Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free And Getting Warm?


henny

Recommended Posts

henny Explorer

I have been gluten free for two weeks and my GI system is a million times better.

Over the past few days, I have been feeling warmer and warmer. For many years I have been cold constantly, so much so that I was known around the workplace for wearing my coat all day at my desk.

Is this warming trend something that happens with going gluten-free and starting to heal?

It's weird, but it's not bad :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I am not sure- I have noticed I wear short sleeve shirts because I can tend to get warmer but I am usually always cold--which is something my mom says I got from my dad. I have been gluten free for 4 years now.

Mother of Jibril Enthusiast

Feeling cold all the time is a common symptom of hypothyroidism... which (if it's an autoimmune condition) might improve when you go off gluten. Have you ever had your TSH level checked?

henny Explorer
Feeling cold all the time is a common symptom of hypothyroidism... which (if it's an autoimmune condition) might improve when you go off gluten. Have you ever had your TSH level checked?

my doc never tests me for anything...he just says 'IBS' over and over.

Mother of Jibril Enthusiast

Sounds like it's time for a new doctor! Even without insurance, it only costs about $50 to test your TSH.

I'm trying to find a new doctor too. The one who found my hypothyroidism moved to another town (thanks for the warning) and his "replacement" spent less than 30 seconds asking how I was feeling on my new medication. "Just tell me what kind of tests you want... I'll order anything you want." Ironically, she wouldn't do the tests I really wanted (for antiphospholipid syndrome) and ordered something I hadn't asked for (ANA... which indicates lupus and some other autoimmune disorders I was already pretty sure I didn't have). <_<

I was grateful for medical doctors when my son had meningitis this summer, but when it comes to my own health I've had very little success with them :angry:

Mother of Jibril Enthusiast

ps - Besides feeling cold, here are some other symptoms of hypothyroidism:

- Constipation

- Depression

- Anxiety

- Dry skin

- Heavy, irregular periods

- Fatigue

- Hair loss

- Slow heart rate

- Low blood pressure

- Weight gain, difficulty losing weight

ShayFL Enthusiast

NOTE: I was severely hypothyroid but thin and loose stools. That was thanks to GLUTEN. So those symptoms arent always the case. My thinness and loose BM's were why I couldnt get dx properly for nearly 12 years. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Good point.

I think the really tricky thing is that if you have more than one autoimmune disorder (which is common), the symptoms can conflict. Lots of people with gluten intolerance get diarrhea; in me it has the opposite effect. Also, not everybody has the same symptoms or the same severity :huh: Hypothyroidism can lead to high cholesterol, but that has never been a problem for me.

Mother of Jibril Enthusiast
NOTE: I was severely hypothyroid but thin and loose stools. That was thanks to GLUTEN. So those symptoms arent always the case. My thinness and loose BM's were why I couldnt get dx properly for nearly 12 years. :(

By the way... I'm sorry it took so long for you to be diagnosed! :(

Looking back, I had a lot of the symptoms of hypothyroidism by the time I was a teenager. It makes me sick to think about how many doctors I saw without getting a diagnosis. I was an athlete in high school and I'm sure I looked like the picture of health. I remember having a physical when I was 17 and my blood pressure was 70/40. The doctor said, "Are you still alive?" Duh... After a while I just assumed all those symptoms were "normal" for me. Being able to fix the problem is like a miracle. Now I'm 32... better late than never!

Generic Apprentice

I admit heat when I eat gluten and often get too warm and throw up. I guess everyone is different.

Ms. Skinny Chic Explorer
my doc never tests me for anything...he just says 'IBS' over and over.

Anemia makes sufferers very cold. I have iron and pernicious anemia, which have improved greatly. With the appropriate treatment everyone is warm.

  • 4 weeks later...
wschmucks Contributor

If you have Celiac-- it is also very common to have low blood iron levels= you feel cold easily. If you have gone on a gluten free diet your body is probably starting to have a higher iron level= you feel warmer again.

It could just be that you were anemic and even if it was only slightly you would feel a change in your body's temperature.

Krystle56 Newbie

I'm kind of like that too, and even though I've only been gluten free for a day and a half, I have noticed a difference. Before, right after I ate I'd get really really cold for about 5-10 minutes. It was the weirest thing ever!

SGWhiskers Collaborator

I'm always cold, but it has gotten a little better since going gluten-free 9 weeks ago. At about week 3-4, I noticed I wasn't always feeling chilled to the bone. My fingernails also started getting a bit pinker. They were always pale and/or a bit purpley. I'm finding that if I dress warmly for the weather, I'm quite comfortable. In the 3.5 years before getting diagnosed, I had crazy hot flashes mixed in with the chronic cold. Now the hot flashes are gone. I hope we both can shed a layer or two this winter.

SGWhiskers

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.