Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Celiacs Start Feeling Better


jjtj

Recommended Posts

jjtj Rookie

hello,

My Mom was recently diagnosed with Celiac. She has been gluten-free Diet for almost 2 months now. She is struggling with the diet, but she does not feel any better.

She feels the same way. No improvements. She has the pain 24/7 and also she started to have pain in a right leg along with her hip and lower back.

The doctors are not 100% sure she has the disease, but told my mom that she had some damage and inflammation in the intestines.

Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight.

I will like to know what is the pain like and when people start improving.

My Mom don't think she does has celiac because she does not see any improvements.

Please Help.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It took me over 3 months to see real improvement.

"Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight."

This is what typically happens to Celiacs (me included). When you remove the poison and your body can start to digest again, it makes you HUNGRY to get the nutrition it has been lacking. Once the nutrients have a chance to start getting to the cells, healing will begin and she will start to feel better.

2 months is not long enough.

PLUS: Certain she is 100% gluten-free??? Did she replace all of her old scratched pans, toaster, cutting boards? Cleaned everything to remove any old wheat flour dust? Made sure her toothpaste, creams, lip care, cosmetics are all gluten-free? Making sure no one else in her home is cross contaminating things like butter and mayonaise?

Not to mention, most celiacs MUST cut out dairy for at least 2 - 3 months until they heal. For many they get the same symptoms from dairy as gluten in the early months. It is the tips of the villi that digest milk/dairy.

powerbraid Rookie

I felt amazingly better right away initially after going gluten-free. However, then I started feeling worse. I think it may have just been my body changing and adjusting. I had to go off soy and dairy. I am back to eating yogurt again now, and doing well with that. It's been almost exactly 1 year after my diagnosis. All I can say is that it is definitely a journey. Be patient. :) It is so easy to get frustrated! I still have many days where I do not feel well and get frustrated and discouraged. I have heard that, depending on how badly the intestines were damaged, it can take up to 2 years to heal.

MELINE Enthusiast
"Yesterday, she called me and said that she is feeling hungry al the time and she is loosing weight."

This is what typically happens to Celiacs (me included). When you remove the poison and your body can start to digest again, it makes you HUNGRY to get the nutrition it has been lacking. Once the nutrients have a chance to start getting to the cells, healing will begin and she will start to feel better.

......it is amazing......it is SO SO SO typical. Extremely hungry and losing weight (you will find many threads with that topic..) And then after almost 11 months...oops!!!! I said the magic words ..."No thanks. I am not hungry".And it was the time when my period came back normal, my hair stopped falling, my body and my stools stopped smelling awful and my energy came 100% back. Let the healing begin!!!!!

Please try to explain to your mother that sometimes improvement may take a year or even more. For me it was 3 weeks for an improvement in energy and 11 months for an amazing improvement in hormones, weight, brain, sleep, hair, nails. I know it sounds like a lot of time but it is worth it. And yes, many times I was feeling MUCH worse than before starting the diet. It happens to many of us. Feeling worse before feeling better.

Meline

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.