluten free 20 years ago I haven't had an issue.

The-P-Lady Newbie
The-P-Lady
Posted
  • Author

I was very confused at first. I couldn't figure out how I could be deficient in any vitamins. I really don't eat that badly, plus I am very diligent about taking a quality high potency multi-vitamin. That is when I started to dig for more answers. I thought, "How could I possibly be deficient in any vitamins unless my body is not absorbing nutrients?".

I went to see the Gas Doc last week for my first visit. I was completely lost in a brain fog during the visit. I didn't say everything I wanted to say because I was so zoned out. I was surprised to find my blood pressure was a bit high (128/83..I am usually around 110/60) and my pulse was racing. I was too zoned out to be nervous!

The doctor really didn't say anything too specific. Although, I haven't had any blood work confirming any vitamin deficiency, I was sitting there with what I call my "clown mouth", all red and cracked, and he did say that we will start with an endoscope to see "why your body is not absorbing nutrients". That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

April in KC Apprentice
April in KC
Posted
That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

I would definitely ask for the panel. Damage can be patchy, so biopsies can miss it - you need all the puzzle pieces to help put it together.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...