Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank God, They Found My Problem At Last!


celiac3270

Recommended Posts

celiac3270 Collaborator

I am so happy! Yesterday, Feb. 10, I was at the hospital for an upper gi and small bowel follow through. Since I'm still getting sick, despite a small intestine that has been healed for months, he wanted to see if there was a structural problem. Basically, they took photos and looked at my intestines. Then they told me to drink this white liquid that tasted like chalk--disgusting--called barium. They had to wait for it to go through my system, so I walked for about four hours, trying to get it to go through my system. They took x-rays every 30 minutes--they started at 9:00 and I wasn't out of the hospital till about 2:00. When the stuff got through me, they took more x-rays. It sounded like there was a problem since the two radiologists kept questioning where something was or where it led to with my intestines.

The doctor called my mom today: I have malrotation of the intestines. Basically, when I feel stomach pains, it's that my intestines are twisting into a corkscrew and nothing can get through. After awhile, they twist back. Next Tuesday, Feb. 15th, I'm going in for the "surgery"--where they make a small incision at my belly button and do something to correct it.

I'm just so happy that they've found it. My 1 yr. anniversary of diagnosis will be the 18th--and I should be healthy by then! The doctor said I'll feel the results immediately.

I just wanted to share the news and thank everyone who tried to help me find my problem. It's been so long since I've felt healthy!

-celiac3270


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

celiac3270-That is so great that they found that!! :D I had that done before to and had to drink all that chalk like stuff. At least they flavored it but it was still pretty nasty. I hope that makes you feel better when you have the surgery done...I'm so happy for you! :D Good luck

stef-the-kicking-cuty Enthusiast

Hey celiac3270, that is so awesome. I'm so happy for you :D. Keep us informed about the outgoing of the "surgery". In germany we press our thumbs to wish you good luck.

:P Now i have to figure out how to make my bread until next tuesday with pressed thumbs :P

Hugs, Stef

MySuicidalTurtle Enthusiast

"The doctor said I'll feel the results immediately." Very wonderful, celiac3270!

Canadian Karen Community Regular

Oh celiac3270, I am soooo happy for you!! That is amazing news!!! You must be on Cloud 9....... finally an answer......

I will be keeping you in my prayers for the "surgery" and pray that you will finally have some relief!!!! I can almost feel your joy over the computer!!!

Have a wonderful day!

celiac3270 Collaborator

Hi again,

More news. First, they've changed it from Tuesday to Monday. Don't have a time yet. Also, I'll have to stay in the hospital for a few days--gosh, didn't realize it was that major--I thought of it kinda like an endo, but with a slight incision. I'm scared to even think of a hospital nutritionist w/ my food and all--after all, I've heard stories here about the dietician who brings you white bread and thinks it's all right since it's white, not wheat. I'd know not to eat it, but I'd be scared of contamination or hidden gluten they wouldn't check out. So I'm bringing my own food. Thank you for the well wishes :D.

I am really excited that they found it--on Cloud 9, as Karen said :) --just kinda scared about the procedure if I need to stay in the hospital for days--darn, that means I'll miss a couple days of posting...lol...I'm on multiple times a day--I'll go nuts :lol:

Guest Leidenschaft

Hey celiac3270, in dogs and horses we call that "bloat"!! :D It's often instantly fatal! :blink:

Good to hear that you've finally learned something concrete AND they can fix it! :P

Hope they don't poison you in the hospital, and that you can thoroughly enjoy your favourite gluten-free meal on your anniversary!

Good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

Oh, i'm so happy for you. That's so cool! :lol: Finally a really good happy end with all of our "scary" stories. Woohoooh! I'm sure, everything will work fine and we will think of you, while your not here. B)

Hugs, Stef

tarnalberry Community Regular

That's great they found it!!! Good luck with the surgery, and a speedy recover!

Jessica36 Newbie

celiac3270 ~ I am so happy they found out what was causing your pain! I will be looking for updates and keeping you in my thoughts next week.

BTW yep I get but what about white bread OR I am sure everyone can appreciate it, But it isn't Wheat flour, it's White Flour. <_< Yep and white flor is BLEACH wheat flour, sigh.

:wub: and Fingers Crossed!

~Jessica

Guest jhmom

celiac3270, I am very happy they found your problem and now you are on the road to GREAT health!!!!! :D We will miss you while your in the hospital!!!!

You will be in my thoughts and prayers.

