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purple

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purple Community Regular

I have only been a member here for a little over 2 months. I have learned a life time of things in that short space of time. I want to say thank you to each and every one of you for taking the time to reply to everybody. You all have helped each one of us. The "old timers" you have learned so much the hard way and have shared it with everyone else and saved us so much time and misery because of what you had to go through. The "newbies" you are so precious and so willing to learn. You keep eveyone learning, humble and full of compassion. You "hot dogs" are in between and willing to share your trials and errors and are always willing to help anyone that asks. I and my family have been blessed by all of you and so has thousands of people. Not a moment of your time posting has been wasted...it has helped someone, somewhere, at sometime and it will continue. May God bless all of you!


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mommida Enthusiast

Wow, that was incredibly sweet! :D

I wish every person I meet could be half as nice!

It's funny how getting diagnosed turns your life upside down. Every day life changes, even what toothpaste to brush your teeth with! You can find the worst in people/family you thought were your friends. You have to turn to strangers on a chat room for help. I may never meet the majority of people I've chatted with here, I have met a few in person. I am amazed at what a kind considerate group of exceptional people chat here. There have been some moments of "kinda craaazy", but the atmosphere clears. I swear it must have something to do with the moon phases. :rolleyes:

jerseyangel Proficient

Lovely thoughts :D

I meant to comment on this before the board went down--glad it didn't get lost in the shuffle. Yes, we have quite the wonderful, supportive group here and I also feel very fortunate to be a part of it. :)

Ridgewalker Contributor
Lovely thoughts :D

I meant to comment on this before the board went down--glad it didn't get lost in the shuffle. Yes, we have quite the wonderful, supportive group here and I also feel very fortunate to be a part of it. :)

Me too! :wub:

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      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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