Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Received Celiac Home Test Kit Today

dizzygrinch

Recommended Posts

dizzygrinch Enthusiast
dizzygrinch
Posted

Well, I received the Biocard Home Celiac Test today, so Im going to test myself in a bit. Not sure if anyone here is interested, but Ill post my results. If you want to research what this test is, you can go to celiachometest.com and I found it to be very informational....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

I would really love to know. That's the first time I've ever seen that website, very interesting. There's some unaccounted for variables, but assuming it's sensitive enough to pick up one drop of blood, that's essentially what dr's test for.

Keep us posted!

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

Well, I did the test tonight, and, I pretty much think I messed it up. First, as we were getting it around, my husband spilled the buffer, a little bit dropped out, then, after we put the test strip in, bumped it a couple of times... so... I did get a control test line showing, waited the alloted time frame, and according to the test strip I would be considered normal. But, Im wondering how accurate it is.. we only spilled a few drops, but, I dont know... so, I think Im just going to gluten free and forget about tests, Im so annoyed!!!! anyhow, thats how that went!! should I re do the test, or just try the diet??

mftnchn Explorer
mftnchn
Posted

That's a bummer. I have read about the test. Does it now include the part that checks for a low total IgA? If not, it will have the same problem as regular blood tests if that is also not checked. I read that the new version of the home test would include that.

I think I would be concerned that you didn't get the correct response on the test. Can you contact the company and ask?

Remember that some people get a positive biopsy with negative blood tests. Some are negative on both tests but respond positively to diet.

Also remember that all testing except Enterolab or gene tests or total IgA have to be done before going gluten free for most people to test positive.

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

Hello! I dont think it tested for total Iga, because I read on their that some people that might be IGA deficiant, will not get a correct reading. I figure that since we spilled a tiny bit, even though I really dont think it was enough to matter, that Im not going to be too concerned. Im just going to try the gluten free diet, and someday if I can afford it, I will try Enterolabs. I would demand doctors to test, but I am uninsured, and have been for nearly a year, and Im just so sick of being sick. All my syptoms sound like could be related to celiacs, so, how can the diet hurt?? hopefully, Ill just get better :)

Guhlia Rising Star
Guhlia
Posted

Dizzy, the diet won't hurt you and it will most likely give you some answers, either way. I hope you've found your answer because Celiac is so easy to control once you master the diet. Also, remember that the diet takes 100% compliance and it may take months for you to feel a difference (though some do feel better after hours, days, or weeks). For me it was instantaneous, that doesn't mean it will be for you though. There are many on here who took months to start feeling better. Good luck and don't forget that we're always here for support!

  • 4 weeks later...
dixonpete Community Regular
dixonpete
Posted

I just took the test and it showed negative. I put that up the effect of a gluten-free diet for the last 4 months. I certainly do have Celiac Disease since I get terrifically sick with diarrhea whenever I run into gluten in any form.

Just let this be a warning. Do not take the test unless you are on a gluten diet. I knew this but didn't observe it because of just how sick I get. Three years of diarrhea stopped the day after I stopped eating gluten. Good enough for me. I was just hoping that the test would put the medical stamp of approval on my illness.

Well, I received the Biocard Home Celiac Test today, so Im going to test myself in a bit. Not sure if anyone here is interested, but Ill post my results. If you want to research what this test is, you can go to celiachometest.com and I found it to be very informational....
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LuvMoosic4life Collaborator
LuvMoosic4life
Posted

If I were you I would go to the doc and get tested if you are still on gluten. even if they are negative the gluten-free diet wouldnt hurt (after the testing of course!) Its just good to know if you have celiac or not!

I wish I had the opportunity to have a doctor when I found out gluten may be the cause to my probs....now Im gluten-free and cant get tested, and kinda in a bad situation with my doc....no fun

dally099 Contributor
dally099
Posted

hi i have used this test on my kids, i have had to go back on gluten so i havnt done mine yet. i like the idea of using it for a pre screener thouugh, and only 50 bucks is rather nice, if your on gluten still i would go to your doc and get tested.

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author

hi dixonpete, I am back to being gluten free, may I ask, is that how you realized you were gluten intolerant? Im just coming to that conclusion because I get very sick, when I eat foods that contain gluten. And, since I obviousely feel better off of it, what can it hurt? Im at the point where I realize getting a diagnosis from a doctor really isnt that necessesary for me, because after 20+ yrs of being sick, and told only IBS, but never getting any help from the docs, that I just have to do whats best for me. anyway, just interested in how you were "diagnosed" thanks!

