Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cracks In The Corners Of My Mouth Brought Me Here


The-P-Lady

Recommended Posts

The-P-Lady Newbie

I have felt weird all winter long, cold, shaky, fatigued, achy, gassy, bloated. In early May my symptoms kicked into overdrive. I started missing work and headed to the doctor to be informed that I have a cyst on my gallbladder. After CBC's, Liver Panels, Ana Scans, Rheumatoid Factor, hormone workups, and inflammation panels, nothing significant showed up. A surgeon was too eager to remove my gallbladder but I insisted that I know what was behind these odd symptoms. Then about six weeks ago, the corners of my mouth started cracking. I was horrified. I have never had so much as a cold sore in my whole life! I started investigating. Long story short I ended up at this wonderful site. My family doc was at a loss, so I suggested seeing an gastro. She couldn't argue. I have my appointment in two days. I have so many of the symptoms you talk about , I couldn't ignore the information.

Ironically enough, I work in a laboratory that sends several Celiac Panels to Mayo Clinic each day, but I really didn't know much about the disease, I just knew the lab work.

Being able to read the postings over the past few weeks has been such a comfort to me. Thanks for keeping this fantastic site going. I have a feeling that I will be using this site much more in the future. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

Hello

Me too I had the corners of my mouth cracking. Awful feeling. I hope you soon find the answer to your symptoms. Don't' go gluten free before your tests, cause they may be false.

Meline

ShayFL Enthusiast

Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

HouseKat Apprentice
Sounds like a B2 deficiency (Riboflavin). That should correct itself if gluten is your problem and you go gluten free. But you will want to supplement B vitamins for awhile.

Shay's correct, a Riboflavin deficiency will cause the cracks at the corners of your mouth (and make your eyes sensitive to light). I had them for years and wasn't able to get rid of them until I started taking a B vitamin complex supplement.

I always know when I've forgotten to take my daily multi-vitamin for a while, when I start to get a mouth crack...

Kate

Generic Apprentice

I too had problems with cracks at the corners of my mouth when I was growing up. My mom would give me vitamin B 12 or 6 or which ever one it was and it would go away. It always came back if I quit taking it. Of course since going gluten free 20 years ago I haven't had an issue.

The-P-Lady Newbie

I was very confused at first. I couldn't figure out how I could be deficient in any vitamins. I really don't eat that badly, plus I am very diligent about taking a quality high potency multi-vitamin. That is when I started to dig for more answers. I thought, "How could I possibly be deficient in any vitamins unless my body is not absorbing nutrients?".

I went to see the Gas Doc last week for my first visit. I was completely lost in a brain fog during the visit. I didn't say everything I wanted to say because I was so zoned out. I was surprised to find my blood pressure was a bit high (128/83..I am usually around 110/60) and my pulse was racing. I was too zoned out to be nervous!

The doctor really didn't say anything too specific. Although, I haven't had any blood work confirming any vitamin deficiency, I was sitting there with what I call my "clown mouth", all red and cracked, and he did say that we will start with an endoscope to see "why your body is not absorbing nutrients". That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

April in KC Apprentice
That is July 29th. Do I insist on the Celiac Panel blood work no matter what?

I would definitely ask for the panel. Damage can be patchy, so biopsies can miss it - you need all the puzzle pieces to help put it together.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

    2. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.