Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling So Sick After Going gluten-free


climbmtwhitney

Recommended Posts

climbmtwhitney Apprentice

Hello all.

O.K., so I'm completely new at this. My 10-year old daughter and I were diagnosed celiac last month -- which explains SO VERY MUCH!

Anyway, my daughter and I both felt great for about a week after going gluten-free. Then she went through withdrawl for about a week. Now she's feeling better each day. But I am NOT! I feel achy all over, headaches, terrible night sweats, really tired & cold, irritated throat, on and off grumpy, etc. It's been nearly 4 weeks since I went gluten-free. When will this end? My husband (gotta love him anyway) is really losing patience. I know I need to stick with this. I realize everyone is different, but on average, am I in for a few more weeks of this or months? Please help.

Thanks!

Sonya


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

It took me a SOLID 6 weeks to get through all that crap.....then I started feeling MUCH better!!

Hang in their sweetie....there is light at the end of the tunnel. :)

Just be mindful to avoid CC. Dont eat out and muck it up. Stay focused. Tell your husband that once you get through the poop, he will have a new and improved wife. Might even make you more frisky. ;) This might help him be more patient.

Lisa Mentor

Hi Sonya,

I would revisit your diet. Check you meds, vitamins, shampoos, makeup and lipsticks. In other words, anything that can get near or in your mouth.

Do you have a dedicated toaster just you for you and your daughter. Wooded spoons, scratched pots and pans, wooded cutting boards and colanders can be a good source for hidden gluten.

It is near impossible to begin this diet and be knowledgeable of every sneaky source. It took me many months to master the diet, and mistakes were frequent.

If you have any specific concerns, please feel free to ask.

And welcome to the Club!

climbmtwhitney Apprentice

Thanks much for the advice and hints! 6 weeks is a LONG time. Crap.

Here's another question.....If I handle, cook, prepare foods that have gluten for my other 2 children and my husband, is that cross contamination? Would that be different than using a gluten-containing hand creme for example? I did get a gluten-free toaster, cutting board, pots/pans, etc., but I'm still handling the gluten food for others. I do wash my hands a lot when I'm cooking, but should I not be handling the regular food at all? Thanks!

ShayFL Enthusiast

I wouldnt use ANY gluten containing "flours" in your house EVER. That stuff gets everywhere. Personally, I didnt want to have to always worry and feel sick, so I took my whole family gluten-free (including the dogs). There needs to be one place in the world where I can feel safe. It is my home.

Check your fingernails. Dont use teflon that has had ANY gluten foods in it. Same for cutting boards.

Amyleigh0007 Enthusiast

It is much easier to have a completely gluten free home. That's what we did after my son was dx.

Lisa Mentor

I can handle gluten, but I am always careful to wash my hands well and wipe down any counter top that is used.

I don't impose my restrictions on my husband and he is always courteous of mine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Puddy Explorer

I, too, handle gluten items with no problem. But like Momma Goose, I am very careful to wash my hands and wipe up crumbs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.