TracyB Apprentice
TracyB
Posted
Well, I received the Biocard Home Celiac Test today, so Im going to test myself in a bit. Not sure if anyone here is interested, but Ill post my results. If you want to research what this test is, you can go to celiachometest.com and I found it to be very informational....

I posted info. about that test last week -you'll have to let me know how it goes. Are you in Canada? I know that it said that it couldn't be shipped to the U.S. - hopefully that has changed...

TracyB

dizzygrinch Enthusiast
dizzygrinch
Posted
  • Author
I posted info. about that test last week -you'll have to let me know how it goes. Are you in Canada? I know that it said that it couldn't be shipped to the U.S. - hopefully that has changed...

TracyB

Hi, actually, did do the test, but it did show up negative. Although, we accidently spilled some of the solution, I think its called buffer? but, I dont know if that messed it up or not, so, I dont know if it was accurate. I am in the U.S., but, I was able to cantact the actual manufacturer, and I was given information about an organics company from Australia, that is where I got it from. It was the exact same test. were you able to do the test yourself?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,927
    • Most Online (within 30 mins)
      7,748
    Heathercb
    Newest Member
    Heathercb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      @knitty kitty I had an injury from assuming I could do work outs at the gym like I did in my 20s 😏. it didn’t work in my favor. My orthopedic doctor told me to go on 50,000IU /per week for 4-6 weeks for a boost and then do a maintenance. I took 2 and got nervous to take any more, it seemed so high to me. About 7  months later I had a blood test revealing that my Vit D levels are lower than normal. I started taking vit D supplements-4000IU./a day now. (the natural garden of life ones) I had a friend whose levels were low and she was having a mental breakdown.  My B12 levels were right in the middle of the range.     
    • knitty kitty
      Confused About Results

      By knitty kitty · Posted

      @Ginger38, Have you been checked for nutritional deficiencies, besides iron?   Celiac disease causes inflammation which results in nutritional deficiencies.   Iron needs Thiamine and the other B vitamins to make new red blood cells.   Iodine and thiamine deficiencies affect the thyroid.  The thyroid is one organ that uses lots of thiamine.   Vitamin D deficiency leads to hormonal problems, including menstrual problems.  Vitamin D needs Thiamine to activate it.   Heart palpitations and chest pain after gluten exposure can be evidence of poor digestion and a drop in available thiamine.  Consumption of any  foods high in carbohydrates can cause a drop in thiamine.  This is called high calorie malnutrition. Anxiety, numbness, tingling, acne, and brain fog are symptoms of Thiamine and the other B vitamin deficiencies.  There's eight B vitamins that all work together in concert.  They are water soluble.  They can be hard to absorb by inflamed intestines.  Vitamin A can improve acne. I suffered from all the same symptoms which only resolved with B Complex and Thiamine (in the forms TTFD and Benfotiamine) supplements, Vitamins D, A and C.  Magnesium, Thiamine and B6 Pyridoxine will get rid of the nightmares. Replenishing your vitamin and mineral stores will help heal and feel better faster.  Talk to your nutritionist and doctor about supplementing. Think about adopting the Autoimmune Protocol diet to help with SIBO and MCAS to reduce bloating and heal the intestines. @Alibu and I were just discussing diagnosis without obvious villus damage here.   This study followed people who showed no or little villi damage at first....they accrued more damage over time. Outcomes of Seropositive Patients with Marsh 1 Histology in Clinical Practice https://pmc.ncbi.nlm.nih.gov/articles/PMC4980207/ There's a move to be less reliant on endoscopy for diagnosis. Biopsy‐Sparing Diagnosis of Coeliac Disease Based on Endomysial Antibody Testing and Clinical Risk Assessment https://pmc.ncbi.nlm.nih.gov/articles/PMC12074562/
    • Ginger38
      Confused About Results

      By Ginger38 · Posted

      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @knitty kitty I see, thank you!!  Yes, basically the biopsy just said "normal villous architecture."  It didn't give any kind of Marsh score at all, but it sounds like it would be a 0 based on the biopsy report, which is why he's saying it's Latent or Potential celiac.  It's just weird because I know in Europe if I was a child, they wouldn't even do the biopsy, so how does this system make any sense?? I have had an A1c and it's normal.  I do know that I have insulin resistance, however, so there's that. Wow, thank you for all this information!!!  I have a lot of reading to do!
×
×
  • Create New...