Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Results Are In

SAHM2one

Recommended Posts

SAHM2one Contributor
SAHM2one
Posted

My doctors nurse just called and said that my celiac panel is negative but my IgA came back low. What does this mean? I went gluten free today and feel great, now stomach pains, no headaches, no joint pain.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

It means that because your IGA levels are low you may have a false negative.

The truest test is the diet and if your improving on it and you do not plan on having an endoscopy for diagnosis then there is no reason not to continue. Do be aware though that if you are gluten free and then later decide to challenge for a biopsy you will need to challenge for at least 3 months for any chance for the biopsy to be positive. And that challenge may make you much more ill than you were before you went on the diet.

Welcome to the board and ask any questions you may need.

lizard00 Enthusiast
lizard00
Posted
My doctors nurse just called and said that my celiac panel is negative but my IgA came back low. What does this mean? I went gluten free today and feel great, now stomach pains, no headaches, no joint pain.

Welcome to the board!!! I am IgA deficient, too. Assuming that you just went gluten-free today, if you want to be retested, do it NOW and ask them to run the IgG versions of the Celiac panel. I wish I would have known that back in Dec 07 to have been retested myself. I ended up being genetically tested in May of this year, and thankfully ended up with a wonderful GI who knew what was up.

Anyway, most GP's (if that's who you went through) know relatively little about Celiac, and chances are that they didn't run the IgG tests. It will require another blood draw, but if you are anything like me, you won't stop until you know for sure what's going on.

Otherwise, I'm glad that you already feel better. I had stomach pains and nasty headaches. Living with those everyday was absolutely horrible. I stuck with the gluten-free diet, even though I had negative blood work simply because my headaches went away.

Wish you the best!!!

SAHM2one Contributor
SAHM2one
Posted
  • Author

If they didn't do an IgG then I will go and get one today! Being gluten free yesterday and today shouldn't effect that test should it?

ShayFL Enthusiast
ShayFL
Posted

Hopefully not. But get it done ASAP!

Again, the diet is the only true diagnosis. And you are feeling better. Yeah!!

happygirl Collaborator
happygirl
Posted

Take this in with you if your doctor considers you IgA deficient.

Open Original Shared Link See "One more thing" on page 2

SAHM2one Contributor
SAHM2one
Posted
  • Author

Thanks again. I am feeling better! Still have some symptoms but I can't expect them to go away over night. I am eating without feeling sick afterwards now though! I am waiting to hear back from my doctor, I called this morning. I am not think he is going to be that helpful though, he has already said he doesn't know what is wrong with me and sent me to another specialist who blamed everything on my gastric bypass. I have a feeling I am going to have to do this on the diet alone. If it keeps working I will just have to go with it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SAHM2one Contributor
SAHM2one
Posted
  • Author

I don't know what to do. My doctor called back and they didn't run an IgG and he said he won't order it. I can call my GP and see if he will do it but he probably won't since his friend, they work for the same practice, said no. Instead they want to send me to UNC.

Thankfully I have a great Gastro doc up there so I called him and am waiting to hear what he says. Hopefully someone can help me out. If this isn't celiac disease then someone needs to come up with some ideas!

Jestgar Rising Star
Jestgar
Posted

You may never get a positive diagnosis for Celiac. Many people don't. Fortunately the choice of what to put in your mouth is yours. If you feel better without eating gluten, then don't eat it. Yes, the change-over is difficult, but once you've gotten used to it, it's just like any other carefully controlled diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    2. MichaelDG
      - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.