Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please?

Short-Core

By Short-Core
in Coping with Celiac Disease

Recommended Posts

Short-Core Newbie
Short-Core
Posted

Hey im bex, im 18 iv just been told i have a wheat intolerance. i am going for a blood test tomorrow to see if it is gluten aswell. :( Does anyone have any advice or tips on what i can do to get into a good diet/routine. ive already been out and bought a lot of wheat free things from the supermarket. i am a really fussy eater and i don't like most of the wheat free foods you can buy. :blink: im finding it really hard to get used to. please write back anyone, i'd really appreciate it! xx :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

I think you'll find, that as you expand the scope of foods you eat, you'll come to appreciate all the flavors and variety available. Plus, gluten does have a way of making us want nothing else.

If you are gluten intolerant, a "wheat-free" label may not be enough, so keep that in mind. However, when you say you don't like most wheat-free foods you can buy, that sounds like prepackaged wheat-free items which are traditionally made with wheat. Like breads and cereals. In general, most foods are naturally wheat-free and gluten-free.

It can really help to start out with whole, natural foods. Fresh veggies, fruits, and so forth. Also meats if you eat them. Avoid the processed foods, and you'll be avoiding most of the wheat/gluten. The more you can prepare from scratch, the better.

And it does take some time to get accustomed to the diet. Before long it'll be second nature.

ang1e0251 Contributor
ang1e0251
Posted

Welcome! You can find a wealth of information you'll need here. Be careful that your foods are Gluten Free, wheat free may not be enough for you. There could be other grains that are harmful to you there. In Indiana, we have grocery store called Martin's. They have a Gluten Free foods list on their website, martins-supermarkets.com. Click on "School of Cooking" then ckick on "view our Gluten Free Shopping Guide here". It may not be a store that's availble in your area, but it's a good list of what foods are ok for you to buy. You can take this list to any large market and do your food shopping.

Take it slow as you learn and soon you'll be an old hand, advising the rest of us on great foods!

Knightley Newbie
Knightley
Posted

Hey there,

I'm young as well, and began my gluten free lifestyle when I was 20...let me tell you, the most difficulties come from just being in life with other people who can eat anything! Young people eat lots of pizza and donuts...and so you will feel left out of some social situations. Most restaurants are hard to order wheat/gluten free too. Waiters just don't get it, and you can't trust that things are fine, you really have to KNOW what you're putting in your body! Salad dressings, sauces, and even drinks can have wheat in them. You have to be really careful about where you eat out at. So here are some gluten free safe places I enjoy:

Starbucks: any drink (but without added toppings like sprinkles), they also have a new granola bar that doesn't bother me and I am really intolerant to gluten and my stomach knows when I eat it, and I have been fine with them! Yay!

Cafes: Any cafe will put your sandwich insides on a plate for you...and you can roll your deli meat and cheeses together like finger foods and enjoy the lettuce, tomato, and pickle along with that kind of salad style I guess. I'm not big on salads...but if you are...just order big salads with lots of cheeses and meat in them for the protein!

If you go out to eat for dinner just stick to the basic MEAT & POTATOES thing. Like, steak and chicken and veggies will not hurt you. Just be SURE to tell them not to add gravies or sauces to anything and ALWAYS tell your waiter/waitress that you are wheat intolerant...they must at least be aware. Even though most people are kind of clueless...they don't want to get sued so they will try very hard to be sure your food is safe.

I know I've gotten WAY healthier eating gluten free. I now realize I use to just eat wheat all day whenever I was hungry. We need to actually be eating MOSTLY fruits and vegetables throughout our day...and if you do this, you are preventing all kinds of cancers and diseases! Your foods will save your life! Get into fruits and veggies. I eat lots of bananas, oranges, apples, grapes, pineapple....you will be surprised how full you will feel from eating FRESH foods from the earth! I enjoy dipping my raw veggies into a yummy dressing or dip (I just make sure it has NO wheat in it).

I recommend getting off of your typical wheat based foods. Gluten free baked goods just do NOT taste good for the most part. I have completely lost my desire to eat bready foods...they will never compare. I have enjoyed getting to know the rest of the food world...WHOLE foods! Foods that come from the earth and that have not been baked or altered by man...these foods are the foods your body will come to love and crave. It just takes time and lots of creativity to put together snacks and meals...but it gets easier over time.

Biggest recommendation: EAT! There are MORE foods without gluten than there are with it....don't feel like food is the enemy now. ENJOY the foods God has given us, it is a gift to eat and a gift to enjoy these flavors!

<3

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.