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- Natalia Revelo posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Nutrient deficiencies despite normal MARSH and strict gluten-free diet
TLDR: Despite following a very strict gluten-free diet for 15 years, I have dealt with multiple physical and mental health issues for years, which improved with supplements. My gastro doesn't provide any solution on how to improve nutrient absorption because my MARSH is normal. Dear all, Sorry for the long post but I really need help. I was...- gut healing
- malabsorbtion
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- Wheatwacked replied to JulieRe's topic in Related Issues & Disorders3Oral thrush question
Has your doctor tested your vitamin D? Urine Iodine deficiency? Vitamin B12 deficiency can be a contributing factor for oral thrush, especial if you are vegan. Celiac Disease causes malabsorbtion leading to vitamin and mineral deficiencies. Zinc supplementation reduces Candida infections I know that zinc is an antiviral and have been using zinc glycomate... -
- Scott Adams replied to JulieRe's topic in Related Issues & Disorders3Oral thrush question
I'm not sure if you found what other here have posted on oral thrush, but this might be helpful: https://www.celiac.com/search/?q="Oral thrush"&quick=1&updated_after=any&sortby=relevancy -
- Scott Adams replied to TheDHhurts's topic in Dermatitis Herpetiformis35
DH persists despite meticulous efforts! Please share insights so I can stop being miserable!
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch: -
- trents replied to JulieRe's topic in Related Issues & Disorders3Oral thrush question
Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted...- 1
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By Natalia Revelo · Posted
TLDR: Despite following a very strict gluten-free diet for 15 years, I have dealt with multiple physical and mental health issues for years, which improved with supplements. My gastro doesn't provide any solution on how to improve nutrient absorption because my MARSH is normal. Dear all, Sorry for the long post but I really need help. I was diagnosed 15 years ago with very severe symptoms (weight loss, tiredness, diarrhea, fainting, hair loss, numbness in hands and feet, anxiety). Since then I have followed a very strict gluten free diet. With time I became extremely sensitive and just a few normal bread crumbs laying on the table while I eat can make me sick if I visit someone. At home my husband and child eat gluten free because I can definitely not have gluten at home. Despite physical improvements after going gluten free, my life as training as a scientist was marked by panic attacks, severe anxiety and depression while trying to obtain my PhD and working as a postdoc. 7 years ago I started to have mini burnouts, fibromyalgia-like symptoms (e.g. unbearable pain in joints and muscles) and not being able to perform at my job. 5 years ago while being pregnant my ferritin levels were practically zero and after delivering my child, my body completely collapsed. I could not walk for the first 2 years postpartum due to severe pelvic floor issues, diastasis, bladder pain and fatigue, which led to me not able to work and getting a massive burnout. Unfortunately my GP was very dismissive of all my symptoms. Eventually I was diagnosed with osteoporosis and this led me to conclude that I have been going through nutrient deficiencies for years, if not decades. With the help of an orthomolecular dietitian I started taking supplements and my pelvic floor and diastasis improved a lot (I think my body was unable to produce collagen for tissue strength) and my burnout started to improve (it seems my brain could not work due to lack of nutrients). My gastroenterologist is too busy to take me seriously, and he doesn't believe my deficiencies are real because he doesn't see it on paper (despite me having low erythrocyte counts and low ferritin). I ended up visiting a functional doctors and she could see deficiencies in magnesium, copper, omega-3, iodine, sodium and markers of inflammation and my microbiota is very imbalanced. She also found that I am allergic to milk protein and eggs and those were giving me IBS symptoms, plus there is a FODMAP group making me sick but haven't found out which. The costs of the supplements I get from the functional doctor and the tests she does are very expensive and I have to pay out of my own pocket. It's very expensive but I'm finally getting stronger and I feel like I have a completely different brain, no anxiety or depression, which is amazing after decades of feeling miserable. I convinced the gastro to check my MARSH score and while in the gastroscopy they did see scar tissue in my duodenum, the histological exam shows no damage in the MARSH score. Therefore, my gastro says I'm fine, but I'm obviously not fine. My question is if anyone has been in this situation, and how can I move forward. I suspect that the inflammation caused by milk and egg could have contributed to poor absortion. The functional doctor gave me iron infusions and my ferritine levels went up and I felt amazing, but after a few months the levels go down again. Somehow I cannot keep the iron in my body. I want to know if there is any possibility of healing my gut. The functional doctor is giving me herb supplements that heal the gut, and I tried taking glutamine but it burns my bladder (I have intersticial cystitis). I really need to go back to work, but first I need my body to have steady health and anergy. Thanks for any help! -
By Wheatwacked · Posted
Has your doctor tested your vitamin D? Urine Iodine deficiency? Vitamin B12 deficiency can be a contributing factor for oral thrush, especial if you are vegan. Celiac Disease causes malabsorbtion leading to vitamin and mineral deficiencies. Zinc supplementation reduces Candida infections I know that zinc is an antiviral and have been using zinc glycomate (Cold Eeze lozanges) since 2004 and have not gotten cold or flu since. The lozenge coats the mucous membrane with zinc, protecting the cell wall from the virus. This research paper and some others indicate that zinc also acts as an antifungal. Worth a try, Try to reduce how much food with high omega 6 that you eat to lower your omeaga 6 to 3 ratio. It helps with inflammation. Try eating foods with lots of benificial bacteria. The goal is to repopulate your gut with good guys. Assuming you do not have dermatitis herpetiformis or another reason to limit iodine, Liquid Iodine to raise your iodine to the 600 mcg a day (middle of the RDA range (150-1000mcg) to boost your immune system. Iodine has anti-fungal properties that can help kill Candida species. Your whole body will heal quicker when you have sufficient iodine and vitamin D. -
By Scott Adams · Posted
I'm not sure if you found what other here have posted on oral thrush, but this might be helpful: https://www.celiac.com/search/?q="Oral thrush"&quick=1&updated_after=any&sortby=relevancy -
By Scott Adams · Posted
If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch: -
Welcome to the forum, @JulieRe! You would do well to get checked for a candida infection of the gut. Yeast thrives on carbs so you might also look into a low carb diet. These kinds of things seem to be more common in the celiac community than in the general population. There is a growing body of evidence that the development of celiac disease is rooted in unhealthy gut biome conditions. It's good that you are getting that red spot on your tongue checked out soon. It's likely related to the thrush but I would also not rule out a neoplasm which you would certainly want to catch early.
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