Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Will Someone Tell Me What's "normal" Following Starting A Gluten-free Diet

Sarah-0608

Recommended Posts

Sarah-0608 Newbie
Sarah-0608
Posted

Hi all...I'm Sarah and I was diagnosed via blood test (although the endoscopy was negative) 4 weeks ago. I was wondering what was a general idea of the recovery time, and what your symptoms were like, because I still feel nearly as sick as I did before starting the gluten-free diet and being only 18 I didn't think it should take that long to heal. Should I consider that this is not celiac? Or am I just messing this diet up? When am I going to be better??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

Sarah, going gluten free is just the beginning. Your body needs time to rid itself of the toxins, then it needs time to heal. You didn't get sick overnight, and you will not feel better overnight. 4 weeks really is not a long time, for some, it takes 2 yrs to heal, some, like me do not heal totally, but i was sick for more yrs that you are old, before finding out about celiac disease.

Keep eating gluten free, and soon you will feel better each day. Are you watching all vitamins for gluten, any meds...gluten hides in so many places???

Treen Bean Apprentice
Treen Bean
Posted

It took me about a year and a half to heal. Just be patient with your body. It will there.

God Bless,

Treen Bean

ravenwoodglass Mentor
ravenwoodglass
Posted

It takes time. Be sure to check all your toiletries, makeup, lotions etc and also if you have a significant other a kiss after they eat or drink gluten is off limits until they have throughly brushed their teeth. Also try to eat as simply as you can right now. Fresh whole foods rather than processed and if you live in a gluten home make sure that you and your family or roommates become real familiar with all the precautions we need to take. Hang in there and post any questions you need to or vent if you get frustrated. We have all been there.

Green Eyes Rookie
Green Eyes
Posted

Hi Sarah,

Just thought I would chime in!!! I'm kinda at a disadvantage in giving information on how to heal. I wasn't sick before diagnosis, and feel good after diagnosis. Although it has certain advantages, sometimes I don't know when I've done something wrong. It takes a good amount of gluten for me to even have a reaction.

Having said that. Pay attention to what your body is telling you. I take every mistake (glutening) as a learning experience.

Do you have the "unsafe ingredients" list? That helped me more than anything. Be sure what you are eating is gluten free. Being 18 with celiac is difficult. Hang in there it does get better.

Jennifer

mftnchn Explorer
mftnchn
Posted

Also, you might experiment with dairy free. The damage to the intestinal villi impacts production of carb digestion enzymes, in particular lactase. So milk is often a problem initially. From there, if you don't improve, you might consider other carbs (check out the SCD for an approach to that), other food intolerances because many of us are prone to them. Be aware that soy has also been shown to cause villi damage in some people, so that is often another one that is problematic. Food intolerances are common among us because the damage to the intestine leads to leaky gut and proteins getting into the bloodstream where antibodies form. It may or may not settle down in the future.

Hang in there and keep posting...there is lots of help available here.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,215
    • Most Online (within 30 mins)
      7,748
    toni tay
    Newest Member
    toni tay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.