Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Surreptitious gluten-free Dining


Voix

Recommended Posts

Voix Rookie

I was diagnosed a few months ago and am still developing my finesse with this illness and lifestyle.

My original goal was to make the transition at home to gluten-free dining, and then find several restaurants/dishes around town that are safe, and then finally to know enough so that I don't have to explain myself and my requirements to the waiter every time and in front of my companion.

Is that ultimate goal realistic? I am beginning to think that I will have to explain every time I order something in a restaurant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Basically your plan is good and realistic but unfortunately you will have to bring it up, at the very least so that they can avoid cross-contamination. You really need to advocate for yourself everytime. Dining cards can help as can going through the manager. You can talk with the manager away from the table if you need a little more privacy.

kenlove Rising Star

You really do have to explain each time, Even on airplanes. One flight attendant felt sorry for me and stuck a bagel on top of my "gluten free salad" which rendered it inedible. Even in health food stores with cafe's, they often don't understand and the risk for cross contamination is very high.

Good luck

ken

I was diagnosed a few months ago and am still developing my finesse with this illness and lifestyle.

My original goal was to make the transition at home to gluten-free dining, and then find several restaurants/dishes around town that are safe, and then finally to know enough so that I don't have to explain myself and my requirements to the waiter every time and in front of my companion.

Is that ultimate goal realistic? I am beginning to think that I will have to explain every time I order something in a restaurant.

wockandwoll Newbie

I agree. I went to Applebee's for my birthday (a place my town has where the manager is actually aware of Celiac) and they were VERY accomodating. I ordered the Fiesta Chicken (no tortilla strips) and they brought everything out separate just to be safe. Sauce in a separate bowl, cheese separate, pico de gallo, rice, etc. My waiter did, however, put croutons on my salad, thereby rendering it inedible. He fixed it once he realized what I did, but waitstaff can get busy and fall into habit (like putting croutons on a salad), so regardless, I would always say something.

lovegrov Collaborator

Same opinion, you really MUST tell your server every time. And ask that the server pass it along to the kitchen.

richard

samcarter Contributor

Well, I admit that I am not very good at this yet. :ph34r: We only go to one particular restaurant, once a week, for brunch. I have looked at the menu online and so far have ordered an entree that had no outward signs of gluten in it (no bread, croutons, pasta, et cetera). Last time I had a delicious salad and felt great all day. Still, the mashed potatoes the week before could have had gluten in them. The shoestring potatoes on my salad could have been fried in oil used for breaded items. Although we go there as soon as the restaurant is open for brunch, and the kitchen would be *in theory* cleaned and new, I know I'm risking cross-contamination.

As I work my way towards a definitive diagnosis, I will take dining cards with me and talk to the server, OR call the day ahead of time to speak to the manager or chefs so I know exactly what I can and can't have. Right now I'm not sensitive to tiny amounts, but I will be as I become more gluten free.

I would say, do as others say, not as I'm doing right now! talk to your servers, call the restaurants.

missy'smom Collaborator
Well, I admit that I am not very good at this yet. :ph34r: We only go to one particular restaurant, once a week, for brunch. I have looked at the menu online and so far have ordered an entree that had no outward signs of gluten in it (no bread, croutons, pasta, et cetera). Last time I had a delicious salad and felt great all day. Still, the mashed potatoes the week before could have had gluten in them. The shoestring potatoes on my salad could have been fried in oil used for breaded items. Although we go there as soon as the restaurant is open for brunch, and the kitchen would be *in theory* cleaned and new, I know I'm risking cross-contamination.

As I work my way towards a definitive diagnosis, I will take dining cards with me and talk to the server, OR call the day ahead of time to speak to the manager or chefs so I know exactly what I can and can't have. Right now I'm not sensitive to tiny amounts, but I will be as I become more gluten free.

I would say, do as others say, not as I'm doing right now! talk to your servers, call the restaurants.

I can't say what standard policy is for most places but I worked in a grocery store deli in high school and those fryers are a real pain to clean and drain. Ours were drained and new oil added only once a week I think and I don't know when they were really cleaned. I can't imagine that anywhere cleans and drains them everyday. Even if they were cleaned, they can't get rid of all traces of gluten.

