Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Slightly Official......


ohsotired

Recommended Posts

ohsotired Enthusiast

I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacAlli Apprentice
I've been waiting for just over two weeks for the rest of my blood work results. My original round of labs was drawn on 7/16 and those all came back "normal". The GI doc only had the TtG IgA test run, not the others.

I'm really, really glad I pushed for those additional blood tests, even though he didn't think we needed to do them "because the Ttg IgA is the most sensitive."

Today I get a phone call from the GI doc's office. The phone call I've been waiting for.

The MA tells me "It looks like you may have a slight case of celiac disease." :blink: LOL

Again, it is dreadfully obvious that this doctor has not ever dx'd a celiac patient before, nor does he seem to know much about it.

I didn't even ask her to read the numbers to me, I just asked if she would drop a copy of those results in the mail for me.

So, uh............can I join the cool kids club now? ;)

I don't know whether to say congratulations or not...haha, but I'm happy for you that you have a diagnosis=]

mirabella Apprentice

HELLO

:D Funny, I hope your not asking permission! Just join in!! Ive asked my GI dr. to put my results in the mail for me. That has been 4 weeks ago. I have a problem with the GI dr. My family dr is super nice. I believe I would of laughed if they told me that... Its like being SLIGHTLY PREGNANT. Either you are or arent. You have already been watching your gluten intake. Maybe its that more productive vein, better flow.

At least your getting somewhere.

What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

ShayFL Enthusiast

Is that like being slightly pregnant???......LOL

Welcome aboard!

ohsotired Enthusiast

Too funny that y'all mention the 'slightly pregnant' thing. I almost blurted that out on the phone to the nurse, and then when I hung up I DID say that to my husband. LOL

I forgot to tell y'all what else she said. "Go on a gluten free diet for a while and see how you feel."

Yeah, like you'll ever get me to willingly eat that stuff EVER again. No way. And I have no problem telling them where to stick it if they decide they "need" to do an endoscopy. I got what I need. ;)

Jenny (AZ via TX) Enthusiast

Crystal,

I'm so happy you pushed for the additional tests! You listened to your body and finally got the doc to listen to you. Good for you. Now you know for sure that you were on the right course to begin with.

home-based-mom Contributor
What time is it where you are? Here it is6:30pm I can never figure out this time when we post. On the post time it says 2:30pm?????? *&%$

Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mirabella Apprentice
Near the top of this page click on My Controls and then on the left click on Board Settings. Select your Time Zone and save the settings. :)

Thanks for the info.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.