Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Start gluten-free


Gutbomb

Recommended Posts

Gutbomb Rookie

You just stop eating gluten right...I know. But then you have your cross contamination, people talking about make up and shampoo. It is so daunting. How did you start?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katsby Apprentice

I replaced my toothbrush and made sure my toothpaste was safe, checked my lotions, etc. I made sure I had at least 1 saucepan and 1 skillet to start with that were purely for gluten free. I have my own plastic spoons and my own bread/baking pans and cutting board. I never owned a toaster so I didn't have to replace that, but you may have to. Just don't let it overwhelm you.

Gutbomb Rookie

WHy do make up and lotions matterif you don't digest them?

Lisa Mentor

Keep everything simple. Meat, seafood, potatoes, rice, fresh veggies and fruit. Stay away from processed food for a while and limit your seasonings to salt and pepper. Later, you will be able to add addition things when you learn more about what to look for in ingredients.

Scratched pots and pans should be replaced and a shared toaster won't work (gluten crumbs and such). The reason behind this is that gluten can hide everywhere and it would not be wise to risk cross contamination with your cookware. Other cookware can be cleaned well. New wooded spoons and cutting board would be a wise choice.

Some shampoos, lipsticks and lotions can contain gluten. Gluten needs to be ingested to cause a reaction, but so can lotions on your hands or face and lipstick. Some people with DH can react to topical gluten.

There is a lot to learn, but it does get easier.

purple Community Regular

Don't eat out until you learn all the safe places and items you can eat, pack food/snacks, make a trip to the dollar store, wash your hands before eating every time, study...study...study, make notes, take notes to the store, look for labeled gluten-free items until you learn what the labels actually say, when in doubt-don't eat it, look at the foods you can eat rather than the foods you can't eat, freeze mini meals and entrees for emergencies, don't go for junk food b/c there is no nutrition, think of it has a healthy way to eat b/c before, you were getting sick and who knows where that road was taking your body???

Gutbomb Rookie

How soon before I know that it is working? How soon before anxiety lessens or is gone?

Beth in NC Contributor

Amanda, I'm not quite two weeks into my new diet and I can already tell a difference in how I feel. I will say that the first few days after diagnosis I was a panic attack waiting to happen! My anxiety level was sky high and it wasn't because my meds weren't working. I was grieving the loss of how I loved to eat, of the easy lifestyle that was soon to get much more difficult. If you are diligent, you may see results pretty quickly. I could feel my energy level rising after only a few days, my chronic constipation no longer required massive amounts of supplements to "get going" and my pain lessened. It didn't go away, but it lessened. Some things I wasn't even aware had improved until I got glutened a week later. Areas were hurting that I didn't realize had stopped!

It's all worth it. Really, it is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gutbomb Rookie

So I think I am totally gluten free today. I am sure I am not but hey. Almost had a freak out on the coffee stand girl when she used a spatula to scoop the splenda foam off my Kona. Thought I couldn't go wrong with a cup of kona with 4 splenda.

Anyhoo...LOL

Beth in NC Contributor

I can't remember if this was suggested or not, but keep a food diary, right down to the brand name. I'm also keeping a journal that briefly states my symptoms, or lack of them, each day as well. It will help you pinpoint problem areas.

Gutbomb Rookie
I can't remember if this was suggested or not, but keep a food diary, right down to the brand name. I'm also keeping a journal that briefly states my symptoms, or lack of them, each day as well. It will help you pinpoint problem areas.

I keep track of everything on a diet website called sparkpeople.com. It is meant to keep track of calories, fat and carbs but it works for this as well. They also have a few gluten free groups there to talk with. I can also print out my journals if I need to take them with me anywhere.

Called my doctor and I won't have the test results for like a week so I probably won't know until Monday or so. I don't know why the tech told me the next day.

frec Contributor

I noticed you are from Oregon? You probably have access to Whole Foods, New Seasons, or Trader Joe's. Trader Joe's has my favorite rice bread, especially good for toast. If you are also off dairy they have the best non-dairy prices and lots of choices. They have gluten free frozen waffles and pancakes too. Whole Foods and New Seasons are wonderful but pricier.

If you are in the Portland area, Corbett's Fish House is gluten free.

Definitely carry snacks with you. I think the hardest part of being gluten free is getting hungry away from home. Finding a quick something can be difficult and fast food is pretty much impossible.

Once things settle down as far as shopping and digestion, consider taking some sort of calcium/magnesium supplement, preferably with vitamin D3. Celiacs are at high risk for osteoporosis.

I was really surprised how many things improved when I went on this diet. Some of them were problems I had no idea had been caused by gluten.

Gutbomb Rookie

I already take a buttload of vitamins. Luckily they are all gluten free. I take a good multi, vitamin d with calcium, and omega 3.

I am in Southern Oregon and have no whole foods or trader joes. We have a local place called Food 4 less and they have a huge health foods section. We also have a Fred Myers, Safeway, Albertson, Super Walmart and Winco.

Nothing new today. I am still really tired. Doctor refilled my hycosamine so I have that for emergencies. I hate taking it because it really dries me out, literally.

gfpaperdoll Rookie

unless you have diabetes - I would ditch the splenda & use honey instead.

spenda is totally not good for anyone. When you get your diet adjusted & do not eat the things that you are intolerant to - you will lose weight. Please do not be using the artificial sweetners - I do not care what any company says etc. so, if someone wants to say that it is proven safe, go ahead. it is MY opnion that it is not.

lindajeaninsc Newbie

Nothing new today. I am still really tired. Doctor refilled my hycosamine so I have that for emergencies. I hate taking it because it really dries me out, literally.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.