You can sometimes e-mail places in advance too. I recently did this because I plan to travel to another nearby community(that I'm unfamiliar with) once a week and was looking for places to get a safe meal. I looked up restaurants on mapquest and some had websites and menus posted so I picked out places and things that I thought might work and emailed them(the local location-not corporate in this case) with my questions. I figure that way they could have a little time to research things a bit and get back to me. It went well. And if it works out I'll be a regular patron, along with my family,so our efforts benefit us both and I let them know that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Voix Rookie

How do you handle it when you are eating out in a work context, on a date or with someone new, or with family, friend, or acquaintance that is skeptical or judgmental?

(I feel like I know how to handle the skeptic, but curious how others handle it.)

laurelfla Enthusiast

Hi, there!

I pretty much only go to places with gluten free menus, if I can help it. When the topic comes up i just explain briefly what I have to avoid. If the other person downplays it, or says that they know of someone with a similar allergy, I just say that it goes way beyond an allergy and that if I did not follow the diet, in the short run, I would have flu-like symptoms, and in the long run, my risk for cancer would go up. Then I try to change the topic. I find that having the gluten free menu to show someone who's not familiar with the diet is helpful in explaining.

The annoying part is feeling like you can't ever eat out without dealing with this topic! Inevitably, even with people who know, it comes up. :rolleyes:

missy'smom Collaborator
How do you handle it when you are eating out in a work context, on a date or with someone new, or with family, friend, or acquaintance that is skeptical or judgmental?

(I feel like I know how to handle the skeptic, but curious how others handle it.)

These are the situations that I find myself in where food is served/shared: tea time after church,bible study meals, church potlucks, institutional holiday meals with a senior parent, lunches out with friends/ church members who are hosting a visitor. In all these situations I brought my own food or if I had time, I brought something or more than one dish to share. It's not the only way to handle it but that's what I chose. In the restaurants, they were places that I was unfamiliar with and run by people who were not native English speakers so communication would have been difficult and the whole group of about 10 people was ordering so I didn't feel bad. Being with the group was more important than what we ate. I simply told the waitress that I had multiple food allergies.

I did this once in an American restaurant too when I was traveling with my two family members. Now I know how to plan ahead, am more familiar with the diet, know the pitfalls of eating out and am confident in advocating for myself.

At the holiday meal, I got a few looks, especially because my sister was visiting and we both brought plates, but didn't explain as we weren't asked. I made similar food to what was served. We used Rubbermaid divided plates with lids. The time spent with the family member was more important than the food. In some cases you can work with the caterer but not in this case for me.

For the most part, I don't explain unless I'm asked. Most people aren't interested and don't get it. Sometimes the more we say or bring attention to it the more defensive others get( I have a relative that's this way)It doesn't matter what others think, having a safe meal is what matters. I used to feel more embarrased but, I really don't care anymore. I have to do what I have to do to take care of myself. I've found that people get used to it in time. It may take a year of seeing you bring your own stuff. After a year of seeing me bring my own snacks for after church tea(I used to bring things to share but I've been busy), one lady has started bringing fruit often and once brought some chips that she specifically chose because she figured out on her own that they were safe, and luckily they were! In one of the groups situations in the restaurant, one of the ladies, who was new to the group, let out a big laugh and made a comment when she saw that I brought my own food. I gently said that I had a disease(in her language) and without explanation, and that was the end of it. No hard feelings. She just couldn't imagine why anyone would bring their own food and I understand that.

Voix Rookie

Thanks for the information. That helps. I guess I do all that already. I don't want to call attention to it, but it looks like when eating out I will have to, unless I can bring my own meals, which isn't all that fun, but I will get used to it.

babysteps Contributor
How do you handle it when you are eating out in a work context, on a date or with someone new, or with family, friend, or acquaintance that is skeptical or judgmental?

(I feel like I know how to handle the skeptic, but curious how others handle it.)

With skeptics I go for a combination of education and sovereignty (as in "it's my body and this is what I know it requires"). Education as in clarifying that celiac is a disease, not a diet. Firm but unemotional tone helps. Acknowledge it takes effort to be gluten-free but isn't it wonderful that no drugs are required, and that with time the effort becomes second nature.

I think most skeptics are people who would challenge their friends/relatives on a wide range of topics, some are new to celiac but most would launch into judgment on any topic (example: "you're going where on vacation?, I heard it's just awful there").

Voix Rookie

Perceptive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.