Happycat Rookie

I'm sooo happy for you!! :D

Lisa

angel-jd1 Community Regular

celiac3270-

Congrats, on the diagnosis (is that proper to say when somebody has to have surgery?? ha :blink: ) I have a friend who has that condition. Take care of yourself and you will be in my prayers and thoughts!! Good luck and don't worry about things too much, the added stress isn't good for you.

-Jessica :rolleyes:

bmorrow Rookie

celiac3270,

I am very happy that the doctors found your problem. We will all be thinking of you and know that you will feel much better after you recover from the surgery! :rolleyes:

Beverly

Carriefaith Enthusiast

celiac3270

I am so happy for you... Finally an answer to all your troubles.

You will feel better before you know it! I hope the surgery goes well! B)

Best of luck,

Carrie

FaithInScienceToo Contributor

Hi celiac3270,

Don't know if you've had surgery before, but I sure have...many times.

My best advice: As they put you under, sing your favorite song to yourself in your head, and think of your favorite person...you should wake feeling happy :)

Best wishes for a very speedy recovery,

Gina

mommida Enthusiast

I am so glad to know my favorite poster is going to feel better soon!

I will be saying prayers and thinking of you.

Good Luck!

Laura

mela14 Enthusiast

You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I had surgery in July 2004 for severe adhesions which were keep my intestines stuck to other organs. BM's were horrible....as there was so much pain afterwards. I feel soooooooooooo much better since having everything freed up! but.....I still have to watch my diet with respect to the intolerances.

Hang in there better days are coming!

celiac3270 Collaborator
You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I am getting ready--and bringing many gluten-free foods in case I they try to give me white bread and saltines and I decide that I can't trust their food.

I will post when I get out--which will be Wed. or Thurs., I think.

And I know about the gluten-free diet--I'm just thrilled cause this should be the end of my symptoms.

Canadian Karen Community Regular

celiac3270,

I know you are probably already in bed getting a good rest for tomorrow but I wanted to wish you luck and send you healthy vibes..... You will do fine tomorrow and I will be thinking about you all day tomorrow!! A new world is opening up for you!!!!

Good Luck!!!!

Karen

stef-the-kicking-cuty Enthusiast

Hi celiac3270,

I just thought about you. Positive energy from me also. And get well soon.

Hugs, Stef

MySuicidalTurtle Enthusiast

I have ben thinking about celiac3270 lots today.

I hope he didn't forget his walkmen!

stef-the-kicking-cuty Enthusiast

Yeah, I really hope, everything is alright. He's a good kid!

Maggie1956 Rookie

celiac3270, I'm so pleased to hear you finally have an answer to your problems. Try not to worry about your hospital stay. We'll all be thinking of you.

Let us all know the next exciting chapter when you can.

Prayers being said for you... :wub:

Maggie1956 Rookie

:lol: I just realised that celiac3270's surgery is probably all over by now.

It's going to be good to get that update when he gets home!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,313
    • Most Online (within 30 mins)
      7,748

    Jan Surprise
    Newest Member
    Jan Surprise
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
    • knitty kitty
      @Dora77, You shouldn't worry about getting glutened through your skin.  You would have to touch a gluten infested doorknob and then put your hand in your mouth.   I'd be more concerned with your mom's heating up gluten bread in the oven and boiling gluten noodles.  These methods cause particles of gluten to become airborne which would then enter your nose and be swallowed, going into your digestive tract.  I have to avoid the bakery aisle at the grocery store for this reason.  An M95 mask helps. If you get nutritional deficiencies corrected, your immune system will calm down and be less reactive to gluten expose.  Vitamin D helps regulate the immune system.  Thiamine and Niacin help make digestive enzymes which would help digest any accidental gluten exposure.  Thiamine helps Mast cells not to release histamine, an inflammatory agent released as part of the reaction to gluten, and also a neurotransmitter that causes alertness and anxiety, and the flight or fight response.  Pyridoxine will help improve the OCD.  Remember your brain is part of the body.  Vitamin deficiencies affect your brain and mental health as well as the rest of your body.  
    • Jacki Espo
      I do not have evidence other than anecdotal but I am certain when I have gotten these it's the result of eating gluten (back when I did).  I don't get them now that I don't eat gluten. 
    • Dora77
      What really bothers me is if worrying about getting cc‘d from touching the same door knob as others touched is valid. Seems like an extremely unlikely way to get glutened but i read people saying that.    If thats true then theres realistically zero chance i dont get cc‘d in a non gluten-free household unless i Cook Everything myself and wash my hands multiple times in between and store all of my stuff separately
    • trents
      Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
×
×
  • Create New...