Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constant Bm's And Pottying/ Should I Try A Diet Anyways?


mommywithplenty

Recommended Posts

mommywithplenty Newbie

Today we went to see my DD's( 3) Dr and he suggested she might have celiac disease. Her symptoms are:

never ending dirty(bm) diapers 8-10 a day but not alot at one time. She doesn't know when it's going to happen so bowel training is really impossible. Her main peditrition told me to use mineral oil but that made a huge mess and didn't help at all( she wasn't constapated!).

She was born 9.2 but didn't thrive very well and and lost wieght for a while now she's in the 20-30%.

She was constapated when she was BF but when she started eating we had the bm's all day long issue.

She was really behind on developement and didn't even sit up until 12 months.

She has this odd rash that hasn't went away in a long time only in one area. It looks somewhat like a picture I saw on the net.

Constant runny nose

We have a family history of the disease and I have a ton of allergies to foods.

How do I potty train a child that goes so often. We are just getting her blood work done should I try the diet now w/o dr's consent? Would that do more harm then good if something does come up on the test?

Tina mom to Rebecca-lynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

I'd wait for the diet until the testing is done. Be sure they have done all the blood tests recommended on this site, and have decided whether to do a biopsy or not. Once you go gluten-free that will most probably mean any further blood or biopsy tests are negative. I'm not sure at what age biopsies are done, probably someone else can post about that.

Yes, she certainly sounds very much like a celiac child from your description.

While you are waiting for the testing results, read up on the gluten-free diet. There is a steep learning curve and it will help once you are ready to try the diet.

RiceGuy Collaborator

As was stated, it's probably a good idea to start the diet after the tests, but in children that young, false negatives are all too common. So no matter what the results, it is very advisable to try the gluten-free diet. Also avoid all dairy at the same time, as dairy is often not tolerated well at first.

Just as with blood tests, biopsies are often falsely negative.

dandelionmom Enthusiast

Stay on gluten until the testing is done. Then even if the results are negative, I'd try the diet anyway (as previous posters stated the rate of false negs is high for little kids).

As for potty training, my daughter completely self trained just a few days into the diet. We struggled with pting but when we got her diagnosis, completely gave up until we go the gluten-free thing figured out. Even though we stopped trying, she did it all on her own.

bear6954 Apprentice

My son is 2 1/2 years old and I so want to be done with diapers, but I want to get his bm's better defined. I have started on the urine part and he does ok, but he does ask for a pullup for pooping. We have gotten his poops to be almost solid - at least not runny anymore. He has a hard time trying to poop on the potty, but he will tell me when he has to go. My son was having 8-12 poopy diapers a day with bad diaper rash. We have gone gluten free for 3 months and he has between 2 and 3 a day. I noticed that juice and koolaide had his poops worse. I mix his koolaide with pedialyte and it helps a lot! I use to think that people would look at me weird having a 2 1/2 or older in diapers. I no longer care. I just want my son to stay healthy. As for the testing. My sons gi dr told him to go gluten free months before his bioposy, but I made sure he ate a small portion of wheat everday. I did not want his bioposy to be negative by not eating wheat.

shan Contributor

I didn't train mine till she had been about 8 months on the diet. Yeah we spent a fortune on diapers, but at least when i trained her she was well aware and she wasnt soooo bad on D's any more. I felt for my child it was better for her self esteem. She was trained one month before she turned 3!!! But i doubt i would have waited any longer - older than that, i dunno, seems too old ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    3. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

    4. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,691
    • Most Online (within 30 mins)
      7,748

    4Nic8ion
    Newest Member
    4Nic8ion
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.