Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been Gluten Free For 1 Week, But Have Not Gotten Blood Tests Or Biopsy Done Yet...what Should I Do?


Saladin

Recommended Posts

Saladin Newbie

Hi everyone,

I've had diarrhea for as long as I can remember...

For a few days, I was eating a lot of wheat products and I noticed that my symptoms (especially bloating) became unbearable. I experimented a little bit and found a definite link with wheat.

I removed wheat from my diet, and just to be safe, I've eliminated gluten as well. I still have bowel movements about 6+ times per day, although now my stools are well-formed, which wasn't the case before I went gluten/wheat-free.

I'm trying to get a GI appointment sometime in the week. I've been gluten free for a week...if I got my blood test done, would it come back negative since it's one week? Would I really have to reintroduce wheat/gluten into my diet again? I REALLY don't want to do that, because I have an anal fissure due to all my diarrhea...the fissure healed, but I am worried that if I go back on wheat/gluten, then I will have crazy diarrhea and end up opening up my fissure again.

So what should I do? Again, it's only been 1 week since I've been gluten free. Would the blood tests be positive still, and do I really need to reintroduce gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

If your test number would have been sky high a week ago, they would likely still be positive. If they weren't, they might end up being false negatives, even if they would have been positive a week ago.

If you want a biopsy done, again, unless you can have it done in a week or so, you don't need to bother unless you start eating gluten again. It would still be accurate for a couple of weeks, your villi usually don't heal that fast.

Really, you have an answer. If you don't want to go back on gluten for tests, you might have to be happy with a self-diagnosis. If you want an official diagnosis, you may have to go back to eating gluten, unless you can have the testing done right away (which is possible with the blood test, but not likely with a biopsy).

Saladin Newbie
If your test number would have been sky high a week ago, they would likely still be positive. If they weren't, they might end up being false negatives, even if they would have been positive a week ago.

If you want a biopsy done, again, unless you can have it done in a week or so, you don't need to bother unless you start eating gluten again. It would still be accurate for a couple of weeks, your villi usually don't heal that fast.

Really, you have an answer. If you don't want to go back on gluten for tests, you might have to be happy with a self-diagnosis. If you want an official diagnosis, you may have to go back to eating gluten, unless you can have the testing done right away (which is possible with the blood test, but not likely with a biopsy).

Thank you for your speedy reply.

white ridges Newbie
Hi everyone,

I've had diarrhea for as long as I can remember...

For a few days, I was eating a lot of wheat products and I noticed that my symptoms (especially bloating) became unbearable. I experimented a little bit and found a definite link with wheat.

I removed wheat from my diet, and just to be safe, I've eliminated gluten as well. I still have bowel movements about 6+ times per day, although now my stools are well-formed, which wasn't the case before I went gluten/wheat-free.

I'm trying to get a GI appointment sometime in the week. I've been gluten free for a week...if I got my blood test done, would it come back negative since it's one week? Would I really have to reintroduce wheat/gluten into my diet again? I REALLY don't want to do that, because I have an anal fissure due to all my diarrhea...the fissure healed, but I am worried that if I go back on wheat/gluten, then I will have crazy diarrhea and end up opening up my fissure again.

So what should I do? Again, it's only been 1 week since I've been gluten free. Would the blood tests be positive still, and do I really need to reintroduce gluten?

white ridges Newbie

Wow, you certainly seem to have found your answer. I wouldn't want to go back to consuming gluten again for the sake of a test either. You may want to consider EnteroLab. They did a fecal test for me which is more sensitive thatn the blood test and they also tested for casein, eggs, soy and yeast. I was sensitive to all of them. Perhaps you may have reactions to more than gluten, as well, and avoiding those might improve the remainder of your symptoms. They can also do a DNA test. I have a gene from each parent predisposing me to gluten sensitivity. Reading Dr. Fine's paper on the Lab's website is very enlightening. Just go to EnteroLab.com and click on Resources and Education in the left hand column and then click on the report, 'Early Diagnosis of Gluten Sensitivity: Before the Villi are Gone'. Good Health to YOU.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.